Submitted by Homina on Wed, 2016-11-16 15:47

I am getting to the point that under good conditions I can have what I call a normal (for me) lifeI am doing much better than five years agoI can work at non strenous jobs part time can get exercise twice a week and get some sleep at nightBut  to my surprise I am still a hothouse flowerRecently I went to a workshop in the desert and camped for a few days  It was hot ( I don't do well in heat and cold ) I did not have the chance to lay down which I do frequently in my everyday life etcI had a very hard time sleeping and got to the point where I could not walk very far I had to get into my car to get from point to point even short distances.I became so fatigued that I started overeating  (what I do when I get very fatigued) and could not get enough electrolyte drinks I ran out of gas while others seemed to handle the stress well They could work harder than me get to sleep and get up and work the next dayit shows me how much progress I need to makeDisappointedThanks

Homina, I have said for years that we are the fortunate ones.  We are doing a positive thing that gives us great hope.  I also say that I should have been dead ten years ago, and I am serious.  This can take a long time for those of us who have unknowingly "nurtured" it for years.

Stay with it - it is obviously working.


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am