I have chlamydia Pneumonia and secondary Porphyria...need to talk to others but can't get verified...

Submitted by Guest (not verified) on Mon, 2023-03-13 22:05

Hello, my name is Matt. I have been suffering tickborne infections (Lyme, Bartonella, Babesia) for more than twenty years.

In 2018, I tested positive for C. Pneumonia but it wasn't paid attention to. I developed secondary Porphyria in 2021. A search for a cause led me here and my C. Pneumonia diagnosis. More recent testing shows I am still positive for it.

I am desperate to talk to others who have C. Pneumonia and esp if you have Porphyria. The latter condition is absolutely hellish. However, no one responds to my requests to be verified on the site. 

Mymom_andme22 Have 325 pages of hospital records from 1976

Submitted by Guest (not verified) on Wed, 2022-09-28 23:27

On the way to me now. Endocarditis, resistant to everything back then, except one doc had a few tricks up his sleeve. I wonder what mysteries will be unlocked from that two and a half month stay. Her persistent vague symptoms/conditions have endured/evolved over the years. Parallel with this site's info. Anxiously awaiting to see what bugs and drugs were/are in the mix. Mom and me have some reading to do!

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Submitted by Guest (not verified) on Wed, 2012-11-28 12:44

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Submitted by Guest (not verified) on Sun, 2007-07-22 13:53

Dear All,My doctor has been telling me to take probiotics for some time now. I think my mind has finally come around. Which probiotics does the Protocol say to take, and what brand is best?I've had some interesting PRIVATE message's, I like them. They show that there are people behind the writing.Thanks,DR. FUBAR


Submitted by Guest (not verified) on Fri, 2007-07-20 21:10

Friend's of DR. FUBAR, Can anyone tell me if they have finished the entire protocol? What shape were you in when finished? There are always up's and down's in a treatement, but what was the final result?Arttile, I know this question excludes you. I hope your feeling's aren't hurt.DR. FUBARP.S. A man's name describes him!


Submitted by Guest (not verified) on Mon, 2007-07-16 22:15

To those that have replied, and other's. My doctor is a friend practicing Alternative Medicine. A retired surgeon, and Anesthesioligist. He has tried so many things on me, I don't know what they are all called. He believes one of the treatment's took away any CPN. The blood test will tell me.