Submitted by LivingOnTheFence on Sat, 2006-01-14 20:30

Had been lurking on This is MS for a while.  I finally made the commitment to myself to try the Wheldon Protocol.  My GP was very interested.I was placed on the basic Doxy 200 daily and Azithromax 3x/wk, along with the supplements.3 days into the protocol I experienced my first J-H reaction.Severe L leg spasms which makes walking and standing painful and distrubs my sleep.  This particular Sx was never that severe during my first MS attack.  It is very distressing. 

Ah, but there is your proof the abx is attacking SOMETHING!  I would be relieved to have herx, to be honest.  I've sailed through abx and adjuncts and flagyl pulses, which sometimes unnerves me.  Such an instant reaction says to most of us "aha - it's working; I was right to do this".  You're off the fence now; it's all good from here on out, even though the road (as you are learning) may be a bit bumpy at times.  The first step is the hardest and you've already taken it!  Welcome!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Glad to have you here, On the Fence!
My doubts about this treatment have been many but time has revealed so many improvements that I have made a committment to follow it faithfully.
The die off of Cpn can make it seem like one is getting worse. In reality,
this is necessary in order to heal the body. Information is our only weapon against doubt. The more you learn, the more it will make sense that we are under attack by a devious and difficult to kill organism.
In moments when I felt I was not making progress, I would read some of the articles I printed from the research page and highlight them.
This helped give me the mental courage to keep going.
I don't look to any medical person to validate what I am doing but my own doctor. Other doctors I have seen just want to ignore what I tell them about the treatment. Their minds are closed.
You have found a doctor who is open to the treatment---hooray for you!
Now you need to learn everything you can to follow the path.
We are all here to support you.
Fly free,
Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

HI Fence, do you need a new handle now? Maybe green side of the fence or something? We are glad you are here. I want to ehco raven and mac. It is good to have these littll hints you are getting something happening. I also have had some reaction but never enough to really convince me. I felt worse, but not really so I could tell it was the medications with the exception of NAC which was like an allergy with runny nose and throat, and achiness. I felt maybe more energy but was I imagining it because it's cool fall now? Well, I finally after 4 months and two rounds of flagyl I have had a significant develpment that is undeniable. I do not need the spasticity medication I've been taking for 6 years at night to sleep. Last night I slept 6 hours undisturbed. I feel less spastic at night off the med than I did just a month ago ON it!

And a month ago I was having my first flagyl, and though some people have a really noticable change going right into a flagyl fog, I did not seem to have any experience taking it at all like that, though I did start falling and tripping more and the med itself made me nauseous. I had a one pill one day, a two day flagyl pulse then Jan 3-8 I had a whole pulse. It was a week after this third one something happened and the spastcity medication was able to be dropped. ANd I MUST impress this: I have less spasticity and feel better without it now than with it though attemptsin the past to quit have been miserable and I gave up. In fact I also have to say the spasticity was really bad last month between the time of the one pill and the 5 day pulse: I had lots of really grabby spasms and my walking was bad overall, stiff and spastic. I felt terrible that whole time and kept falling down, and I was not sure treatment was working, I just seemed worse overall. I'm telling you this so you know that you can seem to have not much happening then something just finally clears to the point you have a breakthrough. Hang on to those moments of "aha!" so you can refer to them later. we all look forward toyour stories of success
I'm glad you have decided to try this approach for yourself. You will have lots of support here!
Blessings
Marie

On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxy 200, Azith 3x week, Tini cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

 Wow, replies, I am just finding my way around the board.  Thank you.  After spending a very painful weekend.  It was wonderful to get this validation. 

Despite the pain and my insomnia, I have this odd sense of serenity that I am being healed.  So glad I have this new community.  Perhaps it's life on the cutting edge!

Karen

RRMS, Dx 3/05, Rebif 4/05 added Wheldon Protocol 1/06

Have you tried melatonin?  Never in my life did I have problems sleeping before MS- I have always said I was like a babydoll: lay me down and my eyes fall shut.  For three nights, best taken a couple of hours before charcoal at bedtime, I have taken one pill and have slept straight through the night.

Rica 

Ignorance is voluntary bad luck.  Lauritz S.   A true Viking

If you come to a fork in the road, take it. Yogi Berra

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Life on the cutting edge!  Yes, that's it and we are all there.  Jolly uncomfortable sometimes, though.........SarahImage removed.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Welcome to community. Please try vitamin B1 100 mg twice a day for muscle spasms. It worked for me three years ago after four  or five doses, hopefully will help you, too.

                                                                               Barbara

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.