Cpnhelp.org

Uchiki Kuri for Christmas, so have a good time, everyone!

I don't now whether to laugh or cry, but feel more inclined to laugh: yesterday we received an appointment to attend a needs assessment with our local CPN, or community psychiatric nurse as I have just discovered!

Really glad to hear your eyes are healed.   

Have you ever had any retinal tears (before starting the protocol).

Thanks for kind words about Borzou .... he was a lovely dog (half Shiz-tzu and half poodle)... loved by family and friends.  Jon and I keep seeing him out of the corner of our eyes... hearing him.  Strange.

Jan

thanks Neena!

As I am close to finishing one year of the CAP, I think small positive progressions happen more frequently than any large, momentous gains.  I get impatient to see the large gains.... this whole marathon really challenges me to be steady and tenacious.  

I take some Activated Charcoal when I experience the nausea you describe Sonal is experiencing.  It seems to work quite well.  

Cheers,

Jan

Yesterday I finished my 10th Pulse (Friday, November 15th).  Again, this was a regular 5-day pulse of Tinidazole (500 mg/2x a day).  

The other day I had my initial appointment with my new neurologist. 

I had prepared a detailed history of my MS.  I also wanted to make sure she knew that I had done the "Wheldon Protocol" (and give her the opportunity to say, "Don't come back").  Her response - after glancing at it for just a few seconds - was, "I don't know what to make of this." 

Really?

I just finished my 8th Pulse a few days ago (Monday, Sept. 23rd).  I did this pulse early because I am traveling at the end of the week, and just wanted to have it done and the psychological effects of the Tinidazole out of my system.

Overall, it was a fairly easy pulse:  some mild fatigue, but not enough to send me to bed (like the crashing fatigue I’ve had in past pulses).   I do feel blue when I am taking Tinidazole…. Sometimes it’s a deep dive---feeling really down, but this pulse it was just one day of feeling kind of low.  

Hello, I am new here and also quite desperate. My husband ( 30 y.)  suffers from sinus pain ( constant pressure) for almost 2 years. He has facial pain 24|7, analgetics do not help from the pain at all.  He is cpn possitive in Igg, ebv positive, candida too. At the moment- 7 months on Abx protocol - minocyklin, azytromycin, benemicin, plaquenil + entizol pulses after 3 weeks. Unfortunatelly until today no bigger sign of improvement. If anyone here ever had  similar problems,  please contact me, I just need some hope, that things can change and life can be normal and great as it once was.

I finished my 7th Pulse of the Cpn Protocol yesterday (Friday, August 30th). This pulse was five (5) days of Tinidazole which worked well with everything else going on in my life. 

Psychologically, I only had one day this week where I felt my emotions might be affected by the Tinidazole… I was a bit weepy at the end of that day (but it could have also been a tiff I had with my daughter). I just don’t know. 

I have not been very visible for the last few weeks.  This is because my Mother died from a massive and sudden stroke two weeks ago tomorrow: she was just short of ninety, but here she is at four, with her own Mother.