Cpnhelp.org

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Not a suggestion to add some, but I think it'd be worth deleting:

Don't delete anything! The glossary should only pull from the glossary terms, not from the other taxonomy terms. I'll have to check the settings on the module. 

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tini 1000mg/day pulses; Vit D2000 units, T4 & T3

 Don't delete them! I'll have to take a look and see if they are needed. The "i's" should only reference the specifically defined "glossary" terms, not the other taxonomy terms. I'll have to take a look at the module to see what the settings are.

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tini 1000mg/day pulses; Vit D2000 units, T4 & T3

I found the i's quite helpful when I first began as I didn't understand the medical lingo abbreviations. 

Thanks for your hard work peeps

CFIDS/ME 32 yrs, FMS, IBS, EBV, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

Possibly because of the multiple glossaries, we sometimes get more than one little 'i', that may be something we can sort.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

I made a list as I read along with the intention to google what I couldn't figure out. Some seem obvious now but weren't at the beginning. I know you don't want to add tons, so this is just to show what tripped me up when I'd come across them.

coryza
Azith
roxi
moppers
arthralgia
porphyria
EDSS
glucose
RRMS
Iodoral
Bactrim
FIR Sauna
Cholestyramine
half life
immunomodulator
HHV6/Epstein Barr
bromine
Valtrex
Methylation
porphyrins
Valcyte
T3 T4
TSH
SSKIS
SP
4ap
Troll Queen 

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Corinna. GFA. NACx2400mg, D3x5000mg, B12x1000mcg.

Troll Queen! Too funny!

On Combined Antibiotic Protocol for Cpn in Rosacea 01/06 - 07/07, On Vit D3 + NAC since 07/07 and daily FIR Sauna since 08/07

The mental imagery alone...

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Corinna. GFA. NACx2400mg, D3x5000mg, B12x1000mcg.

Abbreviations and acronyms definitely belong on the list. Some of that stuff, though, needs an essay, not just a sentence, to define it. It wouldn't do any good to just define methylation as "the addition of a methyl group to a molecule", even if you did go on to explain that methyl is CH3.

I don't know what "moppers" are, myself.

From a web Developer point of view, abbreviations and acronyms should be the things that have the little i after them with a short full length name that appears on hovering your mouse over them. HTML code provides for these with the tags abbr and acronym.

To be correctly assigned:

Abbreviations are shortenings of words into their letters which are then spelled out, such as HTML.

Acronyms are a specialized abbreviation where the initial letters are spoken as a word rather than spelled out. An example of an acronym would be RADAR.

In the case of this site, most of ours are shortenings of a single word which I guess would almost all come under abbreviations (and completely break the above rules), usually drug names. I certainly found it useful to have those expanded when I started and in the case of some of the less common ones, still do. For example, abx. When you first come on here that doesn't necessarily mean much to you. Yes you know what antibiotics are but how often do you see it shortened to abx? I think if you remove those you'll get a lot more questions along the lines of "sorry but what's abx?"

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Dx Rx, Abx, and many more, are all proper medical abbreviations along with a very long list.  Some are standard some are hospital specific, designed to help old fashioned hard copy medical note writing by hand in the not so distant past .  I would imagine that there are some hard copy books of such abbreviations and acronyms.  My books are in transit and boxed currently.

Norman, moppers is another Ruthless1ism.  Actually, it is very descriptive when I think about it! Cuts down on typing out the words, activated charcoal, cholestyramine, choleystyramin, Questran, Vitamin C, Emergency-C, etc.   What have I forgotten?

Louise USA.CFS.CPn Positive.BbPositive.WheldonCAP6/24/07.NAC,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxins. 

I guess I was too brief there. I just meant that terms like "EDSS" and "abx" certainly belong in the glossary, when people here are using them, as they are for those two terms.

As for "moppers", it's a vague word, and I don't think anybody knows precisely what it means. Some of the stuff we take to relieve symptoms (e.g. activated charcoal) really does have the action of mopping up toxins, but other stuff has other mechanisms of action. Glucose's mechanism of action is not at all mop-like; vitamin C's is somewhere in between. Besides, there are two causes of distress -- porphyria and endotoxin release -- and they have different remedies.

Norman, Cholestyramine/Cholestyramin, Questran, Welchol are mop like from my proint of view .

Louise USA.CFS.CPn Positive.BbPositive.WheldonCAP6/24/07.NAC,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxins. 

LLMD

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Corinna. GFA. NACx2400mg, D3x5000mg, B12x1000mcg.

Yes, cholestyramine and Welchol have the same sort of mechanism of action as activated charcoal, and that mechanism can reasonably be described as mopping up toxins from the gut (porphyrins being the main toxins we're concerned with). But I doubt if it's worth trying to enforce that as the meaning of "moppers", because trying to enforce meanings of words is always an unpleasant and tedious task; and in any case you can use "porphyrin adsorbers" to describe that class of medications, without having to impose new definitions on anyone.

moppers :  toxin absorbers, charcoal, glucose, complex carbs, Cholestrymine, Yaeyama Chlorella.....

maybe we need a slang category, lol

CFIDS/ME 32 yrs, FMS, IBS, EBV, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#11 1000 mg 5 days 6-14-08

Norman, I would be glad to use the porphyrin/endotoxin absorbers as a descriptor of action , however many well spoken folks here have been starting to be more generic with the use of moppers, not to name names but those in the know seem to know.  It is those that are not in the know that are the folks that are using the "helps" that describe abreviations, medical terms and yes the slang that is bantered around here commonly.  Moppers It is a word that is finding it's way into common usage here at CPNhelp community.  And therefore, it is a problem for brain foggled folks that need to know what moppers are available to use to be less foggled.  Yes, I know foggled is not a proper term .   And then there is brain foggled which I believe that I have used loosely, although the meaning seems clear to me, particularly when I have been porphoria/endotoxin subdued and unclear.  Just what brain foggled  means for me seems obvious but again, as Ruthless points out, it could be considered slang at best and it is the newbies that are left wondering what is that person trying to say that might be of help to me.

Norman just to be clear here for those who read this in the future, I am enjoying our banter and your critical thinking!

Louise USA. CFS. CPn Positive. Bb Positive. Wheldon CAP 6/24/07. NAC, Doxy, Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets at bedtime with pulses & as needed for porphoria & endotoxins, used as a MOPPER. 

Exactly the point!  There is a lot of jargon and slang used here by many a good folk.

Louise USA.CFS.CPn Positive.BbPositive.WheldonCAP6/24/07.NAC,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxins. 

Treatment really needs to be more precise, though, than just "shovel on the moppers". If Ruth, for instance, would pay attention to which of these substances is more effective and which is less effective, rather than just lumping them all together as "moppers", she might be able to spare us some of the Troll Queen behavior. This site is about getting better, not about giving each other group hugs and ranting against the world while continuing to sink into disease. It's not necessary to be absolutely precise about everything -- indeed, given the nature of language, it's impossible. But even slang should respect the major distinctions. Glucose is a fuel, not a mop. It doesn't sweep up toxins; it causes them not to be produced in the first place. And it only does that for porphyrins, and only if the porphyria is caused by the body being short on glucose. This means that it's best to take it ahead of time, before you get short on glucose, rather than trying to use it as a "mopper" after the fact. It also means that it's not going to stop you from feeling feverish, since that's from endotoxins.

The only problem with "foggled" as a word is that it has an extra "l" in it: "fogged" is a perfectly fine word, and in this context ("brain fogged") means about what everyone would expect it to mean.