19 Nov 2020 01:44 am
2 Nov 2020
Title
Intermittent CAP + Tini Pulse #2 Completed
Body
I finished my second Intermittent CAP + Tini pulse on Sunday, November 1st, 2020.
Again, it was a 14-day CAP with a 5-day pulse of Tinidazole sandwiched in the middle.
Comments
19 Nov 2020 01:16 pm
Neena, I haven't heard from…
Neena, I haven't heard from Lizzy since she got to NZ. I sent her husband an address to try to get abx to send to her but before she went, I suggested taking high dose biotin. The tablets are so small that it is easy to take up to fifty a day!
I am hoping that Kiki and family are okay, but all these lockdowns are not designed to help anyone recover from something else! I will write to Kiki and ask how she is getting on but I know she hasa supply of abx.
Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
24 Nov 2020 02:44 am
Dear Sarah
Perhaps Lizzie is still in NZ but wonder why the silence from Kiki.
Sometimes I wonder how long for some small maybe but definitely positive sign in Sonal
's case. All I can say that she seems to have a little more energy and her mind is clear and sharp. But mobility is thoroughly compromised and puts a strain on the entire household. But she tries to remain cheerful and ensure the family has a good environment.
Sarah in Sydney seems to be better from what I gather from her post above. What exactly was her medical issue?
Take care in these difficult times.
Neena
I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.
I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.
2 Nov 2020
Hi Sarah Jan Chris Kiki Toliveagain and all
HI ALL
It is some time since I posted. I think -- but can never be sure -- that after two pulses of TINI and a third is due shortly, what has happened with Sonal is that she seems to have more energy. The other day she commented that she sat on her sofa supervising some work in the house and realised she had been sitting there for six hours or so without being thoroughly exhausted and wanting to lie down. I see this as a good sign. But no better on mobility.
Everyday free of covid in these times is a blessing. And children continue to work from home as well as partners and husbands. So life has become more chaotic. And each day brings news of some friend or member of extended family down with Covid.
Will post again after Sonal finishes her third TINI pulse. By the way she finds TINI that much easier in terms of appetite and nausea. Still makes her exhausted but better than Metro.
Everyone keep safe. Any news on Lizzie and Kiki anyone?
Neena
I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.
I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.