23 Feb 2021 07:28 am
I just finished my fourth Intermittent CAP with 5-day Tinidazole pulse.
Pretty good CAP---no noticeable fatigue, but some definite increase in anxiety. Anxiety was alleviated with Lithium Orotate (an OTC here in the states).
Now, I will be taking a 7-week break and will start my 5th Intermittent CAP on April 5th, 2021.
Updates:
--Elbow Psoriasis: Greatly improved. Now, the affected area is just spots instead of a solidly affected area.
23 Feb 2021 07:28 am
Hey Sarah--
I've taken Lithium Orotate for over 10 years---most of that at a micro-dose at bedtime, BUT when this higher anxiety hit me, I decided to try higher doses of L.O., and it worked like a charm.
To segue to another topic: have you read/heard of Cpn being a possible cause of Ehlers-Danlos syndromes (EDS)?
Cheers,
Jan
56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.
27 Apr 2021 03:40 pm
Intermittent CAP + Tini Pulse: #5 Completed
Just finished my 14-day Intermittent CAP with a 5-day Tini pulse.
Energy was good; no noticeable reduction in activity levels---no strong anxiety (still taking a bit of Lithium Orotate).
I delayed this CAP by one week to take my second COVID vaccination.
I will take a 2-month break, and start my 6th Intermittent CAP on June 21st (summer solstice).
Updates:
--Elbow Psoriasis: Now, just spots on each elbow---some flaky white, scaly skin. Still healing, but progress is constant.
--Scleredema (not Ankylosing Spondylitis or Scleroderma): No lower back pain. Stiffness/soreness--yes, but only when I’ve worked hard in garden. This all dissipates after a night of sleep/rest.
--Energy Levels: really good---I can work throughout the day/don’t need excessive caffeine to stay alert/head feels clearer. These past few months I rebuilt my garden: new beds + planting + mulching---all with the improved energy levels.
Thanks for reading,
Jan
56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.
Oh, well done Jan: better post a picture of the new garden cometh summer!
Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
25 Jul 2021 12:53 pm
Intermittent CAP + Tini Pulse: #6 Completed
Just took my last doses of Roxi + Doxy on Sunday, July 25th, 2021.
I had to delay this last Intermittent CAP because of other health issues: a vertigo episode with a trip to the ER
I am still recuperating with some dizziness and fatigue. I don’t know if this is related to the COVID (Moderna) vaccinations, although the hospital doc did query as he had seen some other cases.
I am stopping the Intermittent CAP for now. Edit: But I am going to continue with all vitamins + supplements, especially NAC.
To review: I did the FULL-TIME CAP for 16 months, and have just completed about 11 months on the INTERMITTENT CAP (comprised of 6 segments: each segment was 14 days of Roxi + Doxy with 5-days of Tini sandwiched in the middle).
I continue to be worried (low level) about Persister Cells:
--https://pubmed.ncbi.nlm.nih.gov/24038684/
--https://medcraveonline.com/IJCAM/is-a-hidden-infection-causing-your-fatigue.html
--https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3913823/
I am contemplating continuing Intermittent CAP once a quarter in 2022. My thinking is that I’ve worked too hard on this protocol to lose all the progress I’ve made by not recognizing there could be these persister cells hiding in my body that could (slowly over time) reignite the Cpn. I am not confident that I’ve killed off the Cpn totally.
Updates:
--Elbow psoriasis: I still have red spots---these seem quite deep (much more than I had originally suspected), but seem to be healing as each layer peels off.
--Scleredema: I am most excited about how the thickest skin (upper back + neck and thighs) seem to be dissipating more quickly now. A side-effect of the reduction of the very hard skin is that my thigh muscles which have been encased in very hard, very thick skin for most of my life are quite weak. My daily Qigong seems to be helping with this quite a lot.
--Energy Levels: Lower than last report. Could be a lot of reasons. This last 14 days of Intermittent CAP has made me feel more tired than I think is normal, but I could still be recuperating from my vertigo episode (the ER doctor told me it could take up to a month to recuperate). We have also had more family illness (MIL with Progressive Supranuclear Palsy): making decisions about feeding tubes, etc. We have had extraordinary heat (115F) before the monsoons arrived just a few weeks ago---all can contribute to fatigue.
I want to thank everyone for their support during this whole protocol---especially Sarah, Neena, Kiki, and in particular, David---I know you can hear me! I am reading and trying to catch up with everyone’s news + progress.
Cheers,
Jan
56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.
Wow Wow Jan,
I wish Jan i could be there to toast your success with a glass of wine -- or vidka which I prefer!. What an amazing journey.
Yes that one a quarter intermittent sound logical, just in case some teeny weeny bugs remain. Do occasionally keep on this website. It cheers everyone to learn more about a success story.
Take care.
Neena
I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.
I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.
26 Jul 2021 12:35 pm
Hi Neena!
Thanks for the toast ---I'll have a glass of sparkling grape juice! And I will imagine us clinking glasses.
I appreciate your comment about the quarter pulses next year---I think it just makes me feel better to do those.
I definitely will pop in and see how everyone is doing.
And on that note, how are you? and how is your daughter-in-law?
Cheers,
Jan
56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.
Excellent Jan: lithium…
Excellent Jan: lithium orotate is very good at relieving anxiety, isn't it?
Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.