My story of cpn (???)

Submitted by wolves26 on Mon, 2017-10-09 15:29

Ok. To cut the long story short. For 2 years I have been dealing with prostatitis, urethritis and reactive arthritis after an intercourse. I have also problems with fast heart rate and body tempature which  I am always very sensitive to cold.I had symptom free time for almost 4 months. Then the thing came back again. Countless semen culture, urine culture ,some specific tests for chlamydia trachomatis pcr , mycoplasma pcr were negative. However last week a cpn test IgG came positive. Test value was 48 which was over the normal test value 22.I live in Turkey. I must say doctors are not helping me much because they are imcompetent even in the research universities. 

The Fallout

Submitted by JaneK on Fri, 2017-10-06 12:32

it’s been a fortnight since i finished pulse 3. After effects were nausea, fatigue, more fatigue, exhaustion,  more aching, basically, every reason to jump off the world. Then it, suddenly, felt so much better! Today, my drop-foot was quite severe, but, as Paul was there, to lean on, i still went for a long, long dog walk. I ache, as much as  before, but, really, that isn’t too much. Sleep has been elusive, i have drunk a little and blamrd that, but I had to drink champagne, at a funeral, two days ago, and, still, felt good  yesterday! i’ve  had night sweats but,  at 49, i think that is probably to be expected!

Pulse # 45

Submitted by supaguy on Thu, 2017-09-28 22:28

Last Monday, I was so inspired by JaneK's post, I decided to start a pulse myself. I am early this time but at least I get it in before my holiday. This is, I think, pulse # 45. I have one more day to go.

Pulse 3

Submitted by JaneK on Sat, 2017-09-23 09:54

Finished pulse number 3 yesterday, it wasn't a walk in the park, but nor was it too difficult. Yesterday I was more awake than for ages, but, slept dreadfully last night, so i'm tired today and our long dog walk, on the beach, exhausted me, i ached (strangely, n my arms,hands and and elbows) but, again,not too much. I haven't had the CPn test, and won't, for the same reason haven't asked for an updated MS dx ... suggestion!  I don't think many of us here are 'victims', just people carrying their crosses with as much grace and humour as possible. And i'm looking forward to a drink tomorrow night!Jane

Pulse # 44

Submitted by supaguy on Thu, 2017-09-07 18:24

After my marathon cold coming to an stubborn end, I have finally been able to pulse again. This morning, I got up early (for me) and took a tini tab. This is pulse 44. I had planned on using metro but the tini were close at hand. Let's see how we go with this one.

need advice please

Submitted by millyisfluffy on Fri, 2017-08-25 20:02

Hi allI am writing again in the hopes of some advice as i didnt receive much of a response.Summary:51 yr old australian woman, with chronically remitting, unexplained symptoms ie joint pain, headaches, utis, nausea etcI re developed severe thoracic joint pain with headaches late April 17Stem cells ( had a bad cold) in may. Mild asthma like symptoms phx childhood asthma2 days later, 1st episode rapid af2 days after this, respiratory symptoms. Initially thought to be asthma exac by a respiratory infection. Didnt respond to medicationSymptoms are..low grade fever, cough, shortness of breath especially on exertion, chest tightness and a feeling of suffocation.Fever responded to keflex.Tests;


Submitted by JaneK on Mon, 2017-08-21 05:34

The day before yesterday I walked home, an easy peesy walk, wearing my ruck sack, which had very little weight, but some. As I reached the end of my street the weight threw my balance off, so I couldn't help but stumble backwards into the road and fall. Thankfully our quiet road was empty so, having righted myself, I continued on my way, staying close to the wall and now I take hubby out with me. I've always been very, very strong and capable and walked fast, but can't now,so this scared me, and convinced the neighbours that I'm a boozer! I began pulse 2 today with a little trepidation but realised my vibrating ear drum has been quiet for a few weeks, so I'm feeling it willall be worth it, just take David's advice, to be careful of falls, seriously!