Improvement, sneaks up quietly!

Submitted by JaneK on Fri, 2018-05-25 08:06

I’ve been a member for a year and two months. I blogged recently that i’d felt great, a week earler, before a set back. I watered our garden, yesterday. It isn’t big, but it’s on three sides of our house, and the hose-reel isn’t convenient, and needs to be hauled around the house. I watered the garden, the vegetable patches, the borders, the greenhouse and the pots, grumbling, to myself, that I was so tired and weak, when I remembered that i couldn’t, and didn’t, do any gardening at all, for three or four years! I have so many vegetables growing this year i could open a shop!


Submitted by JaneK on Thu, 2018-04-26 04:47

Herxing quite badly, but, such good news, really!Thank goodness for this site, otherwise I wouldn’t know that I feel terrible because I take large doses of vitamin D, or that my response to NAC is, probably, die- ofF. I felt wonderful last week, and, now, realise that I could reduce my supplements, increase moppers, and accept this deal means the CAP may take longer, but I can choose! What I  can‘t and won’t do, is cut back, or pause, the ABX. I guess this is what feeling toxic is!oh, and good luck with the upgrade, Mac!Jane

Menopause or perimenopause and hrt.

Submitted by JaneK on Thu, 2018-04-19 07:23

i know lots of people have been here, so they’re in a perfect position to advise Me ...  please?i read, somewhere, that hrt stops adequate absorption of B vitamins or one of the abx, doxi, roxi or metro. I had chemo (for MS, several years ago, which put me into premature menopause, although the menses began again after several years, but I’m 50 now, and it’s happening for real! would anyone advise?  i gave up hrt, but am getting severe fatigue and nausea, so would like to start again. I am extremely gluten intolerant so , probably, have absorption issues and pernicious anaemia.Jane

Pulse #50

Submitted by TandT on Wed, 2018-04-11 05:28

Hi everyone, Terri completed her 50th pulse yesterday, which was her third 10 day pulse with 10 day intervals. We built up to this with three 7 day pulses and a nine day pulse at normal intervals after reactions were virtually un-detectable by pulse #43.We have tried to increase the Tini on two previous occasions and quickly had to back-track due to lack of recovery time between pulses causing increased weakness, so we find it extremely encouraging that this attempt sees no build-up of die-off or weakness.

Pulse # 51

Submitted by supaguy on Tue, 2018-04-10 21:22

Late as per usual, I started pulse number 51 yesterday lunchtime. I have a strong lead but am conscious of JaneK coming up fast on the inside.For any spectators wondering how come I'm late yet again, I always have an excuse, and this time itsi a good one. JaneK has commented that it's been a while since I last posted ... so I'll do a separate post featuring my excuse.SmileG.

"Here she goes again!"

Submitted by Sarah on Sun, 2018-04-08 12:19

"Here she goes again!"  You must be saying, but please could some people occasionally pop into Thisisms.  I am about to post there that they can find the correct address for this site at the bottom of one of my webpages, but if they come here and likewhat they see, they will have a lotof trouble to try to join.  Thank-you all!.....................Sarah

Double figures

Submitted by JaneK on Thu, 2018-04-05 13:20

At last, i’ve reached double figures, but, pulse 10 is even more difficult than 1-9, which, maybe naively, i’m taking as a good sign. In my ignorance, reacting means the cpn is being wheedled out of more of its hiding places! Even so, i look forward to tomorrow night, and my last Metro tab, this month!Jane

Pulse number 1

Submitted by pjdelambo on Sun, 2018-04-01 23:40

In my last entry, I had made it down to 7 mg of prednisone. Today I am down to 3 mg. I also started my first pulse of metronidazole. So far so good! I seem to be a bit tired but am uncertain if the metro is causing it. Any feedback is appreciated!Thank you!Trish