Submitted by MMHHPP on Sun, 2017-05-07 04:00

Hi allI hope someone can help here. I am reaching desperation now….When i walk my feet are so stuck on the floor that in order to move with my walker is daunting! I only walk from sofa to toilet from bed to toilet from bed to landingGo on my bottom down staircase, husband needs to lift my legs up the stairsThis is so desperate, and when i finally make it to the bed my legs don’t lift up and my upper body is not strong enough to do anything . I see many of you have just started ms but is there someone in same situation? Please reply saying how you do it! I am most of the time on my own kids in school husband working so this is now quite upsetting…..I still can manage to sit down on my scooter and scoot outside the house which is my best time!Please reply

Dear MMHHPP, one obvious answer to me, seems to be a stairlift: your method of coming downstairs is one thing but your way of going upstairs seems positively dangerous to both of you!  I think they can be rented as well as bought, but they can also be bought back when no longer needed.  Mind you, they can also be used for carrying things up and down stairs!  I have seen ones which fold so neatly against the wall that they are harly noticeable when not in use.

No help for getting you into bed though, so hopefully someone else will have a good idea which doesn't involve either a husband or a hoist...................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I agree with Sarah!

I have stairlifts inside and outside.

I bought them after trying to bum myself up the stairs one night.  I was about half up when one of my legs locked and I slid down to the lower floor and ended up in the emergency room.

It hurt my pride to get them, but I would be bedroom bound without them.  My fellow can help me on and off the lift seat but he can't lift me himself up or down stairs.

I hope that one day I won't need themt but I will keep them because my elderly mother uses them when she visits.

I highly recommend getting a stairlift for yourself and your caregivers.

Yes, completely agree with Sarah and HealthyGirl, you really do nead a stair lift before you have a serious misshap.

 We used Albion Stairlifts who supply new or refurbished lifts, we found them on Ebay and out of all the enquiries we made Karl's company was the only one that was willing to come all the way to The Isle of Skye to fit one. We went with a refurbished Acorn model which has been completely reliable over the past five years, we fitted new batteries last year which is very easy to do.

Website is

Email is

And telephone number is 0800 980 4699.

I have no conection with the company other than as a very satisfied customer and I would definitely use Karl again.


T and T

Optic Neuritis in teens. Diagnosed spms in 2001.

Started suppliments in Feb 2014 in readiness for ABX.

Started Doxy 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.

Started Tini 16-07-14

Are you on your abx regularly?  At all times, my regimen was unbreakable.  Many, many times I got worse, but after the first time or two I realized that it was part of the ongoing events of this protocol.

I hope that is what is happening to you and you will begin to improve after whatever length of time this requires.  My memory is that different parts of my body were "worked on", most of them several times over my thirteen years on the abx, and finally, finally there was NO reaction and I stopped.  

This is, as I have said many times, a long, difficult undertaking, but so worth it.  I continue to inprove, but I am doing hard exercise to strengthen muscles that would waste away.  


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi there!

I have a fair idea how you must be feeling. Things have gradually worsened for us both over these past four years.

You and I are both Brits living in Britain. The Local Authority Social Services department have an obligation to us both. You should have already told Social Services that you have MS and where you live. You are entitled to an occupational health assessment by their qualified occupational therapist. Following an assessment, you are entitled to apply for means tested grant aid. In Wales, the grant aid ceiling is £35,000. It is slightly lower in England. The object of that money is to keep you in your own home as long as possible. Building works enabling disabled access; addapted shower rooms; bed hoists; hand rails; stair hoist and even a lift that will go through the ceiling (I was a lift engineer and have worked on several of those).

Anyway, either you or your husband get on the case and get onto Social Services. You require an occupational health assessment. You are entitled to much of this stuff. As you and I know, when anyone mentions "The Council" the phrase "F*****g useless" immediatly springs to mind. As always, your face has to fit. My face doesn't fit anywhere, so I had a perching stool out of useless s***s. You might be able to do quite well. The less money that you have, the less that your contribution will be. In my case, I abandoned getting stuff I need (addapted shower room etc) as my council authority is particularly useless and it'd be cheaper paying for the stuff myself. Whatever happens, get that assessment!

I take it that you are already a member of the MS Society (another pretty ineffectual organisation). Apart from being effective shills of big pharma, they do award grants for certain items. They also have a support worker scheme in certain areas. They also offer a free phone advice line (though I don't know that there advice is any good). You have children. There is a lot of weight on your husband. You should have a Social Worker for you that should be getting this stuff for you. Ask Social Services to assign a Social Worker to you (God, what am I saying, Social Workers are probably some of the most useless creatures to walk the face of the planet). That said, this may work out OK for you. Hey Hun, get the ball rolling. They are slower than glaciers move but the sooner that you get the ball rolling, the better.

Please do let us know how you get on.

Kindest regards


“Don't believe everything you read on the internet.”

―    Abraham Lincoln

To me, although I'm no expert, this sounds like severe foot drop. I get it quite badly, it's disappeared temporarily, twice. The first was when I took advice from David Wheldon and took very high doses of vitamin B12, the second, after a couple of weeks on cap. It's back, but I feel confident that it will go completely, however, I will re-start 20, 000 mcg, sublingual, per day. I also have an elastic, subtle contraption, given by the ms hospital. Ihope you find the right answer for you.

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro