pjdelambo
Submitted by pjdelambo on Sun, 2018-04-01 23:40

In my last entry, I had made it down to 7 mg of prednisone. Today I am down to 3 mg. I also started my first pulse of metronidazole. So far so good! I seem to be a bit tired but am uncertain if the metro is causing it. Any feedback is appreciated!Thank you!Trish

JaneK

2 Apr 2018 06:17 am

Hi Trish,

My experience is, also, of fatigue! I started pulse 10 today and the fatigue is still here, but, on past experience, the weeks between pulses show improvement, or, sometimes, show issues I hadn’t been aware of, which is a good thing, turning my MS into a collection of symptoms, each of which becomes more manageable! 

There are no over night cures, but taking your first pulse is the most important step you’ve taken, and so it will continue!

well done and congratulations!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

pjdelambo

2 Apr 2018 07:12 am

Thank you for your feedback Jane! I will try upping my B12 again and see if that helps. The last couple weeks I’ve been busy and haven’t been taking it like directed. 

Trish

2003 Asthma diagnosis - 2004 took doxycycline per Dr. David Hahn work - asthma free. 2014 developed upper body myalgia/arthritis and asthma returned. Dec 2015 c pneumonia bloodwork IGG titer 1:512. Took 6 months of doxy for asthma flare up - again asthma gone but myalgia stayed. Dec 2017, extreme fatigue started. Emailed Dr. Wheldon. Research on cpnhelp.org - Jan 2, 2018 started Wheldon protocol.

JaneK

5 Apr 2018 01:00 pm

Hi Trish,

it’s so easy to let B12 and folate slip, but they are so important it’s astonishing!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

pjdelambo

5 Apr 2018 05:07 pm

Hi Jane!

folate?  How much for folate should I be taking? I didn’t see that on the supplements but I might’ve missed it! 

Thank you!

Trish

2003 Asthma diagnosis - 2004 took doxycycline per Dr. David Hahn work - asthma free. 2014 developed upper body myalgia/arthritis and asthma returned. Dec 2015 c pneumonia bloodwork IGG titer 1:512. Took 6 months of doxy for asthma flare up - again asthma gone but myalgia stayed. Dec 2017, extreme fatigue started. Emailed Dr. Wheldon. Research on cpnhelp.org - Jan 2, 2018 started Wheldon protocol.

JaneK

6 Apr 2018 09:45 am

Hi Trish

some say folate is just another name for Folic Acid, others say Folate is much better than folic acid!! To be safe i’ve bought folic acid as folate! If i learn more, i’ll let you know, or, maybe, someone who knows, here, will tell us both!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro