I was suggesting this site to someone I recently discovered has M.S. when I realized I hadn't actually been here in a while.
The biggest recent development on the M.S. front is that my neurologist, who has been skeptical of the CAP treatment, ordered an MRI (I guess so she could point out progression that just HAD to be there).
I just looked and saw that my last blog post was in January 2018.
Wow!
Since then, I have retired. My wife has retired. We have moved from a Dallas suburb to a catfish farm in Northern Arkansas that has been derelict for more than 40 years. We had a stray dog show up and start living with us.
I did the Wheldon Protocol for MS between roughly August 2007 to March 2009 (with maintenance pulses continuing until I ran out of antibiotics). Since then, my MRIs have consistently shown no disease activity.
The other day I had my initial appointment with my new neurologist.
I had prepared a detailed history of my MS. I also wanted to make sure she knew that I had done the "Wheldon Protocol" (and give her the opportunity to say, "Don't come back"). Her response - after glancing at it for just a few seconds - was, "I don't know what to make of this."
Really?
I just noticed my previous blog entry was in January 2018. Since then:
All of that was made possible by the CAP stopping progression of my Multiple Sclerosis.
Nearly twelve years ago, I first posted a Blog entry announcing that having "struck out" in my attempts to find a physician who would prescribe the antibiotics for the Wheldon Protocol, I was "striking out" on my own. Not having any medical training, I did manage to put myself in the emergency room a couple of times, but my management of the endotoxins got better with time and I successfully completed the regime. Since then, I gained back just about everything the M.S. had taken away from me with just a few tiny reminders that I once had M.S.
I completed the Wheldon Protocol for MS several years ago. Since then, my follow-up MRIs have all been "remarkably stable". I don't hide the fact I did the Wheldon Protocol without medical supervision from my doctors - in fact I shave the documents and the MRIs under their noses any time they will let me. Still, only my primary care doctor (who is an O.D., not an M.D.) is willing to believe the treatment had any effect on the disease. That's too bad for the other patients who could be helped by it, but great news for me.
I just noticed that it had been a while since I was last here and posted anything so I figured I needed to just say, "Hi".In the winter of 2014/2015, I had several instances where I lost control of my legs (the most severe MS symptom I had when it started). This winter, I had no problems whatsoever.I assume everything is going along okay since I still get up every morning and go to work and my performance hasn't suffered.
I searched this site and I'm not sure I got an answer. Do we have any people (current or former) on the site that suffered from Sarcoidosis? And if so, what was their experience with doing the Wheldon or Vanderbilt CAP? I'm asking because my wife's best friend's daughter has been diagnosed with Sarcoidosis and the immunospressant treatments they are giving her seem to make the condition worse (which it seems to me is to be expected if the cause is an infectuous pathogen rather than autoimmunity)I need to know because if the CAP can help, I can't just stand by and watch a 20-something girl die of a treatable condition if I know something that can help.
Somebody once observed that when people do the CAP and get better they start living their lives again and stop hanging around this site. I am one of those people. I used to write some rather humorous blog posts but ever since I completed the CAP, the ability to do that seems to have left me. I guess it was a sort of "intoxication" brought on by the toxins the CPn were throwing off that provided my inspiration and now that they're dead, so is the muse. I do miss being jovial, but I'd rather be able to walk, talk and sign my name (all things that MS took away from me at one point).
I don't know how many of you are old enough to remember the 1960's movie about the life of Anne Boelyn entitled "Anne of the Thousand Days". Apart from the candence of the title, it has nothing to do with this post. As a young man, I did think Geniveve Bujold was one of the most beautiful women ever. I wanted to marry a woman that looked like her. Of course, as I grew up, my tastes changed and my wife looks nothing like Geniveve Bujold, but that's okay because so far I haven't had the urge to cut off her head.