MediTest
27 Apr 2018
Author
zazul
Title

yesterday dr Burrascano's speach

Body

flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=071964  "Key Factors in End Stage Lyme--Hormonal inbalances-Diet-lifestyle-rest (or lack thereof)-toxins-nerve damage-physciatric disturbances-metabolic imbalances-mitocondrial damageSigns and Symptoms of tick borne illness(i only wrote down the things i thought I needed to remember)Lyme- afternoon elevated feverBart- CNS irritant, insomnia, jumpy, Gi upset, rapid relapse upon abx removalBabesia- night sweats, global headaches, air hunger, seve

Comments

Thanks Zazul.............hmmmmm, mycoplasma sure sounds familiar. Big neuro symptoms, worse with exercise describes my Jim to a tee. Very interesting stuff.

Lexy

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"Chance favors the prepared mind." --Louis Pasteur

Husband treating MS with CAP

Whew, that's a lot of info to digest! I'll have to read and re-read until it sinks in. My doctor is about to order the whole range of tests for me again, just to make sure there's nothing else lurking before I add rifampin then go intermittent. This post is really timely for me. Thanks, Z!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

This part is very sad to see

EXERCISE- crucial as we all know, push yourself, the more you do, the better youll get. NO exercise, not going to get well. Gym or health club regimens are best. ones designed for ill lymies are best also

In people with ME exercise is a killer and has caused deaths. Even those who survived a graded exercise program are made worse on a permanent basis.

This tends to make me think that Dr B isn't seeing PWME and if so, great harm may be being done.

Can anyone offer an explanation? It seems such a powerful remark for any doctor to say and not face a direct confrontation at a conference.

Though no one can speak for this doctor, could we not take a step back and consider that the topic was Lyme disease? Not CFS, MS, or IBS, but Lyme. And that the lecture, by definition, addressed Lyme?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Why is excercise considered being harmful? I would think it is better to try to keep the muscles and joints working as much as possible in order not to stiffen up.

 

Daniela

Cpn diagnosed. Monotherapy Feb08 - April 08. Then full Wheldon protocol. Feb.09 first steps toward intermittent. NAC, Vit D 2000IU, B complex

Well im not a doctor but i work with Physiotherapy at a rehab center.(When im not sick).

I think the main issue is what you mean with excercise and do we all mean the same.

Excercise can be very harmful when you have a infection, it can be to much for the body to cope with. Beeing sick is very stressfull for the body. And the energy you have is needed for healing. So if you do to much to soon it can make you moore sick and then it take moore time to get well.

Also the infection can be in your heart or spread to your heart.   Porphyria, also gets worse from exercice.

So I say no running, aerobics or things like that when you have any infection. and not other type of heavy workout with weights and so on. Anything thing that makes you sweat or/and dont feel good is to much.

Its really importent to listen to your body and dont do to much.

 I dont think any doc would say that you should excercise hard when you are sick with an infection. But of course they say that you should be active in your home etc with things you can do and  which dont make you feel worse. And of course you should pay attention so you your joints and muscle dont get stiff and so on. Take a walk if you can is also good if you have the energy for it.

 Its importent to be active in your daily life as well as you can when beeing sick. Its importent in order to get well, but to rest after beeing active is as much importent in order to get well.

So for now I practice this balance with excercise and resting in order to get well and to be able to help my patients again with this in the future.

So I say excercise is very good but when beeing sick it must be at the right level and dont forget to rest after beeing active!

Best Wishes from Maria

 

Cpn since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid.All classic cpn,porphyria and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NAC, high vitamin D3. CAP for over 3 years. Back to work and life

Before this thread goes any further, let's get straight on what Dr. Burrascano is actually talking about when it comes to exercise.

The good Dr. gave a speech to people who are familiar with his work and probably know the following document very well (see pages 35 and 36):

http://www.sewill.org/images/burrascano_0905.pdf

Dr. Burrascano very clearly means to get and keep patients limber and mobile, and he very clearly states "NO aerobics."

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

When Ruthless gets here, she can tell you about her torture by the Anialator.
Cpn steals energy and ATP. Exercise can run the ATP cycle all the way down to AMP. This can cause post exertion malaise. The body and mitochondria have a hard time recovering from this. Some people do OK with brief anaerobic exercise like lifting weights, and I mean brief. Lift the weight up, put it down, lie down on the sofa.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

"Lift the weight up, put it down, lie down on the sofa. " Thanks for that concise message Janice it will help a lot of new-comers to the CAP protocol where annihilation of the host is not our aim, but eradication of a parasite.

I do think that this thread has the potential for much confusion here and as others have pointed out this speech is not related to our protocol, but is aimed at Lymies only.

Just my 2 penn'orth.  <grin>

speedbird

My disability insurer last year forced me to go to a physical rehab program.  I think this was even before I had started the CAP in June, 07.  I met with Anna, the Anialator on a Monday, she worked my butt off & said how wonderful I was doing.  The next 3 days I was flat our "crashed" simply existing between the bed & the bathroom.  I went again on the Friday but this time I told her, I think this is too much for me, but she disagreed & again, "crashed".  Post exertional malaise is something us ME/CFIDS & FMS people have to be concerned about.  I have also had Lymes.

I have had some success using yoga on good days, no aerobic though as of yet.  My doctor told the insurer to back off, I am really sick!  Since then, they have been pretty quiet but doc is doing an update soon.

We need to do what our bodies allow us to handle.  I have learned this, a type A personality type, that has crashed & burned more times than I care to admit.  Easy does it!

The stress the abx & toxins put on our bodies on the CAP is also a consideration.  As well as, what types of illnesses we are treating.  We are a mixed bag of nuts!Image removed.

peace

r

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

There is also that idea that exercise helps you to fight infection -- an awful lot of common ideas don't seem to apply to us. i find it very confusing. I'm a newbie in that the fatigue aspect hit me less than 3 years ago and it's still hard for me to grasp. I had a virus for the last 3 weeks and finally got back to the gym today. I did 5 minutes of aerobics, 2 machines and some floor exercises -- about 1/2 hour. I felt truly awful afterwards and tomorrow remains to be seen. Right now, 7 hours post gym, I'm alright. But I know that if I stay virus-free, an exercise regimen helps me with stamina and walking. It's a guessing game and a balancing act.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Arttile, I am also more of the school of carrying on and doing something. I don't go to the gym but have a large house and garden to take care of , not even counting the 14 dogs. When I was very ill, beginning of this year, I was hardly able to walk more than 50 m without resting and being out of breath. Nevertheless, I did not stay in bed for a single day and I am convinced this helped with a speedy recovery. As my dear grandfather always said: Who rests - rusts .  Image removed.

Cpn diagnosed. Monotherapy Feb08 - April 08. Then full Wheldon protocol. Feb.09 first steps toward intermittent. NAC, Vit D 2000IU, B complex

The article said exercise helps by raising the body's core temperature and by increasing oxygen to the tissues. I think we can raise our temperature better with an infrared lamp. If anyone can afford it, hyperbaric oxygen is the way to go.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Just bumping this up for friends that I've told about this in the last 2 days.

Nancy 

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Just so long as they understand the post was specific to Lyme.

Image removed. Hi, Nancy's friends! Image removed.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Well, MacK, one is a friend who has Lyme and said that his doctor is giving him 4 weeks of antibiotics and then he'll be done with it. I probably scared him, but he should be scared.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Sorry but this Doctor is not aware of the most common and propably the most devastating pathogen which is CPN. Lyme is not worse then CPN in any case. Burrascano he only mention mycoplasma which in fact is behaving pretty the same to CPN. Nevertheless I really hate reading the stuff about bacteria where somebody is "pretending" to be knowledgable, but is not really aware what he is actually treating. I bet maybe even 50% of his patients suffer from CPN. Dr. B seem to know a lot so where is the chlamydia pneumoniae within his experience and reports?

I also do not like something which is called "Lyme Complexed Syndrom". They are trying to put everything to the one basket. If you are sick of bacterial abuse... well you must have Lyme then. Rediculous.

What I can say that the thing that devastated my life is strictly CPN. Not Lyme, not Mycoplasma, not any other known co-infection. Dr. Burrascano I understand that his antibiotic coctail is hiting anything, but this is not the way to rationalize that it hits Lyme or Mycoplasma because of the toxic load. I demand CPN there.

 

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months