Seeing a Neuro never has a happy ending 
and not seeing a Neuro always makes me better 
Brief summary: My first specific Neuro symptom was in 2008 (nystagmus). I had a rapid deterioration neurologically from 2011, culminating with severe disability in mid 2014. I couldn't get to see a Neuro because of long waiting times and this is how I found CPN helpsite and started the antibiotics - very successfully. The rapid downward spiral stopped immemdiately and I have been regaining health and function since. I've had to attend to Methylation and severe Heavy Metal toxicity, and have now done 63x5 day pulses of Tinidazole. EVentually when I was seen I had an MRI result which showed moderately advanced brain shinkage. I was never given a diagnosis or follow up.Following a couple of emergency hospital admissions for super high blood pressure, I tested for heavy metals. My BP is now normal after 1 year of chelation and my Herxes no longer produce hypertension. I also notice less chilling, higher body temperature and the return of sweating. I asked to be referred to the Neuros for treatment of Heavy Metal poisoning, but was ridiculed. I treated myself. However, as a result of this referral I got another MRI and a Spect scan. I got the results of these tests last week - showing frontero-temporal neurodegeneration, a variant of Alzheimer's (called FTD dementia). According to research I should be dead by now as there is no treatment.On researching more I found that coconut oil often helped people energise their brains, so I tried that. Gee, it nearly killed me with massive herx and I had to stop for a while. I'm back on it in a lower dose. Further research (the article above in pubmed) shows that it kills off Candida and other fungi - not just in the gut, but in the brain too. For those of you who are still keen on progressing with your own healing, never cease searching for more knowledge. This is making a difference to me.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4606562/"Neurodegenerative diseases constitute a heterogeneous group of disorders of the central nervous system (CNS) that are characterised by a slow and irreversible loss of neuronal functions. The aetiology of primary neurodegenerative diseases, such as Alzheimer’s disease (AD), multiple sclerosis (MS), Parkinson’s disease (PD) and amyotrophic lateral sclerosis (ALS), remains largely unknown. A common feature of many neurodegenerative diseases is the presence of aggregates of misfolded proteins (intracellular inclusions) in regions of the CNS that can serve as neuropathological hallmarks for disease diagnosis1,2. Depending on the particular disease, these insoluble fibrillar aggregates can vary in distribution and composition3"
26 Feb 2017 10:25 am
From what I understand these
From what I understand these deadly neurological diseases (MS, MND, Alzheimer's) have some infections in common (CPn, mycoplasma, candida and other fungi) - and these will exploit the most genetically vulnerable system in the individual. Thereafter, they are classified according to symptoms and investigations - and that's how you are given a diagnosis. It doesn't mean that you are dealing with a different disease, just a different manifestation of an infection or collection of infections. There is research which shows fungi present in MS brains https://www.ncbi.nlm.nih.gov/pubmed/21533622 From what I can find out about coconut oil it is able to kill anything with a lipid membrane; this includes viruses (Herpes, EBV, Gram positive and some Gram negative bacteria) and fungi. Its killing action is selective, sparing the good bacteria and rupturing the bad. However, there isn't anything substantial on PubMed , so we will just have to wait until my Coconut Cures book by Bruce Fife arrives!
The other thing is that, because it is so similar to human breast milk, it is fed to prem babies to prevent infections.
Irene, there is certainly
Irene, there is certainly much crossover of symptoms of these diseases, even if you are still working in the dark ages and thinking that they aren't caused by an infection!.............Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
I think ultimately Sarah
I think ultimately Sarah there will be a new taxonomy of these neurodegnerative diseases based on pathogens, heavy metals and genes, but none of us want to wait that long. Irene
No Irene, if we just sat and
No Irene, if we just sat and waited for a new taxonomy, one by one we would all be dead. For instance, MS has been an autoimmune disease since the sixties, when people gave up looking for the infection which caused it..........................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
This is fascinating Irene,
This is fascinating Irene, could I ask where you obtain your oil and what dose you take.
TandT
Optic Neuritis in teens. Diagnosed spms in 2001.
Started suppliments in Feb 2014 in readiness for ABX.
Started Doxy 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.
Started Tini 16-07-14
I use Lucy Bee's Extra Virgin
I use Lucy Bee's Extra Virgin cold pressed coconut oil, available in the supermarket or from Amazon. Not only does it kill pathogenic viruses and bacteria, it also improves the elimation of free radicals which damage neuronal tissue, a bit part of degenerative disease.
http://link.springer.com/article/10.1007/s13197-015-2040-8
I just stir a teaspoon into my hot drink. Start off with just one spoonful! gradually work your way up to using it 4 times a day, and then you can graduate on to tablespoons. I find it wonderful for the Herx, which basically are my cells running out of ATP and making me cold. It gives a wonderful warm flush throughout the body.
Irene
Many thanks Irene, I can put
Many thanks Irene, I can put that on my Asda order and it will be here tomorrow.
I'll let you know how it goes.
TandT
Optic Neuritis in teens. Diagnosed spms in 2001.
Started suppliments in Feb 2014 in readiness for ABX.
Started Doxy 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.
Started Tini 16-07-14
Irene, how come coconut oil
Irene, how come coconut oil can be that selective? I am not being critical here, but I just want to know....................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
Selectivity
Maybe it just very very clever Sarah! Or perhaps it mimics natural breast milk so well. I presume these ancient oils are part of our simbiotic relationship with nature. I know my brain likes it a lot :D
The other thing is that it kills EBV - something that many MS paitnets have.
Irene
Haha, I guess it must be the
Haha, I guess it must be the latter! I'm afraid that I can't stand the taste of it though...............Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
I have it in gel caps,
I have it in gel caps, Sarah. Rarely even notice the taste, thanks to that.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Coconut oil tastes good to
Coconut oil tastes good to me. I suppose drinking it straight could be pretty disgusting, but I've always used it for cooking. In any case, I think any benefit from it would be for metabolic reasons, and for that one has to eat food-like quantities of it; the amount in a capsule won't do.
I love coconut oil. It's
I love coconut oil. It's especially good if you add caocao powder to it, to make coconut oil chocolate.
Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)
That sounds like pure
That sounds like pure delight! Irene
It is surprisingly pleasant
It is surprisingly pleasant Norman. It is for metabolic reasons, but also for killing pathogens, detoxing and redressing oxidative stress. You need it to be a substantial part of your died to gain all the benefits. I'm gradually reducing carbs as I slowly head towards ketosis. Irene
I don't buy the killing
I don't buy the killing pathogens part. From what I've seen, when they manage to kill pathogens with this sort of stuff, they use a high concentration of it, and it's always either as the free fatty acid or the monoglyceride. In the human body, though, fats mostly exist as triglycerides, though they're frequently broken down and then reassembled. The triglycerides don't have the same killing effect. Coconut oil as eaten is a triglyceride, and even if you were to transform it into monoglycerides before eating it, the body would transform it back into triglycerides in the process of absorbing it. This is largely for our own safety; monoglycerides do tend to disrupt cell membranes, and we have cell membranes ourselves. In the paper you linked to above, they found that monocaprin was their best killing agent against chlamydia; a concentration of 30 micrograms/ml of it killed half of the chlamydia and a concentration of 100 micrograms/ml killed all of the host cells that they were growing the chlamydia on. It's a pretty safe bet that if you just eat coconut oil the body will keep the concentrations of monocaprin well below either of those figures.
As for redressing oxidative stress, since coconut oil is quite high in saturated fats, it is indeed more oxidatively stable than most other fats, especially polyunsaturated fats. So at least that contribution to oxidative stress will be minimized.
26 Feb 2017 12:15 pm
Fascinating stuff!
Fascinating stuff!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Such a lot of cross-over
Such a lot of cross-over between MS and the Dementias Mack.
28 Feb 2017 02:08 pm
https://www.ncbi.nlm.nih.gov/
https://www.ncbi.nlm.nih.gov/pubmed/9736551
How Coconut kills EBs in Chlamydia
This is incredibly interesting
This is incredibly interesting Irene: yet one more disease to add to the list! Of course, frontotemporal neuropathy will still be classed as incurable, like multiple sclerosis, but hopefully sooner or later neurologists will wake up......................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.