As a registered medical practitioner my professional interest is in the treatment of persons with Multiple Sclerosis. That’s understandable; my wife, Sarah, had developed a very aggressive form of the disease, with the classical frontal lobe disturbances typical of severe illness. She was given a poor prognosis. I found the work of the Vanderbilt people (the patent of Dr Stratton and Dr Mitchell) and treated Sarah with a combination of oral doxycycline and roxithromycin; I later added pulses of metronidazole, changing this to tinidazole as it was better tolerated. Supplements including antioxidants and vitamins B3, B12 and folate were taken. After six months rifampicin was substituted for doxycycline. Sarah made a good recovery following a rather stormy course. C. pneumoniae contains endotoxins and a reaction is not unexpected.
I began to treat other people, with quite some success. Many people need a lot of support as they go through treatment. I would recommend them to visit cpnhelp.org. At that time — largely due to the untiring hard work of Jim Kepner — it was a helpful and useful website. It was very supportive. It was reliable and largely trustworthy.
I’m afraid this has changed. I have had several emails and phone calls from patients who have been made worried — even frightened — by the content of some of the posts. They tell me that they have been advised to tailor their treatment, stopping some antibiotics and substituting non-antimicrobial compounds. They have been told that the treatment I have advised is likely to be ineffective. Studies have been quoted without any reference or author being given. This advice — which is highly speculative — has been given confidently by a person untrained in medicine or medical microbiology. So. What can I do but to sever the link from my webpage to cpnhelp.org? And to warn patients that the Internet is an untrustworthy place where you do not know the qualifications and the agenda of those who proffer advice?
You won’t see me here again. I’m sorry about this, because I feel I have made good friends, and I believe that we have done some good in helping ill people. But I do not wish to risk people harming themselves due to gratuitous advice from those not qualified to give it.