Cpnhelp.org

my ldl is 193 mg/dl

i found this comment by dr. thibault 

Virtually all patients that I diagnose with chronic persitent Cpn (Chlamydophila pneumoniae) infection have a raised LDL level. If they are treated with a statin from the begining, they will frequently have typical muscle and joint symptoms. If however they are commenced on the appropriate antibiotic protocol and diet first, then recheck their LDL level, it usually reduces a little, perhaps enough to get to the level I am after. If it doesn’t reduce enough – often it is quite high, I commence them on a low dose of rosuvastatin and they don’t get the statin side effects. At that stage many get by with a low dose of statin. If they respond well to the treatment and I have evidence that the Cpn infection has been eliminated or suppressed enough, they can come off the statin. So the statin is acting like an antibiotic. Cpn needs cholesterol for its outer membrane but can’t manufacture it itself. It has genes to manipulate human cholesterol metabolism in the liver (stops its secretion) and also oxidises LDL in circulating macrophages. This is one of the mechanisms by which it contributes to vascular disease. The other mechanism is its ability to increase platelet aggregation. Cpn is transmitted from person to person by prolonged close contact and this is why one sees high prevalence in situations such as army barracks. However, I suspect the main transmission comes from within the family and may be the reason why many diseases appear to have a “genetic” – you catch it off your parents. It is of interest that the neurologists are now trailing the use of statins in MS! Unfortunately they just understand why statins may be of beenfit in this situation.” Dr Paul Thibault (in conversation with science journality Maryanne Demasi), vascular specialist, Facebook, Australia, Apr 2019.

but also a link to this study on cpnhelp.org https://pubmed.ncbi.nlm.nih.gov/16466690/?dopt=Abstract

can somebody give me an opinion to go on a statin or not?

what are your ldl levels?

thx

Marvel, your ldl level is very high and if it was mine, which is 130 or thereabouts. I would be worried about it. However, you can lower your level without taking a statin. A friend of mine had a heart attack at 50 and was put on a statin. It didn't agree with him and the thought of taking one for the rest of his life didn't appeal.

So he changed his diet and his life-style. He walked to and from work most days, a distance of about three miles, rather than using the car, ate fish and chicken rather than red meat and fifteen years later and with an ldl level of about 150 he is doing amazingly well and so is his business.

Sarah

thx sarah. im adjusting my diet at the moment etc. but im not sure how much this woll help. my goal would be around 100. not sure if this is doable with lifestyle alone.

do you know what your ldl was before treatment?

interestingly my ldl decreased to 104 when i was on mino azi and tini in the beginning of 2019. i dont remember changing my lifestyle then. before abx in december 2018 it was also around 190. i think this is the work of cpn mainly and not my lifestyle. neverthless ill tr, to adjust it.

Marvel, since I was treating for MS and not heart problems, I have no idea what my ldl levels were before treatment. I only found out what they were a few years ago out of interest.

I think that my friend reducing his levels after a heart attack which he never saw coming is far more interesting.

Also look up my husband's treatment of his own problems, which is very interesting: look up David Wheldon under Patient Stories, since I can't get the link to work.  He did die last year but that was due to something else completely.

Sarah

yes i want to read the story about your husband but the link is not working. can you provide me a working one or what tobsearch for?

this is a horrible disease... even if i ever get cured now i have to worry about artheriosclerosis too :/ ill go and see a doctor for this to get some check ups done...

results:

my calcium score is 0. my arteries on my neck are clear according to ultrasound. my lipoprotein a is in the normal range. im not going on a statin now.

ldl plays a role in infection which the body is benefitting from. might change when you have it for too long. what is too long? no idea. but i have no signs of artheriosclerosis so i wont do anything right now.

Glad to hear it Marvel.

Sarah