MediTest
27 Apr 2018
Author
B Positive
Title

Wow, is all I can say...

Body

Wasn't sure where to put this, so I chose here. :) I have MS, found out almost 1.5 years ago, and have been waiting to start any ABCD treatments until the holidays had past. My MS could be much worse, so one neurologist recommended a "wait and see" approach and two others, Avonex. Well, late one night, while thinking about the "ok, I'll start Avonex" phone call I was going to make, I found Sarah and David's site.

Comments

Hi B Positive

Your family  history sounds sort of like mine. I'm rather new around here too. My mom has MS, my daughter and I were diagnosed with Fibro and within the last few months diagnosed with Lyme, another chronic infection. My dad had Lupus, my son is at CFS and there is something wrong with my husband but haven't been able to pinpoint anything but yeast and severe sleep apnea so far.

Having it run in families is very interesting if you are talking to the right doctors. There does seem to be a familial connection and genetics do seem to play a part. In the line of predisposed too, so when the right infection comes along and we are predisposed, well they've found a home.

My mom has noticed for years how she always gets really sick when given ABX and she usually ends up feeling better after. I understand your concern about starting ABX and how that will effect your work. My son is in a similar situation, with 2 kids and a wife. My daughter recently became a single parent with 2 kids. I think what will make it barable is to go REALLY, really slow. No need to rush. I  have found from personal experience that starting with tiny doses of the ABX and building up as you tolerate it works pretty good. The sooner you get started the better. The longer you wait the higher the bacterial load and the worse it will be when you do start herxing.

I am new to the Stratton and Wheldon protocols, but not new to ABX. I have been working with them for over 3 years, and with a combo of good diet, and supplements, I feel at about 95% most of the time WITHOUT ABX. I am working on getting the rest of my family on board whole heartedly.

Glad you found this info, and I hope it gives you a positive hope for you and your family.    

Love that phrase: ""I've just been kissed by a Dementor" type of feeling."  My 14 year old daughter, in the midst of start up on NAV and INH told me "Exactly!" You have the teen seal of approval on that perfect descriptor.

Welcome to cpn.org and the amazing community here. I agree with Mini- go slow, but get started! No time to loose with MS. Start with the NAC to bring down the EB load and protect your liver at the same time. 

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

JUST DO IT.  I know I sound like a Nike commercial, but I don't care.  Putting off the cure, for goodness' sake, just puts you further behind.  Wow.  Is a little inconvenience, all the while knowing you're curing yourself, WORTH a certain downward spiral as time goes on?  And with no guarantee the next symptom won't be the one that debilitates you?  DO NOT WAIT.  Waiting will just prolong the whole situation, not to mention allowing it to deteriorate unnecessarily.  Arggghhhh!   I want to see everyone get better, not waffle and sit on the fence and maybe get worse in the process.  Pigheadedness is the key here.  You start the process, we promise to be here for you every step of the way (good days and rotten ones).  I give you my word.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Sorry for the delayed response. I wanted to say that I had made a doctor's appointment and now I can. It's this monday, so we'll see how it goes as it isn't my regular doctor. My doctor, almost a friend of the family, is booked out for the next month and I didn't want to wait.

I am going to bring in some materials from the "CPN Treatment Handbook" to go over a few things with my doctor. Also, this is an internal medicine office, not neurology. I didn't think neurology had any business treating this, so I am not getting my neurologist involved. She would probably go along with this treatment, if I wanted it, but I do not think CPN infection would be anywhere near her area of expertise.

Minimouse - Thanks for that information. Nice to know we aren't the only "what is wrong with us?!?" family around. Looks like I am going to be the "pioneer". They will be kept in the loop. Hopefully, once I am "fixing" myself, I can get them to take a look at this stuff. My family does not have any communication problems and they take my advice to heart, so I look forward to seeing how this might work for them.

JimK - The "Kissed by a Dementor" phrase just seemed to fit, probably because I was in the middle of reading "Harry Potter and the Prisoner of Azkaban" and Dementors were fresh in my mind. Honestly, the feelings I had that day was extreme lethargy and sadness. We have a saying around our house, mostly when my son is being very bad, my wife tells him "You took my happiness away and now I'm sad." I thought about all your posts that I'd read and how many of you had experienced some extremely negative physical, emotional and mental changes sometimes, after *pulses* and such. That day, I kept asking myself if I could I feel like this everyday and that definitly wasn't helping me feel better. In summary, something had taken my happiness from me that day. Sucked the life out of me it did, hence the "Dementor".

MacKintosh - Thanks for the push! I know this needs to be done. However, if it was proven that celery cured MS I still wouldn't look forward to eating it. Image removed.

 

I did pickup NAC and some of the other supplements from the Supplement Chart, the other day. The list looks fairly "daunting". Any thoughts on recommend ones to start before the ABX treatment? I take quite a few supplements already and have to split them up as I will get extremely nauseous if I take them together.

Thanks again!  

B Positive (Brian) - "It's in my blood."

Good days and not-so-good days, Brian, we're here for you and today is one of the good days!  You made me laugh out loud about the celery (for me it would be parsnips or plain lettuce). I'd be making faces the whole time I was grudgingly chewing away. As for supplements, I basically divide them in half and take half in the morning, half around five or six at night, then cacium, magnesium and B-complex around nine, melatonin around the time I think I want to sleep.  One NAC morning, one with the 6pm batch.  I've gradually gone to taking more CoQ10 in the morning, as it helps me feel better going into the day and seems to calm my 'vibrating' feet, but you'll find your own rhythm as time goes on.  GO GET 'EM!  Not the pills.  I meant the abhorrent little beasties inside you. We're all going to come out of this SO darned healthy!!!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi