Year in update

Just a quick update. I am half way through a 2 week break from abxi. Prior to this I took 600mg of Rifampicin daily for a little over 2 weeks and in that time a 5 day Flagyli pulse. I had no reaction to these abxi, so as I am on holiday I decided this was a good time to start intermittent. Nothing to report so far, feel fine.

One excellent piece of news. Since my dx with MSi I have been unable to save saunas as they would leave me nauseous, dizzy and unable to walk (I would need to remain still for 20-30 minutes to recover). So reluctantly I gave up having saunas, but a couple of days ago, while at a spa, I thought I would try a sauna again, to see how I faired. I was amazed as I stayed in a very hot sauna for about 20 minutes and when I left I felt great, no symptoms at all. I think this is great news as heat is a big problem for MS sufferers and I love saunas!

 

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Malcolm

Wheldon Protocol since July 07. Doxyii 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.

Malcolm, great improvement!

Malcolm, great improvement!

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Fantastic Malcolm!!! You

Fantastic Malcolm!!! You can now do saunas more often.Maybe even get your own at home. It's a great way to keep all infectionsi on the run!

Raven

CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi

Also EBVi and HHV6

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Feeling 98% well and going for 100! Still testing + for Cpni since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi. Also EBVi and HHV6 NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi and Methylation supplementsi

Your post inspires me to

Your post inspires me to keep on.

Thanks. 

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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week).  Fifteenth pulse metronidazolei + INHi completed 11/22/2008.

Great to hear your report

Great to hear your report as you go on intermittent. Keep it hot!

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Wow, scarey, Im excited for

Wow, scarey, Im excited for you though. Best of luck, we are all behind you.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Malcolm, you lucky dog, you

Malcolm, you lucky dog, you seemed to have kicked this MSi into touch.   I'm so pleased for you, not just for the saunas but also for the rest of your life.

I hope your doctor is pleased too and maybe used the protocol for other MS sufferers.   There are 4 doctors in that surgery and if they share their information it might spread the word a bit further.  

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michele, the saunas were

Michele, the saunas were great news for me because it does suggest I have kicked the brain fog/fatigue into touch. I still have my walking issues, but I think they are improved (I am surfing in Cornwall this week). It is slightly nerve wracking (no pun intended) not taking abxi and it will be informative to see if I have any reaction when I resume next week. I am keen to see what I can do to repair me myelini damage, diet seems to be a promising line of enquiry. Any thoughts?

On the subject of doctors, Dr Pallit does as I ask, but he puts my improvement down to the relapsing/remitting nature of MS. I have to be very assertive with him, if I showed any doubt I think he would be less helpful. 

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Malcolm

Wheldon Protocol since July 07. Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.

I think that the exercise

I think that the exercise you are doing will go a long way towards repairing the myelini.   Dr P might change his mind when you see him a few years down the line without progression.   Good luck with the intermittent protocol.... Keep us posted.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Congratulations, Malcolm.

Congratulations, Malcolm. Now it is the right time to add your story to the Patients Stories.

Best of luck. B.

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Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. EDSSi 0 for over 5 years.

Malcolm, you are to be

Malcolm, you are to be applauded for making fast strides - you attacked this early after diagnosis - congratulations. Please keep careful track of your intermittent protocol.

Now to business: you may or may not be aware that last week my doctor asked me (read "us" on this site) to gather extensive information about MSi people here - and get it to him to show to some infectious disease people he knows.

Two years ago I did a simple survey of the 10 or us who were here then. He was very interested then and is more so now, because I have continued to progress through some major events that SHOULD, in his opinion, have been huge setbacks, and simply weren't. So, after all this rhetoric, I ask you - will you participate? The call may come soon or late, but come it will, unless another unforeseen disaster strikes.

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

Rica, I had a moment of

Rica, I had a moment of 'hmmm, MSi persons', then realized I was one. Three years ago, it was my focus. Now, it's almost an anecdote (in only the best way, Sarah). Very cool. Good to see it's soon to be in Malcolm's past, too.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Of course Rica, if I can

Of course Rica, if I can help I will happily do so.

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Malcolm

Wheldon Protocol since July 07. Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.

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