17 Apr 2021



Hello everyone, Just a short note to say today is my anniversary. One year on CAP. I just finished my 12th pulse yesterday and feeling it, ugh! My pulses are small, Flagyl 250mg BID X 4-5 days. Still haven't been able to work up to full pulses due to porphyria. But I do a pulse every 3-4 weeks. I feel my balance, cognition and numbness in my legs is a little better although I have been having a lot of calf and foot cramps and weakness in walking with this pulse.Only 4-5 more years to go. I am grateful to all the doctors who figured this out and all the people who came before me.


Hello toliveagain, I almost didn't notice your post, hidden away half way down the recent content column. I guess you typed it over a previous post of yours. Anyway, congratulations on your anniversary. You now seem to be doing very well and I shouldn't worry about the size of the pulse since you are doing it regularly.

You have had a lot to put up with over this past year, with moving half way around the globe so I hope that the next four years pass well.


Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.