Wrong go intermittent at this point?
Generally speaking, would it be very wrong to do the intermittent protocoll if still reacting to the antibiotics and not much generall progress? I mean from a resistance-risk point of view.
It seems my body, especially my liver, can't take more of continuous antibiotics right now.
I am feeling better during pulses (which I didn't In the beginning). I have done two antibiotics for a year+pulses, although not maximal doses all the time.
So, what do you think is best in a case like this? Stop antibiotics totally or do 14 days protocol, 14 days off and so on? (I don't really want to stop completely , because I felt worse when being totally off abxi for one week) The best person to answer this would probably be DW himself, but I know that might not be possible. Sarah ...? Someone else experienced..?
Odhilda
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Fibro, CFSi, Myco, CPNi, Stratton protocol, Zithro 500mg M/W/F/S, Doxyi 100mg 2x day, NACi 1200mg 2x day, Flagyli and INHi 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day, Still cant shake it but improving.
Lee....I don't know if I am doing good on intermittent since I haven't tried it!
I am taking NACi and have been doing that every day since I discovered this site for more than two years ago and became a member. Probably I have a lot of other issues than only cpn, but doctors here are not very interested in helping.
My question was: If a person in the situation that I describe has to choose between stopping or going intermittent, what is to prefer?
Believe me, in the beginning I was determined to stick to the protocol exactly, and I would do it if I could, but it hasn't been possible. I am not life threatening sick, ( a lot of people here are worse off than I am,) but I am sick enough. 17 years of my life has disappeared in the fog and everyday suffering of illness.
"Odhilda" CFS, not able to work or study since 1993. Mekobalamin (B12) injections 10mg x12/month. Levothyroxine(T4). NACi 500-850. Started Doxyi Sept-07. Started Roxi Nov-07 first Metroi-pulse March-08. Swedish is my first language.
Odhilda
I presume that by going intermittent, you're wanting to give yourself a break but eventually go back to the full protocol as long as you're still having reactions? My opinion is that if you are still having reactions from it, you're likely still infected. Given that the infection doesn't just disappear, unless you are taking at least NACi, it will spread and get worse if you go off of the protocol.
Consequently, between the choice of stopping or going intemittent, I vote for going intermittent but always stay constant on NAC. That way, you will minimize the chances of the infection spreading.
Then after you've had a break, get back on it the full protocol. Your objective is to get well enough to not need anything other then NAC as a prohibitive measure down the road. You're not there yet, so intermittent until you can continue full time.
best, John
RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day