Wet age related macular degeneration

Submitted by malory on Sun, 2007-08-05 01:08

Greetings to the list. I am very alone in trying to help my mother with her wet macular degeneration.  As well, she has symptoms of CFS (chronic fatigue syndrome).

She took Minocycline for 3 months earlier this year, left over from about 5 years ago I think and it stopped the leakage in her right eye between doctor visits.  But at the next visit in June, the eye was leaking blood into the macula. The eye doctor sounded annoyed and said there was nothing to do.  I don't believe in the Lucentis or Macugen since it has to be repeated repeatedly by injections into the eye (ouch!)

 Since the minocycline worked, it is obvious to me that there is bacteria there.  I have read somewhere on the net about this, but no mention of what kind of bacteria.

She is taking cipro and metro (every other week) and I got her to ask for cipro eye drops. Might as well cover all bases!

Our doctor only prescribed it because I told him our former doctor had us tested for the HLA (?) gene which means we could suffer from leaky guts and Crohns although we thankfully don't have any symptoms. We did take mino for about a year and cipro and metro but I guess it wasn't long enough.

sorry to be so long-winded.  

Any names of doctors in Vancouver or lower mainland would be fabulous for the CAP so I wouldn't have to be so sneaky about getting the meds. I am trying to get at least a year's supply for my mom by getting doc to give me the same cipro & metro and giving it to my mom. So far, have a six month supply.

I've sent you a private message, click on my inbox (left of the page under your name) to access it.

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Just in case you haven't seen it already, here's a thread about AMD. There are some interesting papers referenced there. Maybe if you show them to the doctors, they will be more comfortable using the Combined Antibiotic Therapy to treat AMD.

Oh, and a search on Highwire (try "Macular Chlamydia Pneumoniae" will provide several of the papers full-text for free.

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continous; metronidazole -- 5 days on, 7 days off.

Get the research results you paid for: support Open Access

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Malory, I found an interesting article about Traditional Chinese Medicine, synthetic bile compound and macular degeneration. You can see the link here: http://whsc.emory.edu/press_releases_print.cfm?announcement_id_seq=8682

Raven

CAP since 8-05 for Cpn and Mycoplasma P. for MS and/or CFS

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Thanks, Paron and Raven & Chuck for your info. I will act on it as soon as possible.  I am totally amazed about info on Cpn related to AMD (age-related macular degeneration) in those medical journals. 

Doing a search engine search didn't bring them up for me after countless times on the web. 

And that sythetic med for the eyes is something I will try to get.  How horrible that bear bile was used for this. I'd rather die than even think of using the real thing - which is mostly fake, counterfeit medicine even in China.  No animal has to be tortured for its entire life to produce this product.

Next, I really appreciated the names of potential CAP doctors.  Is it possible to have a separate list of these possible MD's on the website? I know of two in my area who are receptive and use antibiotics long-term basis.

Will catch up on email and this site on the weekend. I have a project I need to finish.

Thanks a million,

Malory 

 

Malory, We don't publish doctors' names on the site for many reasons. Only a couple of doctors are okay with having their info published here. If someone needs a referral, they post and ask if anyone can recommend a doctor in their area and responses go by private message. Check your box: I will elaborate privately.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I am still finding my way around this site. Have very little time to spend on web at present.

I read about Bromelain enzyme somewhere here, I think. So today, got a big ripe pineapple and mom is eating some on an empty stomach as advised. It's supposed to 'strip the arteries' that are blocked. Deals with the fibrin that I think is what is plugging up her macular blood vessels and elsewhere since AMD (age-related mac. degen.) is closely associated with heart disease. I can but try.

She is feeling very tired and sleepy and is on Metro this week. But it could be the CFS fatigue or thyroid. Her eyes are not blurry today, as she describes it. Maybe the blood vessal leakage is being controlled by the CAP.

Regards to all and many thanks for the emails on advice. Time for bed now. Goodnight.