how high is a hígh bacterial load?

Submitted by elisa on Sat, 2005-11-26 07:58
hello everybody,


i am new to this forum and already very thankful it exists. i was diagnosed with Cpn on thursday, but i have had the suspicion for some weeks. Symptoms so far: gallbladder inflammation
sore neck and shoulder


my blood tests says:
(chlam. trach.: negative)


chlam pneum:
IgA-EIA: neg.
IgG-EIA: 70
IgM-EIA: 1,3


is that a high load?


does anybody have experience with gallbladder inflammation?


 Could it be a consequence of oral sex? swallowing infected body-fluid?


my doc has started 3 weeks ago with giving me clont and ciprobay.just against the inflammation. it seemes to have helped some. now as we have the diagnose, I am (only)on doxy 200/d. we have studied the recommended regimens yesterday.


Kitkat2's Protocol update

Submitted by kitkat2 on Fri, 2005-11-25 12:56

I have been taking Doxy/Azith for nearly five weeks.  I ran out of Azith. 2 days ago, and so, while waiting for more to be shipped, I am taking Doxy/Rifampicin instead.  I feel incredibly blah..tired achy, headachy, sneezing, congested, eyes burning--I feel as though I am battling a virus.  Sleeping quite poorly as well, with increased spasticity and agitation. Yest, after serving Thanksgiving dinner to my family[they all helped me], I just sat down and stared out the window for a long time.  Too tired/ achy to even want to think about doing anything.  Sort of a depressed feeling--and nearly no appetite--which is probably good because I have about 30# of accumulated "ms weight" to drop.  LOL!  I also took a bit of a tumble,[left leg drag], but fortunately stopped my fall by grazing the doorframe with my right shoulder, which is sore today--just a little bruise. 

Our life

Submitted by whyRwehere on Thu, 2005-11-24 08:49

Well, today is Thanksgiving and although I am far from home, I am happy that my mother has come to spend the holiday with us.  I don't think she actually came for Thanksgiving, but because our family has hit it's darkest hour...unless some other awful things are about to happen.  At the end of next week, my husband will no longer be employed, due to his MS.  Unfortunately, he had taken on a new job, and he has not passed his probationary period, which means we are left pretty much destitute.  Thank God for family, otherwise I really would be despairing, and we would not be able to afford any supplements or abx. Supplements are here, and the abx are arriving any day.  Too bad we didn't start them last year, but who knows, maybe a change of profession will be a good thing.  I'll update here, how the abx go and how they affect our future as well.

Jim's Blog 11/24/05: My Deep Thanks To You All

Submitted by Jim K on Wed, 2005-11-23 18:54

This being the eve of Thanksgiving Day here in the States, I can't help but look at all your responses, comments, help, and love as I peruse I want you all to know how deeply thankful I am for this growing community of souls who share their struggle, resources, intelligence and triumphs regarding this illness. I want to thank you all also for how well new people are welcomed, responded to, dialogued with and helped. I once felt responsible to somehow make sure everyone's questions were taken care of. Now I read postings by new people, and they are already answered far better than I could! I just love this about who we are. I appreciate all of you joining on this list, and some I have even grown to know and love, though I've never met you.Thank you, Thank you,Jim 

Wobbling Through Purgatory

Submitted by raven on Sat, 2005-11-19 16:31

Wobbling through PurgatoryThree long years of suffering and it is time to look back. I had always treated my body as if it was immortal. A foolish attitude but probably born of a harsh childhood and my will to survive. So the sudden embrace of disease and disability was quite a shock to me.It was late spring 2002 and I had just returned from hiking in the desert canyons. Despite the heat, I enjoyed clambering through the palms and almost dried up streams while taking photos. I returned home to an intense work schedule.I had been working many hours and not eating properly. I was entering menopause and had problems with night sweats and insomnia. Although I was constantly sleep deprived, I was terrified of taking hormone replacement because of all the bad press. Instead, I turned to soy supplements that seemed to help a little.I had constant problems with sinus infections and every spring would come down with bronchitis that would take months to resolve.

Sarah's Illustrated Blog......................

Submitted by Sarah on Fri, 2005-11-18 12:39
Nov. 17th 2005  -  A New Life for 2006
To start my blog, I thought I would add three pictures, so that people can see I am a real person and not just a figment of someone's imagination.  The first two little black and white ones are the only ones that remain of a horrible period of my life, dating from 1999 until late 2003.  I destroyed all the others.  By the second one, taken a few months before my diagnosis, I was looking particularly ill.  This was when my memory was starting to go but I was convinced I was getting better.  The colour one, me and two recently finished watercolours  was taken today.


My story... read only if you have time

Submitted by cera2123 on Thu, 2005-11-17 21:40

My story all began miles up in the air.  I was on my way to Aviano, Italy to visit a friend in the military.  It was Thanksgiving and he had leave due to the holidays so I bought a plane ticket to go out and visit him.  We went all over Italy first Rome, then Florence and everywhere in between.  Italy was great and I was in awe most of the time I was over there.  Florence had the best food I have ever tasted in my life.  My friend and his girlfriend at the time weren’t exactly the greatest hosts in the world, but I had a good time nevertheless.  I came back from Italy and many different horrible things started to happen.    To be fair I should begin to tell that I grew up with a ton of different ailments.  With the doctor’s boiling it down to a, “I don’t know.”  I had scarlet fever when I was really young, I must have had strep throat more than anyone on this planet.  I had strep throat so much that I got immune to Ceclor and they could no longer administer it to me anymore.  I was born with a heart murmur and saw a pediatric cardiologist for years.  I had migraines that would land my mother and father in the emergency room many a night to await an injection of something or other to knock me out, regardless of the big blue horse pills that I was on for the migraines.  To top it all off I was an over-hyper active child.  The doctor said that all of these things would go away with adolescence and indeed most did.  I continued to get strep throat and every other sort of cold and upper respiratory infection known to man until I had my tonsils removed at age 23. 

My MS treatment Blog

Submitted by mrhodes40 on Thu, 2005-11-17 11:01

This is my blog about my experience with MS and the Wheldon/VU treatment regimen.

I am an RN. I have had adult onset asthma since 85 with periodic flares. I get pneumonia every few years and always fight a sinus lung thing all winter. I was diagnosed in '93 with MS, though it had been 2 years since my original illness which was characterized by being extremely ill with a respiratory flu/cold sores ( I HATE cold sores). When I went into bed with that illness I was normal, I came out of the bed spastic and with red sore swollen knees, visual changes and unable to bend anything below the waist. I walked like a stick person on stiff straight legs. Three months before that we had been hiking in Mt Rainier (in shorts, socks and hikers as always- Eddie Bauer fashion forward in the mountains I always say)and I had been covered with bites, as usual.

New to this whole thing....need some encouragement

Submitted by cera2123 on Mon, 2005-11-14 17:46

25 year old single mother diagnosed with CFS, FM and Hashimoto's.  My CFS and FM are not THAT bad, but noticed I might of had some form of this my whole life... not so sure.  My hormones are more off than anything.  I do have a hard time sleeping and drugs make me feel like dog do-do.  To be honest I am scared to start the antibiotics and get into the whole "feeling totally horrible" stage.  On a ton of medicine now...B12 injections, NAC, Acetyl L-Carnitine, Juice Plus, Nystatsin, Nitrogylcerine, Armour Thyroid, Progesterone, Estradiol, Testosterone and Flax Seed Oil.  To be honest my doctor is really optimistic about my recovery and has showed me with the switch to INH has made his patients recovery period move from 9-12 months to 3-6 months, but overall a year of more (I guess you can say) complete healing regardless of how long they have had the disease.  What is the NAC doing for me right now does anybody know?

Addendum to MS is not for Wimps Ch 2

Submitted by katman on Mon, 2005-11-14 15:20

These are symptoms that are ongoing and in view of the bigger picture did not even come to mind earlier today but I see that they are fairly common. I have had ringing in the ear several to many times, the last three fimgers beginning with the middle one, are somewhat to almost totally numb, I have had iritis for 18 years with two lens replacements (both eyes)for steroid-induced cataracts- not systemic steroids. Iritis was not part of the MS picture but I now have a count of 9 prisms (everything is double). That probably was caused by MS and half my hair fell out after onset of MS 10 years ago. Sounds worse than it is but easily dismissed when I think of where I was headed shortly and the fact that now I can walk, turn around, get up from a chair (or even the floor), climb a fence and go a