Greetings to the list. I am very alone in trying to help my mother with her wet macular degeneration. As well, she has symptoms of CFS (chronic fatigue syndrome).
She took Minocycline for 3 months earlier this year, left over from about 5 years ago I think and it stopped the leakage in her right eye between doctor visits. But at the next visit in June, the eye was leaking blood into the macula. The eye doctor sounded annoyed and said there was nothing to do. I don't believe in the Lucentis or Macugen since it has to be repeated repeatedly by injections into the eye (ouch!)
Since the minocycline worked, it is obvious to me that there is bacteria there. I have read somewhere on the net about this, but no mention of what kind of bacteria.
She is taking cipro and metro (every other week) and I got her to ask for cipro eye drops. Might as well cover all bases!
Our doctor only prescribed it because I told him our former doctor had us tested for the HLA (?) gene which means we could suffer from leaky guts and Crohns although we thankfully don't have any symptoms. We did take mino for about a year and cipro and metro but I guess it wasn't long enough.
sorry to be so long-winded.
Any names of doctors in Vancouver or lower mainland would be fabulous for the CAP so I wouldn't have to be so sneaky about getting the meds. I am trying to get at least a year's supply for my mom by getting doc to give me the same cipro & metro and giving it to my mom. So far, have a six month supply.