Hello, I am new here, suffer from CF and need advice for CAP

Submitted by Canadaontariouser on Sun, 2017-08-13 15:23

Hello everybody,After much exploring and reading this very informative site, and after much thinking and hesitation, I have decided to finally make my debut on here.I have been suffering from Chronic Fatigue syndrome since being a teenager in the late 1980’s, but have only been diagnosed in 2011.

Pulse #41

Submitted by TandT on Sun, 2017-08-13 06:50

Hi folks, pleased to say that Terri completed her 41st pulse yesterday, improvements are still coming slowly but more importantly they are staying with us.The pulses are much easier now but it is still apparent that the Tinni is still doing its job. Tiredness and extra inflamation during or after pulsing is now down to just a few days and is so much easier to cope with.

We shouldn't blame the ABX!

Submitted by JaneK on Thu, 2017-08-03 13:09

So strange to say that feeling dreadful, nauseous, weak and tired, as I do today, reminds me that I'm only four months into CAP, but haven't felt this way since I began, whereas I often felt this way previously!  I have drunk alcohol, although not much, and have been to several functions, involving a bit of travelling. Maybe I'm being'Pollyanna-ish, but isn't that better than the alternative?

Pulse # 43

Submitted by supaguy on Mon, 2017-07-31 13:32

A couple of hours ago I popped my first tini tab of this, pulse 43.  When this strip of tinidazole is finished, that will be my last tini pulse; I have no more.  I have a box of 21 metronidazole that I brought back from Spain latest autumn. If I do decide to pulse after that, I'll pick up some more metro when I'm in Madeira.I am currently still taking rifampacin. That supply is due to run out in October too. It'd certainly be great if I could look back then and say that I am now fit.  Being realistic is no fun at all.Froggy:

First pulse

Submitted by JaneK on Fri, 2017-07-28 08:22

Two tabs more and my first pulse is done! I've been lucky,  although I may not be, in future! I've been, a little, nauseous, I've been tired, but not horribly fatigued, as before, my remaining sight has been dreadful and my, already dodgy, leg turned to lead! And I've laughed at It all! I have also felt invincible! Doing something positive is so much more empowering than just allowing MS to do its worst! CPN is cruel, self-worth is powerful And good!

I took 2400 mg of NAC for 3 weeks, before I got a monster cold....could that be "NAC flu"?

Submitted by mamatriagain on Sat, 2017-07-22 16:49

Hi.  I took 2400mg of NAC for 3.5 weeks without any symptoms, flu like or other.  Then WHAM.  I got the mac daddy of colds (and in the summer).  Major runny nose, sneezy, congestion....but no fever of any kind.  The last time I had a cold was 6 years ago.  Could this have been a delayed NAC flu reaction?  I ask, because it seems like most people noticed symptoms almost immediately after taking NAC.  It took me several weeks, and it's possible it was just a legimate (and long overdue) cold.

Metronidazole

Submitted by liltiger on Tue, 2017-07-18 07:57

Half way through first pulse and stomach is unhappy... abdo pains, gas, urgent need for toilet,  softish stools(but still formed)...    Also headaches... and feeling punched in face with eyes trying to pop out(sinus?)lack of appetite, feeling poorly HR up...Def harder than tinidazole...