Vertigo and Vergeance

Submitted by katman on Thu, 2009-07-30 11:24

One of us asked me what I could do now that I am a "1" instead of a "2", or as I used to be, a "6.7". The answer would be so long that it would fill a good-sized book. Let me start with the fact that I can swat the pesky fly (just did) that has been flitting around (and no longer is). I could follow that with some of the everyday other pesky things like sinusitis, inflamed gums, varied skin problems, dry skin, mental fog, and, most monumental of all, my walking. Not only those, but I can take a deep breath without coughing. Most "normal" people take that for granted, but I was not able to do that for years and years. And I had a "catch in my chest" which prevented me from breathing much at all when it was happening. And all this was before I started smoking. Sometimes I remember that someone said that cpn did not like tobacco. I wonder if three packs a day for almost three decades kept my MS in check....

These all sound so small, but those of us - an ever-increasing number - know that each tiny thing is a milestone. And there are huge ones, like being able to get up off the ground or floor or to climb stairs or pick your foot up or dress yourself. I was not able to put my right shoe on for a year or so. Now I can wiggle into it. It's nice to do these things. The other thing is that I will soon be halfway through the five abx plus caffeine pills that I began in the middle of May. I have taken a whole pill twice and was pretty wiped out for most of the day. But that is four times the quarter pill that is all I was able to manage for the first two months. As a matter of fact, I took a second half pill at 10 am, following the half at 9 am, so I may be tolerating even that better. than I was. So, I sit here, writing under the influence of caffeine and I think I am making sense.  The worst thing about this what I hope is clean-up time, is the vertigo.   I have had vertigo for decades (most of my life), and have lately realized it was getting much worse for the last twenty or so years.  It is back and is definitely exacerbated by the caffeine.  Since we know (have learned) that with a targeted symptom comes return of symptoms, I have hope.


Rica, hang in there!  You've seen improvement that I can only dream about so the good of what's happening that once you get yourself to no reaction at all, you'll have nothing left that can come back again.  I hope you get there, you're on path!

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day

Rica, I am sorry: I didn't notice that you are now a one!  I think I must get David to measure me properly to see what I rally measure.  I have chosen to keep it at two because of the fact that it can vary so much during the ay, depending on what I have been doing, but that is probably not the way to do it.

How time flies: as soon as you know, it you will be finished your five month dose of abx and caffeine and can get on with being everyone's favourite number one................Sarah  

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I'm following your progress with interest and look forward to seeing you at a O one day.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Rica you are such an encouragement - I amonly  on day 2 of my treatment - so a long way to go yet but your story is really cheering.

with best wishes for a resolution of the vertigo


RRMs diagnosed 2008 (symptoms for 20 years). Also sinusitis, recurrent UTIs, IBS  Wheldon protocol began 31/7/09 Doxy 200mg, Azithro 250 3X week.  Supplements B12, D3 Vit C, multivit, Fish oil, probiotics, NAC, vit E, turmeric

Rica, or should I say number 1!!!  We all follow you very closely and hope to one day follow in your glory. Keep up the great work,my friend.    Kim 

RRMS since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyl Copaxone, Avonex, Novantrone, Provigil, 5gm NAC, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

My wife had really bad vertigo for years. She finally found out that she had water retention in her ears. The doc gave her diaretics and she feels fine now.

Fibro, CFS,  Myco, CPN, Stratton protocol, Zithro 500mg M/W/F/S, Doxy 100mg 2x day, NAC 1200mg 2x day, Flagyl and INH 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day,  Still cant shake it but improving.

Thank you, Rica - it is the posts like these that encourage those of us behind you to keep working through this. 


ME/CFS since 1991. Cpn diagnosed 6/07. CAP started 7/07. NAC 2400mg per day, doxycycline 100mg 2x per day, azithromyicin 250mg M-W-F. 8/09 switched from Flagyl to Tindamax 500mg 2x per day for 5-day pulse.