I got a cpn diagnosis a little over a year ago, it all started 4-5 years ago, my main symptoms have been feeling sick, weak and no energy, symptoms coming and going..When I found out about the cpn it was from a CFS/ME doctor and he subscribed me a six week course of Clarithromycin..it didn´t make it better and a couple of weeks after I started having problems first with my calves and then it spread to the rest of the legs.
This last year it´s just kept on getting worse..and about six months I got a job and had to walk a lot and had to push myself despite the legweakness..as it turned out I shouldn´t have. Since then it´s just gotten worse, and it won´t go away..(earlier I have been able to rest for a week or so after exhausting myself and then being able to at least walk short distances)
Now I can hardly stand up anymore and stumble around between my bed, toilet and kitchen..get out of home about one or two times a week and get totally fucked up from walking short distances of about 200 meters..
Earlier I could at least do some things on my better days but now I get more isolated all the time..the rest of my symptoms is about the same..most days feeling sick and weak but some better days in between..but because of the weakness of the legs I have to stay in my sofa even when I feel "ok" with the other symptoms..So bored and tired of this..
My guess is that the short antibiotic course made it worse and then the overexhaustion at work drove the cpn to totally take over my legs..or something like that?!
Has anyone else experienced similar symptoms?
(I´m on NAC and will soon start CAP, but a bit worried that I´ll become totally handicapped by it)