17th year update

Submitted by yguner on Mon, 2021-06-21 09:29

Hello   ewerebody it has been long time Since my last post. I start  cap antibiotics 06june 2004   17 years completed First 10 years outside of spinal cord was effected following 7 years, The activity moved inside the spinal cord. Especially pressure of Nervous system my eyes and ears were effected. I am  fine but i stil have pain inside the spinal cord. 

 

The good thing is my progressive MS didnt change. My disability Score is didnt change dince I started cap 

Best wishes to all of you. 
 

yilfer Guner 

How Time Flies

Submitted by hdwhit on Wed, 2020-07-22 18:37

I just looked and saw that my last blog post was in January 2018. 

Wow!

Since then, I have retired.  My wife has retired.  We have moved from a Dallas suburb to a catfish farm in Northern Arkansas that has been derelict for more than 40 years.  We had a stray dog show up and start living with us.

I did the Wheldon Protocol for MS between roughly August 2007 to March 2009 (with maintenance pulses continuing until I ran out of antibiotics).  Since then, my MRIs have consistently shown no disease activity. 

New to site

Submitted by toliveagain on Sat, 2020-06-20 06:23

Hi All,

I am new to the site and new to CPN and abx protocols. I see the last blog post was 2 years ago. Not sure if anyone is here.

I started abx two months ago and having a bit of a tough time. I may be going too fast. Looking for some advice.

If someone is here, (the clock at the bottom says only 1 user online - me), please reply and I will explain further. Hope I hear from someone.

Smiles,

Toliveagain

 

Hey Lizzie

Submitted by Jan Figtree2019 on Sat, 2019-11-23 12:46

Really glad to hear your eyes are healed.   

Have you ever had any retinal tears (before starting the protocol).

Thanks for kind words about Borzou .... he was a lovely dog (half Shiz-tzu and half poodle)... loved by family and friends.  Jon and I keep seeing him out of the corner of our eyes... hearing him.  Strange.

Jan

Yea Sonal and

Submitted by Jan Figtree2019 on Sat, 2019-11-23 12:41

thanks Neena!

As I am close to finishing one year of the CAP, I think small positive progressions happen more frequently than any large, momentous gains.  I get impatient to see the large gains.... this whole marathon really challenges me to be steady and tenacious.  

I take some Activated Charcoal when I experience the nausea you describe Sonal is experiencing.  It seems to work quite well.  

 

Cheers,

Jan