Waking with Nausea
I saw my LLMD yesterday and he wants me to up my Zithromax to 250mg daily (he usually does 500mg daily but said I should be fine) and then add the Rifampin (300mg x 2 daily). He definitely believes the anxiety and panic attacks, chest pain are all Bartonella as I had them before I ever started antibioticsi and the increase of antibiotics recently has triggered some die-off. I also tested positive for Bartonella on the Igenex test.
He wants me to take:
Phos-Choline
Readisorb Gluthathione
Corocalm
To detox the liver and calm my system down. Then wants me to add in the Rifampin once I am tolerating the daily Zithromax.
Yesterday had nausea when I took my Zith in the afternoon on a reasonably full stomach (2hrs after lunch) and then nausea again with dinner. Then I woke every hour last night with nausea and slight pain in my left shoulder/upper arm. No shortness of breath. I don't think this is my heart. I took Glucose tabs and they did not help.
Now I am debating whether I should drop the Zith until the nausea resolves and go on the supplementsi above, allow my body to get rid of the toxins OR just keep going and try some charcoal. When is the best time to take the charcoal?
Getting my blood tested now to see if liver enzymes are elevated. Could be gallbladder as I remember having gallbladder issues when I first became ill. It checked out fine but had lots of polyps. Anyone know any good liver/gallbladder cleanses? I heard lemon/water/olive oil drink is good.
Thanks for any input!
Chris
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Hi, Chris... Sorry you are still having issues. Just curious, did the Azith give you nausea when you took it in the beginning of the protocol (I remember you had breathing problems with it). I had upped my Azith to 500 mg on M/W/F for a reoccurence of bronchitis and it definitely increased die-off and porphyriai symptoms for me and I've been taking it for 1.5 years now.
Are these what you doc prescribed? :
Phos-Choline
Readisorb Gluthathione is a glutathione spray (are you taking NACi??)
Corocalm is a homeopathic heart calmer
I would think the supplementsi (NAC, Magnesium, etc.) would take care of most of what he is trying to address with his recommended supplementsi. A very low-dose benzodiazaprine has helped get me through on many occasions.
If you aren't taking charcoal or any of the other moppers for porphyria you will have even more problems if you continue on, jmho and from my past experiences. Charcoal needs to be taken on an empty stomach AT LEAST an hour after food and meds.
The lemon/water/olive oil drink can be harsh for some (google it, as well as Dr. Hulda Clark).
It's strange, I have the pain in my left shoulder/upper arm as well..I do have costochondritis which can mimic a heart attack (as I found out last Thurs/Frid in the ER, LOL... chalk another experience up.)
This may well be your bartonella kicking up... or porphyria.
I'm sorry you are experiencing it. I definitely believe you should re-read the porphyria information and measure here on the site. (or the Reactions and Remedies page). I kept denying that it was causing a lot of my symptoms. Sometimes we just have to experiment.
I hope you get this sorted out.
JeanneRoz
JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni
I had my gall bladder out several years ago. I did experience nausea and vomiting when my gall bladder was acting up over the years. I did not realize it was my gall bladder though until the final attack. I either thought it was indigestion or a stomach bug. The pain was not on the left side but on the right side just under my rib cage. It was a pretty intense pain that came and went during the attacks. By the time I experienced my final attack, there was a stone in my gall bladder the size of a large olive and my gall bladder was infected. It is good that you are taking steps to keep your gall bladder as healthy as possible.
I agree with JeanneRoz that taking all the steps to deal with porphyriai is a good idea. Charcoal and cholestyramine work well for my daughter. She is also giving Chitosan a try. She likes the idea of Chitosan over charcoal as the number of pills to take at one time is lower.We'll see how it goes.
Maria
Chris, I believe from what I read that Questran (or Cholestrymine) and charcoal are quicker in getting the porphyriai in control. Louise and others have some very informative posts on them both here on the site.
It's my understanding the Chitosan may work after you have the porphyia under control. Charcoal does work quickly for me, though, and could be quickly obtained at a local health food store. I had some initial "gut" issues with the Cholestrymine but will try it again on my next pulse.
JeanneRoz
JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni
Chris, ChitosanHD LiposanUltra brand from www.wholehealth.com is more absorbent than the original type which is not high density. I cannot compare it the the cholestyramine as I have not used the chitosanHD in an acute situation as I have the cholestyramine. However the chitosan ultra is non Rx and much less expensive. It is my personal opinion that it could well be more effective than charcoal. Louise
I purchased the Chitosan HD that Louise referenced and it arrived in the mail today. I think my daughter will try it in place of her evening charcoal dose for the next several nights. She uses the cholestyramine in the afternoon and lately she has been taking a double dose which I think has been very effective in reducing the porphyrins.
Maria
Chris~~If this is the same item, from what I have read here and here I do not believe the phos-chol would be a considered a good porphyriai mopper...but it appears to have other benefits.
JeanneRoz
JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni
Thanks Chris, I will be looking out for the information on the Chitosan brand that you doctor is suggesting, with the name and link to the source I would like to make a comparison to the
High Density Chitosan lipoSan ultra brand available from; www.wholehealthproducts.com or www.wholehealth.com ;
"Chitosan HD
What Is Chitosan HD?
Chitosan HD™ / LipoSan Ultra™ is an ultra-dense form of Chitosan; the "HD" meaning "high density". According to research provided by the manufacturer, Chitosan HD™ has the ability to absorb 3 to 5 times the lipids of regular Chitosan. And, it is soluble in 3 to 5 minutes.
Who should Consider Chitosan HD?
Are you trying to lose weight?
Are you looking for help in lowering your cholesteroli?
Do you need help trying to reduce body fat?Significant attention has been given to the role of Chitosan as a cholesterol and lipid binding agent.
Chitosan is produced by the hydrolysis of chitin, a naturally occurring polysaccharide that is a major component of shellfish shell.
This fat binding, lipotropic, effect may be partially explained by both the positively charged sites along its polymeric structure and its flocculation and gelation properties in the gastrointestinal tract.
Once gelled, Chitosan can encapsulate over four times its own weight of negatively charged lipids.
Chitosan HD™ / LipoSan Ultra™ is an ultra-dense form of Chitosan; the "HD" meaning "high density". According to research provided by the manufacturer, Chitosan HD™ has the ability to absorb 3 to 5 times the lipids of regular Chitosan. And, it is soluble in 3 to 5 minutes.
Chitosan HD™ is soluble in stomach acid and its amino groups become positively charged via proteination by the acid. In the presence of dietary fatty acids, which carry negative charges, ionic bonds form that bind the fatty acids to the Chitosan's amino groups.
As the soluble Chitosan/fatty acid complex moves into the small intestine, it also binds with bile acids and cholesterol that are present. The complex absorbs up to 400 times its weight in water and begins to floc due to the higher, less acidic pH in the small intestine. This flocculation further aids the binding process by trapping or encapsulating all of the bound lipids, including cholesterol.
As the pH continues to increase, Chitosan HD™ floc forms an insoluble gel consisting of Chitosan, bile acids, bound lipids and cholesterol--none of which enter the blood stream. Not only is cholesterol uptake decreased, but it is believed that the continuous partial removal of bile acids from circulation by Chitosan HD™ triggers the body to produce replacement bile acid via the oxidation of already absorbed cholesterol. This produces an additional reduction in low density lipoprotein (LDL) levels.
For these reasons, Chitosan has earned the reputation as the premier lipid binder. Now Vanson researchers have been able to manufacturer Chitosan HD™ which has the ability to bind with almost three times as much lipid volume as compared to its predecessor. This new product is called Chitosan HD™ / LipoSan Ultra™.
How Can I Distinguish between High Density Chitosan and older Chitosan?
High Density Chitosan is more expensive. If a company is using it, they will brag about it. If they just say "Chitosan," it's not high density Chitosan HD™.
Important nutritional note for dieters
People need some fat in their diets, as we all need to ingest essential fatty acids, and the fat-soluble vitaminsi A, D, E and K. For these reasons, we recommend against using these products before every meal, every day. Regular use of any product on this page should ideally be combined with a high-quality fatty acid product, and a multivitamin containing adequate amounts of fat soluble vitamins. Take these supplementsi at a different time from when you take Fat Absorber or Chitosan HD™.
Side Effects
Anyone allergic to shellfish may be allergic to Chitosan HD™, as it is derived from shellfish. Remember that Vitamins A, D, E, and K are fat-soluble vitamins. So, you need some fat in order to get these vitamins. With this in mind, we recommend that you do not use Chitosan HD more than once a day, preferably prior to your heaviest meal, and consider taking a multivitamin. See the nutritional note.
References
Anderson, J. W. (1995). "Dietary fibre, complex carbohydrate and coronary artery disease." Can J Cardiol 11 Suppl G: 55G-62G.
Double-Blind Placebo-Controlled Trials As Cited at http://www.vanson.com/nut/lipo_tech.html
Chris... this is interesting ... from the product spec sheet it appears the product your doc has recommended has more of an effect on the blood due to having the Chitosan Oligosaccharides but it does, according to the label have both Chitosan and (a small amount )Chitosan Oligosaccharides.
Chitosan itself is more of a fiber and contributes to detoxification in the GI tract, whereas Chitosan Oligosaccharide supports detoxification in blood and other tissues.*
I found it interesting that it states:
Keep us posted on how it works for you!
JeanneRoz
JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni