Cpnhelp.org - Chlamydia Pneumoniae Treatment

Sorry you're feeling a bit down.  Sit out & let the sun shine on your body, that makes me feel better.  Think of yourself on a tranquil beach relaxing enjoying a beverage, sunscreen or shade, in case you drift of to sleep.

It is sunny here, I ran an errand & now I am going to rest.  Might go for a ride on the Harley later, my husband rides & I have a nice seat behind him.

God Bless Jeanne, have a nice weekend.

With Christ in Faith

Ruth 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08

Ella started with the doxyi gradually working it up to the full dose of 200mg a day, we did it that way because it was easier to control the dosage and  if things got too bad you can just skip one 100mg dose.   Once she tolerated the doxy, we added the azi one tablet a week until she felt she could take more.   It was not easy even doing it that way, but she managed.   She was in hospital at the time so some of her anxiety and depression must have been because of her situation, so it might not be as bad for you.   The breathing problems had abated by then, that seemed to clear up once she had adjusted to the doxy.

You have to remember that not everyone reacts to these drugs in the same way and that Ella's experience is only one amongst many, in the end it depends on how much Cpni you have and where it is lodged in your body.

My experience was totally different and although I felt fluey and achy I did not have such severe reactions to either of the  bacteriostatics.

The two words that best qualify this period is patience and perseverence. 

Michele (UK) GFAi: Wheldon CAP1st May 2006 . 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Thank you Michele, 

The doxyi does appear to be more controlable... also less of a half-life time. I just don't know whether to postpone my reactions by doing the supplement "preparation" FIRST and taking NACi... how important is it to have the NAC before ingesting the antibiotic?   Seems like I just need to jump in.

My new mantra will be patience, perseverence; patience, perseverence.....  (and faith!).  

Be Blessed and have a good weekend. 

Jeanne: Diagnosed 4/2007 w/ CPNi, HHV6, EBVi, Fibromyalgiai & CFIDSi "symptoms" - previous issues: bronchitis/sinus; kidney infectionsi; food allergies; hypothyroid (RAI for Graves in 1998) ]; hypoadrenalism -  Azith 250, 1x/wk (started 5/8/07)

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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

Ruth,

thank you ... I have been outside, but it's actually too hot! even in the shade... But I am trying to relax.

 "Back in the day...." I had my own motorcyle ... I still love riding.  Enjoy yours!

 

 

Jeanne: Diagnosed 4/2007 w/ CPNi, HHV6, EBVi, Fibromyalgiai & CFIDSi "symptoms" - previous issues: bronchitis/sinus; kidney infectionsi; food allergies; hypothyroid (RAI for Graves in 1998) ]; hypoadrenalism -  Azith 250, 1x/wk (started 5/8/07

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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

Jeanne, hang in there. I also had a heavy load of Cpni (and Mycoplasma P). I began with Minocycline for a month before taking Azithromyacin. I had terrible pains in my head, neck and shoulder that first month as well as feeling wobbly and disoriented. There is also a psychological effect(anxiety and depression) of all the toxins circulating. Fresh air, a little sunshine and lots of water as well as charcoal and Vitamin C should help. Feeling short of breath is a sign of secondary porphyriai. Deep breathing (Yoga breathing) really helped me get through those times. You can do it anywhere. What also helped is taking a bath in a strong solution of Epsom salts. I use 3 cups to a tub of water---make it as hot as you like it. Do this before bed and you will sleep well and wake up with much less pain. The magnesium relaxes nerves and muscles. Some weeks I took this bath almost every day just to be able to get up and go to work the next morning.And yes, I had days when I thought I was going to have to go out on disability leave but I got through them and was able to keep working. Hang in there. As Dr. Stratton says, "go as fast as you can but no faster" Raven CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi

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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!

Jeanne, I have the same problem. I would start with the Doxyi and work up from there as they recommend above. Just jump in. We will make it! Raven - Did you have breathing problems like I am having, waking me at night? As soon as I hit REM I wake up with air hunger. Sleep study did not show apnea. It's every hour now and scaring the bejesus out of me. I have all I can do not to go to the ER. My finger oxygen meter shows blood oxygen at 97% when it happens. The only other thing I can think of is heart failure and the thought really scares me. I am seeing my Dr. again this week. He will do one more heart/lung exercise/oxygen test. Already did every other test we could think of. Best to all and sorry to jump on anyone's thread but it seems Jeanne and I have similar issues. Chris CAPi since 11/06 for CFSi. Cpni, Myco P, CMV, HHV-6 infectionsi. Minocin !00mg MWF (working my way up). All supplementsi.

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.

Chris,

Yes, this breathing/ heart thing is frightening.  I'm sorry you are experiencing it more frequently.  My inner child  is wanting someone to watch over me. I would love to be "monitored" by a capable medical person, but an emergency room probably wouldn't find anything and chalk it up to "anxiety"-- arrgh!

I just had my bloodwork done and forgot to ask whether or not cardio crp is on the test. Is that something I also should be monitoring?  Is that part of a CMP?

 I have concerns because the breathing "thing" doesn't abate with breathing exercises (Raven thank you for your guidance -- sometimes  I really don't know if this is secondary porphyia.. my tests all came back ok; but then, perhaps the tests aren't really indicative, but rather my symptoms are telling us otherwise?..... I will definitely try the Epsom salts baths.)  I am taking the vit c and charcoal, perhaps not enough.

 I read something Chris posted previously about ALS and did some searching on that.  It's scarey to think this bacteria could affect our nervous system and weaken the breathing muscles??? We don't know.   http://tinyurl.com/ln5zd....  I'm getting air, but the breathing is so shallow it feels like I need help getting it! The heart thing... well that's like someone sporadically sticking an icepick in it..... Praying it goes away (SOON!)

 Okay, Chris, I'm holding my nose and jumping in.

patience and perseverence, patience and perseverence..... patience and..

Blessings to all,

Jeanne: Diagnosed 4/2007 w/ CPNi, HHV6, EBVi, Fibromyalgiai & CFIDSi "symptoms" - previous issues: bronchitis/sinus; kidney infectionsi; food allergies; hypothyroid (RAI for Graves in 1998) ]; hypoadrenalism -  Azith 250, 1x/wk (started 5/8/07

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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

Chris, I would get short of breath in the afternoons--usually about the time toxins begin to dump. The rest of the day I always felt short of brea†h after I took a drink of water.This no longer happens to me. It took about 10 or 11 months on the CAPi to go away. Anxiety can also make one feel like they are short of breath. Hang in there. There is a reason for everything... Raven

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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!

Thanks Raven. Jeanne, Remember Air Hunger can also be caused by Mycoplasma Pneumoniae (in which case you are on the right abxi combo to treat that) and Babesia (get tested). Best, Chris CAPi since 11/06 for CFSi. Cpni, Myco P, CMV, HHV-6 infectionsi. Minocin !00mg MWF (working my way up). All supplementsi.

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.

 Well, don't jump in, just slip in. I took my first dose of zithi before I'd done any supplementsi at all, and I was at work when the breathing thing started. What a mess.

My doctor had me back up and do the supplementsi for two weeks, then reintroduce the zith, slowly. I took supplements for 2 weeks, then zith once a week, twice a week, etc. It was three months building up to a point where I was ready for Flagyl, and nine more before I could do five days of Flagyl. I remember one early pulse when the breathing thing woke me up -- that was scary!

The breathlessness is very disturbing, to me and to Dianna, but my O2 is normal; so is my heart. However, since I have been on the CAPi it takes more and more to set off an episode. I will still have it if I push too hard, or during the last day or two of a pulse. Even thinking hard at work raises the chances of "puffing" during the evening at the end of a pulse. A heavy meal (during a pulse that isn't very much, either) will bring on the breathing problems, and I find it's aggravated by letting myself get too cool.

 I have also found that getting horizontal under the electric blanket for an hour or so will usually get it stopped. I find uncomfortably warm is better for stopping the "puffing" episodes, but YMMV.

 It bears an unfortunate resemblance to a panic attack, except that since I know a way to stop it and what aggravates it, I don't feel panicky -- just short of breath. Xanax had no detectable effect at all, either. If anyone's around or calls on the phone, I can gasp out a normal conversation as long as they can ignore the odd phrasing.

Ron

On CAP for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zith -- continous; metronidazolei -- 5 days on, 7 days off.

Get the research results you paid for: support

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Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

PS -- have you taken your temp? My puffiing tends to be worse when I'm more subnormal. You have to breathe with your mouth closed for five minutes before taking the temp -- or take it somewhere else.

If you get grey flesh around your eyes, cheeks, forehead, and hands, you may find that the greyer you are, the more likely you are to have an episode.

 

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continous; metronidazolei -- 5 days on, 7 days off.

Get the research results you paid for: support

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Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

When Ella was having her breathing difficultiesi, they tested her oxygen levels and her lung capacity.   Oxygen levels were within the normal range  (95-99)  so they were not concerned about that, but her lung capacity was greatly reduced - about 200 L/min instead of 500-600 L/Min which later proved to be her normal reading.   We were not sure at the time whether it was because  she was suffering a really vicious relapse that was affecting her breathing muscles (diaphragm, abdominal and intercostal muscles) or whether this was a direct consequence of the doxycycline.   Starting the treatment coincided with the start of the breathing problems.

Taking the short course of high dose steroids did make her better in the short term, but although it never returned in quite such a frightening way she did continue to have occasional problems with shortness of breath for a couple of months.

Michele (UK) GFAi: Wheldon CAP1st May 2006 . 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michele (UK) GFAi: Wheldon CAP1st May 2006 . 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006