Taking a break

Submitted by HealthyGirl on Thu, 2016-09-15 17:24

Hi there,After suffering from gastro distress for many months, which has severely impacted my quality of life, I and my doctor have agreed that it is time for me to take a break from antibiotics.  We will decide if I return to the protocol when my gut heals.  In the meatime I will keep taking NAC and I am doing my best to adopt Terry Wahls' ketogenic diet.I will still be cheering for everyone on the protocol!  May you have more success and less discomfort than I experienced.Best wishes to everyone!

cap and h. pylori

Submitted by Alfy87 on Sat, 2016-09-10 18:54

After a year on CAP using flagyl / biaxin/ doxy I started having seriouse throat issues..Went 9 months like this. I thought the antibiotics had created chronic gastritis. My throat, heart , chest.. All were burning.I never checked H. Pylori as being the cause. After all I was using same antibiotics used for this parasite. Life was hell.Asthma was gone but acid was killing me.Had an endoscope. I had amazingly h pylori infection.I have been reading that H. pylori can be resistent to flagyl and biaxon.2 days into amoxycillon and tetracyclin and I am getting ok and much better.Carefull people. Longterm cap probably kills good flora and allows resistent strains of h pylori to thrive.keep an open eye to this possibility.


Submitted by rcquilter on Fri, 2016-09-09 16:26

Hello everybody,It's been 6 months since I posted. I have chronic active CPN. Does anyone know of an alternative to Abx? I am suffering. Every 7 years I get a flare up that leaves me with a new symptom.Thanks,Enjoy your day.

20th tini pulse 16th full 5 day

Submitted by liltiger on Mon, 2016-09-05 21:57

Well just started this morning...Slightly sore ankles again before starting this pulse... and sore thigh muscles just a bit this last month or so... but in general the leg pains are much less...Also, when I rmember to take it, the pyruvate does change the quality of pain and generally leave me less "off" feeling but I do get sweats after taking antibiotics...Still unsure if I should think about doing antibiotics as 2 weeks on 2 weeks off - I def feel MUCH better off the antibiotics now. When I started the antibiotics made me feel off but did give me some relief from the grinding pain... My head space is improved - although I quickly go off if I have to keep going at all. At least I can get some brain function patches if I rest up.


Submitted by Soooo lucky on Thu, 2016-09-01 22:51

Hi,I have been meaning to post this question for a long time.....say a year and a half! What is trprophan? I can't find any information on it. Is this a typo? Is it meant to say trptophan? It is mentioned in the section about porphyria and diet:http://www.cpnhelp.org/secondary_porphyria_what_"3. Avoid Red Meats Red meats, including beef and dark turkey as well as tuna and salmon contain tryprophan and should be avoided as much as possible."

Anyone Use Rifabutin or Rifampicin on Sjogrens?

Submitted by redlizzy on Wed, 2016-08-24 23:40

Been using Minocycline for 3 years on Roadback.   Have tried combos with Amox, Clarithromycin, Roxithromycin, Flagyl, Tinidazole.   So far holding only.   Read some info that Sjogrens is caused by H Pylori, tough to beat.   There is a new drug coming, in Phase 3, uses Amox, Rifabutin and Prilosec, high doses, with 90% cure r ate.   Has anyone used this or used a combo with Rifabutin or Rifamycin with any success?  Thanks all.Liz

50 done,srill not beter

Submitted by froggy 1965 on Sat, 2016-08-13 14:57

So done 50 now using rampherin..not noticed much differemde but will continue for the moment.  So hoping ro be better= this has become a long and difficult journey . The abitics definateliy helped which motivates me to continue with this nitemare.  I'm sure my father has cpn, wihich he goet from his mothers I've got ms and just wish the medical connunity  would take a bit ot notice of this.  Anyway too tirrd to wright more - Beat tp all, love Suzanne

Mitochondrial dysfunction, MS, CFS, ALS, Chronic infection and CPn infection

Submitted by Irene4k on Mon, 2016-08-08 05:27

Here is a very interesting piece of research about Mitochondrial dysfunction and chronic infection, tying together many disparate chronic diseases.  Also ways, apart from antibiotics, that you can improve your mitochondrial dysfunction."Many chronic diseases and illnesses are associated with one or more chronicinfections, dysfunction of mitochondria and reduced production of ATP.