Keeping a Lid on Cpn

Submitted by raven on Sat, 2016-07-09 16:36

Hello again,just checking in this month. I have been really busy extracting myself from my teaching job. I retired and I'm finally free. Now I will have the time to take better care of my health. Had some Cpn testing done earlier in the year and levels have been rising. I did a few rounds of Ivermectin and it cut the testing amount in half but Ivermectin only goes after the elementary body form of Cpn.

Pulse #32

Submitted by supaguy on Sat, 2016-06-25 18:58

This is more than just a little bit early but, hey-ho, I completely missed pulses at the start of the year (due to lack of drugs).  I started my previous pulse on the 5th of June and I popped my first tini tab of this new pulse earlier this evening.  I haven’t been feeling great anyway – very tired, weak legs and slower than ever – but as I don’t tend to suffer greatly when on a pulse, why the hell not?

physiotherapy

Submitted by HealthyGirl on Thu, 2016-06-23 10:33

Hi there,Before I started CAP I was going to physiotherapy 3 times a week and got by pretty well with my cane....Once I started NAC I became too weak to go to physio and now use a walker for short distances and a wheel chair for everything else.  I have now found a physiotherapist who makes home visits and she is coming today to do an assessment.I live in denial about how I am deteriorating and I am sure she will make me face this. so I am not looking forward to her visit.  On the other hand, maybe just maybe, she can help strengthen some muscles or bring back some flexibility to the spastic ones...Wish me luck!

I'm almost cooked

Submitted by Moggie on Mon, 2016-06-20 06:09

Jeez, how time flies. I ramped up pulses to every other week and have now done at least 24 and will start another this weekend.I r        eally think that I have just about done it. I remember being told that I would finish with what I started with and i am breaking out in patches of psoriasis and that is what I first had. M    y MS - balance is still off and my eyes are still damaged. Rheumatoid - my joints are much better, my knees are still deformed but they are working. I have started to lift weights and I have been able to do the gardening this year. I am walking without my stick most days too. I have more energy, I can focus much better and I feel well mentally.

2nd pulse

Submitted by Cfc40 on Wed, 2016-06-15 06:49

hi I'm currently on my 2nd pulse am able to do the full 5 days with no side effects could anyone tell me if this is normal taking doxy daily azithomycin  3 days a week  then the full 5 days of metronizole was very sick the first few months but now everything has calmed down is this supposed to happen

Mark's update after 24 months on the CAP

Submitted by mlandstra on Sat, 2016-06-11 22:41

Guys I thought I would post this –it might help some out there. I live in Australia. I have had CFS for around 20 years & have always been able to hold down a job (at times coming home early for a nap). I have still been able to get out & exercise (I love cycling & skiing!). I live in Australia. Often it takes me a while to recharge after these activities. You could say that I was running at about 70% of where a healthy person would be. My main symptoms are fatigue & brain fog. After visiting 18 different Dr’s finally one diagnosed me with CPN & I ended up seeing a Dr who is happy to treat this in Australia. He started me on the tinidazole, roxythromycin & minocycline. After not herxing on any of these he switched me to a longer pulse using the metronidazole.

Crushing Bore

Submitted by hdwhit on Wed, 2016-06-08 21:36

I just noticed that it had been a while since I was last here and posted anything so I figured I needed to just say, "Hi".In the winter of 2014/2015, I had several instances where I lost control of my legs (the most severe MS symptom I had when it started).  This winter, I had no problems whatsoever.I assume everything is going along okay since I still get up every morning and go to work and my performance hasn't suffered. 

48 nearly over - still living in hope1

Submitted by froggy 1965 on Wed, 2016-06-08 14:57

Nothing major to rport this time, however things in genaral have improved.  Still not walking but bladder control is still ok.  Cam now get up off the foor, am sure that this protocol is working - just v slow which I know now is connected to chamo I had bacl in 2003.  Have seen several posts recently connecting alheminers with cpn, am sure this connection exists,  My granmother suffered from it  now faher is loaing his imind and I have MS.  Anyway continue living in hope,  best regards to all. love Suzanne