Warning and Disclaimer


Disclaimer and warning

  

A few updates first

 

My sinus MRI ( for fistula was changed to July 3 ( it was supposed to be today ) but had to be changed due to an unfortunate circumstance ( pm me if your curious- nothing really all that important anyway). My oral surgery had to be moved up as well because of the MRI so it will now be on July 9th. This is actually better because I can better space my abxi. I can take my metro pulse now and instead take clindmycin for the surgery, as opposed to being on metro during the surgery which would have left me feeling nauseas and thus more prone to gagging. Also a better financial time to have it done, so its still all good

 

As for how Im doing. I have a very minor resp infection- viral I believe, just a minor caugh. I don’t feel that its cpni, It might even be allergy as I was exposed to a lot of smoke this week. . Otherwise, I feel like a million bucks with only a tiny pressure in my facial area at this current point. However, I know that without the abxi the pain is still right there waiting, but again, for now I feel great.

 

Ok so heres my warning and disclaimer

 

I start metronidazolei pulse 3 tonight. The very thought horrifies me.

 

 “I cannot be held responsible for the misery of my posting from this point forward for the next 7 days. I fully recognize that my perceptions will shift, that I will suffer immensely both physically and psychologically and that my posts may be so toxic they may wrongly confer that this treatment is masochistic and purposeless.”

 

I will take charcoal, I will drink Gatorade and I will switch to 500 mg x2 daily as opposed to 500 mg every 10 hrs. I will probably cry silly suicides, but I will try not to. I will probably feel like vomiting out all my front teeth again as I come off the abx but I’ll try to ignore that odd distorted perception as well.  

 

So once again, I’m ready to roll, here we go, lets do this.

 <Insert star wars theme here >

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CPNi pcrii and antibody positive , treating MSi, CFSii, TMJ, trigeminal neuralgia, IBSii neutropenia, pus found in facial bone, Doxyii 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Go get 'em, Clammed! Die,

Go get 'em, Clammed! Die, beasts! We will only laugh at the funny things, not the scary ones. See you in a few days - a few milligrams lighter.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 51 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

go get em girl, it seems as

go get em girl, it seems as though you are prepared!

You are expecting, the unexpected!  Good Job.

Everything is falling into place!

Blessings

r

CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#11 1000 mg 5 days 6-14-08

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

"...I will suffer immensely

"...I will suffer immensely both physically and psychologically and that my posts may be so toxic they may wrongly confer that this treatment is masochistic and purposeless.” Well then, I guess we'd better contact those S&M websites and tell them to take down the link to cpnhelp.org Seriously, your plan sounds good and knowing how the treatment is going to effect you makes you prepared to deal with it in a rational way - even when you're ill enough and fatigued enough that you choose to not be rational about what you're going through. Good luck. Let us hear more when you get to the other side (of the pulse, not the other side of life).

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Ninth pulse metronidazolei completed 6/7/2008.

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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week).  Fifteenth pulse metronidazolei + INHi completed 11/22/2008.

We are cheering for

We are cheering for you! Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Well, Im as confused as can

Well, Im as confused as can be....because

Im fine! As in perfectly fine... now this is really unexpected forsure. Im not even tired... pretty bizarre.
I had a respitory virus this week, parainfluenzae I suppose, just getting over it now. Do you think that the virus caused temporary immune suppression therefore I didnt have that usual burst of immune mess from the flagyl? I cant figure out what else it could be. So, Im certainly not complaining anyway, mind you, for some reason I have difficulty coming off the flagyl, so Im not looking forward to that part, However maybe that will be ok as well? Anyway, I feel like I got a month off from this jail time. Happy day, hopefully my surgery goes well and I might even have a happy summer.

I got an unexpected !!! I think I was stiffed this month too... Ive intimidated the enemy :)

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Hi clammed ! I am felling

Hi clammed !

I am felling glad for you that you feeling fine with the metroi. I myself have same experiences with flagyl and energy burst(sometimes). I think also my chronic enterovirus gets much better while under flagyl. I think flagyl sets up your immunecells in a turboboost mode for a while before they die(apoptosisi). Maybe thats why someone in this forum reported of treating ebv with metro. Metro is very strong immunmodulating.

Regards
Cesare

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Male 35 years (Hamburg-Germany),CFIDSi, IBSi, Enterovirus, Cpni for years positive. Started Capi on 02/19/08, Currently NACi 2400, Doxyi 2x100, azi 500 each day,Doxy 200, tini pulses , Oral Vancomycin for c.diff

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