Cpnhelp.org

Hello   ewerebody it has been long time Since my last post. I start  cap antibiotics 06june 2004   17 years completed First 10 years outside of spinal cord was effected following 7 years, The activity moved inside the spinal cord. Especially pressure of Nervous system my eyes and ears were effected. I am  fine but i stil have pain inside the spinal cord. 

The good thing is my progressive MS didnt change. My disability Score is didnt change dince I started cap 

Best wishes to all of you. 
 

yilfer Guner 

I am new to the site and it has been about 2 years since diagnosed with Lyme, adrenal fatigue, mold toxicity. 

I just looked and saw that my last blog post was in January 2018. 

Wow!

Since then, I have retired.  My wife has retired.  We have moved from a Dallas suburb to a catfish farm in Northern Arkansas that has been derelict for more than 40 years.  We had a stray dog show up and start living with us.

I did the Wheldon Protocol for MS between roughly August 2007 to March 2009 (with maintenance pulses continuing until I ran out of antibiotics).  Since then, my MRIs have consistently shown no disease activity. 

Hi All,

I am new to the site and new to CPN and abx protocols. I see the last blog post was 2 years ago. Not sure if anyone is here.

I started abx two months ago and having a bit of a tough time. I may be going too fast. Looking for some advice.

If someone is here, (the clock at the bottom says only 1 user online - me), please reply and I will explain further. Hope I hear from someone.

Smiles,

Toliveagain

Uchiki Kuri for Christmas, so have a good time, everyone!

I don't now whether to laugh or cry, but feel more inclined to laugh: yesterday we received an appointment to attend a needs assessment with our local CPN, or community psychiatric nurse as I have just discovered!

Really glad to hear your eyes are healed.   

Have you ever had any retinal tears (before starting the protocol).

Thanks for kind words about Borzou .... he was a lovely dog (half Shiz-tzu and half poodle)... loved by family and friends.  Jon and I keep seeing him out of the corner of our eyes... hearing him.  Strange.

Jan

thanks Neena!

As I am close to finishing one year of the CAP, I think small positive progressions happen more frequently than any large, momentous gains.  I get impatient to see the large gains.... this whole marathon really challenges me to be steady and tenacious.  

I take some Activated Charcoal when I experience the nausea you describe Sonal is experiencing.  It seems to work quite well.  

Cheers,

Jan

Yesterday I finished my 10th Pulse (Friday, November 15th).  Again, this was a regular 5-day pulse of Tinidazole (500 mg/2x a day).