Recommended Supplements and Adjuncts to CAP'sRecommended Supplements and Adjuncts to CAP's
Supplements and other treatments are considered essential, not optional, when using CAP's. They are important to counter secondary porphyria symptoms, counter the endotoxins from Cpn die off as well as the cytokine inflammation, protect the vital organs of the body from Cpn toxins, and help provide the elements need for the body to rebuild and regenerate cells lysed (killed) when the Cpn infecting them is killed.
David Wheldon's website contains vital and important discussion of many of these supplements and should be basic reading for all using any of the CAP's.
Charts covering the supplements are available in this section to help organize the handfuls of pills that go along with thee project.
B12 - benefits and methods of administrationB12 - benefits and methods of administration
B12 information Through the research carried out by members we have collected the following information on the benefits, forms and methods of administration of Vitamin B12. Sarah I looked up B12 patches http://www.b12patch.com/product.html It is cyancobalamin, not methylcobalamin, which is what I take sublingually. Cyancobalamin converts to methylcobalamin in the body, so it seems sensible to short cut the process. If you suck the stuff it is absorbed in the mouth or oesophagus, so doesn't come into contact with stomach acids. I used to have B12 shots, but the burst of energy didn't last, so I started taking tablets every day which seemed more sensible. A patch gives you 1000 mcg of cyancobalamin a week. At the moment I am taking 4 x 5000 mcg of methylcobalamin a day and I am certainly feeling the benefit. Plus I quite like the taste....... I use either Source Naturals or Jarrow formula 5000 mcg of methylcobalamin B12. The first is smaller, the second I like the taste of. The difference is, I have taken to use 4 a day, just as an experiment: http://www.cpnhelp.org/neural_ectoderm_and_my_ha Not everyone might want to see how long they can grow their hair, but it works for neural ectoderm as well. You just need to suck the lozenges, or munch them up and swallow the small particles. If they are absorbed anywhere before they hit the stomach, the effect will be the same, according to DW. I used to laboriously suck them and take an extra one if I accidentally swallowed one, now I save money by not bothering.. 2.5 micrograms is the recommended daily dose for normal people. Everyone, apart from vegans, is almost bound to get this with a normal diet. Everyone here, not just people with MSi need much more than this, but unfortunately most neurologists seem to be rather vitamin challenged so it was never even suggested to me. My GP offered me weekly shots of 1000 mcg of cyancobalamin which did seem to give me a boost for a few days. Being a water soluble vitamin, I reckoned that I needed it every day, so started supplementing in between times. Eventually, because I hated going to the surgery so often, I stopped and relied solely on supplementation. I don't personally think that a patch supplying 1000 mcg a week of cyancobalamin is enough for someone with MS, but like me and my weekly shots at my GP's, you could always supplement as well, but that's kind of defeating the object plus costing too much..... Mark B12 Products - There a number of cheap ways to get sufficient B12 and it is a matter of personal choice and how much you want to spend. Some basic info: 2 microgrammes a day of B12 is required daily (one thousand microgrammes is one milligramme). B12 is important for nerve support. 1% of a sublingual tablet enters the blood stream under the tongue (this is achievable for most patients, some will do better). B12 is water soluble and any un-needed B12 is excreted. Products available include:Lozenges (fancy name for a suckable tablet) of 1mg to 5mg give plenty of B12 and are cheap. Choice is often around product flavour as this is important for ease of use. Patches - easy to use but a lot more expensive than the oral products. Microdots - 500 microgrammes - are very cheap and as they are very small, so should be easy to keep under the tongue, until fully dissolved. Liquid (5mg in 5ml) for people who don't like tablets under the tongue. Injections give an immediate boost in B12 levels but are no more effective than the oral products for on-going supplementation. So make your choice and pay your money. Lexy As an aside, we have found a sublingual that is 5 MG. For those metrically challenged (that's me) that is 5000 micrograms. This has worked quite well as evidenced by Jim's B-12 blood levels which are quite high (1500)-a good thing that pleased his doctor very much. At first - early in treatment, Jim actually took one tablet three times per day and achieved one B-12 blood reading of 1900, now he only takes the 5 MG once under the tongue per day. The brand is Source Naturals Methylcobalamin and we have bought it at both Iherb and Vitacost for a very nominal fee. I don't know if it is better to spread out dosage throughout the day, but for convenience this 5 mg sure has helped.
Can someone help me with my schedule for treatment?Can someone help me with my schedule for treatment? karen b Tue, 2006-09-05 11:42
We have starded the treatment last week. We found a really nice doctor in are nebeirhood that has accept to prescribe the treatment (antibiotics). the only thing is that I'm the one that has to make the schedule of when to take what. It is a bit overwelming for me. I dont whant to make any mistakes. the protocole is in english and some time's, I am worried that I dont understand the right thing (I am french) we live in Québec, canada. So to make sure, I would appreciate some help. This is the schedule I made, hope it's find. If not, please tell me, and help me with the next step. I included the other medication's that was already prescribed and should be continued as are doctor suggested. Thank you in advance for your help!!!! It is very appreciaded! What would we have done without this amasing site??????Breakfest (9h00-10H00) (4 total)Vit C (1g)Q10 (100mg)Gabapentin 11h30Doxycycline (100 mg) (strarded sept. 4) for 21 days 12h30 (3 + powder)Vit E (8000ui)Selenium (200mg)Omega 3n-acetyl cysteine 600mg (powder) 16h30 (3)Lipoec (150mg) 17h30 (supper)(3)Q10 (100mg)Evening primerose oil 1G 19h30(2)Doxycycline (100 mg)Gabapentin Before bed (3½)Melatonin (1.5mg)Clonazépam (2 mg)Amitriptyline (50 mg)gabapentin Has received Vit. B12 the 2006/08/30. Next one in a month. Going to start azithromycine next week (monday-wednesday-friday) for 3 weeks. what is the next step? (I dont whant to understand something wrong because I am a frenchy hi! hi! hi!Karen b for my dad "Pete" and who know's, maybe me in a while (that is another story)
Chart: All supplements recommended on CAP's protocolChart: All supplements recommended on CAP's protocol
You can find a chart which lists all the recommended supplements during a CAP's here. A link to the Czech supplements chart can be found here.
Download PDF File of All Cpn Supplements ChartsDownload PDF File of All Cpn Supplements Charts
Download a pdf with all the supplement charts:AllSupplementCharts.pdf
Sarah's Beginners Guide to SupplementationSarah's Beginners Guide to Supplementation
In response to a query from a newbie, Sarah posted this beginners guide to supplementation. It is reproduced here because itis so very succinct and clear for the newbie.... "Here is my list of supplementsii, many things combined so you don't have to take too many different items. It is good both for beginners and people wanting a maintenance schedule. In between times many people are going to experiment somewhat. They all come from the same place to make ordering easier and from a very reliable company with good quality, good dosages and very good prices. You can take most of them at any time you want, but take care not to have the cal/mag too close to the doxycycline - leave about two hours between these. Also take the acidophilus as far apart from abxii as you can manage. Take both doxycyclines together early in the day, with azithromycini on M/W/F, then the day is yours. When flagyli/tinidazolei is started, it will be a little more difficult, but that is only for a few days at a time. NACi, the wonder antioxidanti but also to avoid reinfection of CPn: http://tinyurl.com/m8n6x B12 - essential for helping to repair CNS damage: http://tinyurl.com/p4hhs B and C combined, includes adequate amounts of thiamin and niacini: http://tinyurl.com/nqp7a CoQ10 - for cell energy, which obviously ends up as personal energy: http://tinyurl.com/qdfmf I take two of these, but not neccesarily at the same time. Acetyl l-carnitine with ALA - ditto above but from a slightly different angle: http://tinyurl.com/ohfzh Vitamin D - essential, especially if you don't go out much in the sun: http://tinyurl.com/s9fqd Up to 4 a day Fish oil, complete, making evening primrose oil superfluous: http://tinyurl.com/rs7l8 calcium and magnesium combined - http://tinyurl.com/pdwnu Multivitamin - I suggest Source Natural's Visual Eyes because it contains enough of other things I don't mention like selenium, vit e and beta-carotene and it is very good for eyes: http://tinyurl.com/q65vn Acidophilus with fructo oligo-saccharides, which means you don't need to store it in the fridge and risk forgetting to take it: http://tinyurl.com/pouqz
Sarah's beginners Guide to Supplementation with weblinksSarah's beginners Guide to Supplementation with weblinks
This useful page that Sarah compiled with information about what to get where lost its links in the upgrade, or at least it lost them on my browser. So here they are again in full. NAC to avoid reinfection of CPn:http://www.vitacost.com/NSINAcetylCysteine B12 - essential for helping to repair CNS damage: http://www.vitacost.com/JarrowFormulasMethylB12 B and C combined, includes adequate amounts of thiamin and niacini: http://www.vitacost.com/SourceNaturalsHiStressBC CoQ10 - for cell energy, which obviously ends up as personal energy: http://www.vitacost.com/NSICoQ10-400mg-60Capsules Acetyl l-carnitine with ALA - ditto above but from a slightly different angle: http://www.vitacost.com/NSIAlphaLipoicAcidAcetylLCarnitine-240Caps Vitamin Di - essential, especially if you don't go out much in the sun: http://www.vitacost.com/NSIVitaminD3 Up to 4 a day Fish oil, complete, making evening primrose oil superfluous: http://www.vitacost.com/NSICompleteEFAFishOilGLAFlaxEPADHA calcium and magnesium combined: http://www.vitacost.com/NSICalciumMagnesium/cas-1 Multivitamin - I suggest Source Natural's Visual Eyes because it contains enough of other things I don't mention like selenium, vit e and beta-carotene and it is very good for eyes: http://www.vitacost.com/productResults.aspx?Ntk=products&.y=6&ss=1&.x=8&Ntt=visual%20eyes Acidophilus with fructo oligo-saccharides, which means you don't need to store it in the fridge and risk forgetting to take it: http://www.vitacost.com/UASLabsDDSPlusAcidophilusBifidusFos
Supplements: Research, MonographsSupplements: Research, Monographs
This page is almost a separate research page, but this time focused on supplements, or natural substances which work along with the protocols or with the diseases primarily addressed on this site.
Watch for it to grow as new links and info are added! Have a link to research or information that applies to the topic of this page? Post it as a forum topic or email mrhodes40(me) or Jim and we'll add it if it fits.
Melatonin with comments threadQuinolinic acid is an excitotoxin that induces oxidative damage. Melatonin prevented this damage.
Melatonin and Serotonin reduce CPn loads This article indicates that CPn may be inhibited by melatonin and serotonin. Interesting research!
Naturally occuring amono acids differentially impact CPn and CT. This paper looks at a variety of amino acids and how they impact CPn and Ct in terms of growth.
Curcumin and resveratol reduce CPn Cumin and resveratol (in red wine or grape juice) are useful for aiding in controlling CPn
This page is all about vitamin D. There is a large amount of research in this area so it is set up as a separate page.
This page is from David Wheldon's site and is specifically focused on the scientific references that support the use of the extensive supplement regimen he recommends for his protocol.
Tabulky výživových doplňků (Czech supplement charts)Tabulky výživových doplňků (Czech supplement charts)
Tabulka doplňků, potřebných při léčběPřeloženono Lalou