27 Apr 2018
Author
doglover
Title

PULSE #10 OVER!!

Body

Well I just finished my tenth pulse, albeit it was only 2-500 mg for  five days-I seem to have handled it well (knock on wood). I have noticed slight improvements, or I should say my daughter, who I see a couple times a week noticed that I seem to be getting around easier!  I'm in a wheelchair but I can transfer to the drivers seat of my car and at home to more comfortable chairs.  I do seem to have a tad more balance too!! It's almost been a year since I started this protocol and though I've had a couple of rough spots it's very encouraging to see even these small (huge to me) improvements

Comments

 You make me wish I were Walt Whitman!  You should celebrate yourself and your "small" improvements!  You have come a very long way - tell your daughter it means a great deal to us all.  As "they" say somewhere - "Let 'er roll!".

Rica PPMS  EDSS 6.7 at beginning - now 2.  Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyl  total 35 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

 

 Hi doglover,

 Congratulations on your persistence!! Glad to hear you are making progress and, actually, it sounds like significant progress considering 1) you are no longer getting worse, and 2) it is easier for you to get around. Keep it up!!

Started CAP in June 2006 for treatment of brain fog and memory issues, allergies.

On CAP from June 2006 to July 2008 for high blood pressure, nasal allergies, restless legs, memory and cognitive problems. On intermittent CAP from July 2008 to August 2009. Currently: using RIFE Machine and under treatment with a Naturopath, symptom free

Doglover,  Your story and improvements are important and inspiring to all of us.  I agree with blackeyedsusan, your progress is significant.  Just the fact that it is progress and not progression is no small accomplishment.  It's a happy thought to imagine what you might be reporting to us a year from now.  You go girl!

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

And I noticed one more thing which marks your significant progress: the way you signed yourself off. Dogs love them after all.  The last time you blogged you sounded quite down but all that has gone.  I think it very good that your daughter has noticed these improvements.  If you are in a wheelchair just the ability to be able to move from that to your car seat or a more comfortable chair must be huge.  I will look forward to seeing your next blog!........Sarah 

An Itinerary in Light and Shadow.Wheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Doglover, so pleased to hear that you are making progress, it is progress to be able to handle the pulse you have done without too much trouble, bacause that allows you to be more vigorous in your treatment, and then the whole thing starts to snowball.   Honestly, not getting worse and being able to make yourself comfortable are such major achievements.

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy, also spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

 Linda- three more weeks and it will be a year. Likewise, I believe your improvement is significant. You haven't had one exacerbation since the beginnig of CAP, your balance  and transfer ability improved. It will be better and better. All of us have solid grounds to be optymistic. Barbara.

RRMS, entering SPMS when diagnosed in Nov,2002. On CAP since Feb,2005, intermittently every two months for two weeks since April,2006. EDSS 5.5 at the beginning, zero since April 2003.

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.