27 Apr 2018



I added the azithromycin. Last night I felt very edgy. Today I am experiencing numbness and tingly in arms, hands and feet. They keep going to sleep. I wish  my brain would sleep I have had problems staying asleep for 3 nights. Not fun when you are trying to keep up with 3 teenagers on spring recess and a husband away on business. I hope this lets up soon. On a brighter note I have had 2 very good days this month  and a lot of fully functional okay days . They are easy to forget when you are going through a bad patch. I will keep the faith and push forward.


Its easy to forget the good days when you are feeling totally grotty, but the very fact that some days you can feel like that shows that sooner or later, you will have all good days with just the occasional off day, the same as everyone.....SarahImage removed.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

So happy for you, Lee. that all this worked out.  I dreamed about you when you were trying so hard to get this going and it seemed nothing would work.  I have to admit that you are not even the only one I have dreamt of on this site.   We all have dramatic stories to tell and none are  without courage and tenacity.

I had hoped to get home in time for your invitation to chat but didn't make it. 


Ignorance is voluntary bad luck.  Lauritz S.   A true Viking

If you come to a fork in the road, take it. Yogi Berra

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am