UTI

I have a persistant uti caused, i’m sure, by missing probiotics during my last pulse.  I’ve taken a course of tim~release nitrofuentoin, which turned me into a zombie. I have herbs, including juniper, and take apple cider vinegar. I really don’t want time away from the cap, but wondering if i should. I’m a little paranoid about uti, ever since i had a really severe one, 9 years ago! But this one is confirmed by tests.GP is off today, so, i’ve left a message for the morning. I’m so terrifyingly exhausted abd not clear minded at all. Forgetting things i really shouldn’t.  I was taking DMannose also, but stopped after a week. Thoughts anyone? Should I, could I take time off ABX, i’m really struggling, and was doing so well.

Jane

Hi Jane!

Very sorry to hear that you are still having UTI problems.

I know I've said it before but I better repeat it again. I am not a doctor and have no qualifications to answer anybody's medical problems.

I will say though, I don't believe that taking the drugs that we take would cause a urinary tract infection to thrive; quite the reverse in fact. I know that a doctor friend of mine that had dabbled in this protocol by taking doxycycline and some azithromycin, was seen to be much better. Someone that saw him almost every working day said that the protocol had helped his UTI problems immensely. I know that UTI infections result in not just pain in the waterworks but all sorts of other extremes. That doctor did not continue with the protocol. He took the view that antibiotics were toxic and bad. I saw the negative results of him ceasing antibiotics as did his other associate. As it happens, he swears by d-mannose.

Hey look, although I have never actually had one myself, I know from other people that a urinary tract infection can make you feel really rough and irritable and certainly not up to dealing with stupid questions. If you do have a urinary tract infection, then ideally the lab would have cultured it and determined which antibiotic is best to fight it. Has this been tested?

Lack of probiotics can certainly lead to a build up of nasty bacteria and fungal overgrowth in the gut. I think I had a fungal build up due to lack of probiotics the summer before last when I ran out of probos for about 10 days. I used oregano oil to eventually clear it out but it took a long time. When you take probiotics or prebiotics they go through your gut and will hopefully these good bacteria will prolificate in the colon. Your small intestine, where digestion actually takes place, is relatively germ-free; unlike your colon, which contains trillions of germs. Your bladder and urinary tract should be germ-free too. Probiotics go in gut and not the bladder. The problem arises often because the exit point for both the sterile urine and the germ-laden faeces are very close indeed; more so in women.

Anyway, enough of me rambling on. The bottom line is, do you have a lab test result for your urinary tract? If your doctor has those results and you do have a urinary tract infection, hopefully he will be prescribing the correct antibiotic to deal with that infection. If it were me, I would want to know exactly what I was infected with.

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

SG, good advice, as always!

i get paranoid where utis are concerned, i rarely get them, but, have been wretched in the past.

The surgery sent my sample away and the GP tested another. I was treated for an e-coli, as is normal, but not neccessarilly correct!

i’m, now, using apple cider vinegar and high doses of vitamin C, as that infection, apparently, hates acid! But, although everything, initially, pointed to uti, i’m wondering if this wretchedness is, actually, a die off! I also have been given herbs, featuring junioer! Actually, nothing should thrive in my bladder, but i seem to have stepped back, quite a long way! And  i’ve become very forgetful again! Which scares me the most!

u’ll call the GP in the morning!

thanks SG

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

My sample didn’t grow anything, but showed a lot of white cells! GP this is a result of the abx! I think he is desperate for me to stop cap, but, unless he could offer a reliable treatment for MS, i will continue!  But i’m confused that the bugs didn,t grow. Without a doubt i have been really poorly and, without a doubt i’ve had a uti, my GP doesn’t doubt my symptoms. But  suggests thrush, which i’m sure it wasn’t, but what was it? Well, still a bit weak but definitely on the mend.

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

D W

C. pneumoniae itself may cause a bladder infection. It has been implicated in interstitial cystitis. Here’s a link to a page about this: http://www.cpnhelp.org/chlamydia_pneumoniae_in_interstitial_cystitus

 

It is possible that you are killing Cpn, and their dead bodies are causing inflammation. In that it case it would be similar to other die-off events. 

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

Thank you, for this, David! I usually get a ‘no culture’ response from the GP, but nothing further. I’ve always been quite tough and resiliant, so know i’m not imagining the sudden weakness and exhaustion, but today it returned! I’ve had dreadful IBS since  shortly after an emergency appendectomy, when i was 13. I’ve, lazilly, realised my IBS is due to gluten and stick to a GF diet, it all seems to point to IC, as discussed in your link, although acids seem to control it, a little!i’m now pre-menopausal, just,  so it all seems to add up! My husband says this could all mean it’s good news, as it is, i’m struggling to be so positive!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, you might in the end find that leaving off abx is needed to get rid of the uti, but first you do need to do as Glenn suggests and find out exactly what is causing the uti, and then, if it does have an infective cause, which is the best antibiotic to clear it.

Now, I have never had a uti: David says that not everyone is inclined to one because of their genetic make-up, yet both my mother and sister have had them.  However, I have always made sure that I am less likely to get one for the following reasons: I always wear uncoloured cotton underwear and sanitary wear, I never use scented soap or other such things, including bleached toilet paper, and I never have a bath if I can avoid one: showers are much more hygienic.
Now, why did you stop D-mannose? I only looked it up today, but it seems such an excellent thing to take in your situation!.......................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

i’m sorry, i only just realised you had responded to me!

i do take very great care, hygiene- wise, but, i now know there is no infective cause! I’m, also, not susceptible to uti, but was, once, so ill with one i’m terrified of getting them, but it’s so unusual for me to have cystitis, and i had it terribly this time, i was sure of uti! I’m hoping David is correct and this could be die-off!

the D-mannose seemed wonderful, but, when i didn’t get better, thought that, as it is an inert sugar, it could be feeding the bug and, therefore, perpetuating it! You know how desperation can make you feel!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hi jane,

This is just a suggestion but did you ever get a glomerular filtration rate test done. It shows you how your kidneys are functioning. its not a standard test but maybe you should order one.


As for herbs, the best and most reliable are ginger / garlic and of course cranberry (the real ones) not the concentrate that only has at most 10% in it... get the real fruit put it into a nutribullet add a bit of water with a little bit of lemon and take a cup two / three times a day..


regards

d

The Greatest Risk of all is Not taking the Risk...

Hi Darren,

I have used garlic, but, as my husband complains , like mad, not enough! I will increase it, and blame you, if that’s ok? Just joking! I will take more and more ginger and cranberries! i’ve never heard of the test for  Glomerula function rate! I’ll mention it, the next time I see him! I’m pretty sure my kidneys are ok, but  there’s no harm in asking!

thanks Darren.

JNe

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Thanks Darren! I’ll take it ... and my husband will be very grateful!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, I never even noticed that you hadn't replied to me, but what I do know, from talking in the evenings with David, is that what you thought was an infection, could well be a big die-off caused by that other infection............Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

I know it’s taken weeks for my brain to wake up, but i’m now sure this is die-off too and my symptoms are porphyria, i realised this morning that i first knew something was wrong when my pee started to smell like 20 Woodbines, and i haven’t smoked for years!

i:ll double up on the recommended supplements!

thanks Sarah

I think i’m understanding this incorrectly!  Can die-off lead to porphyria?  I’ve never been able to get my head around the Heme pathway, i still can’t, but, i think, porphyria has been genetically passed to me, my grandma was born in 1892 and, all her life, was regularly hospitalised with Iron and pernicious anaemias, my Dad was diagnosed in his 90’s and my sister is still struggling, in her 80’s. I was the surprise, much younger child, so have the benefit and arrogances of modern health tests and treatments. I say arrogances because, it seems to me, if a test shows as negative, you don’t have it and symptoms are inconsequential!  That’s why it took so long for my diagnosis, i had MS symptoms and a consultant who demanded to be told who the doctor was, him or me?  There was no problem with my sight, apparently! I had to go to a specialist eye hospital to get optic neuritis confirmed!  Anyway, it may be interesting, but I no longer believe it’s important to know where our faulty genes began, it’s just important, for us anyway, that the world contains people like David Wheldon and Charles  Stratton.

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Darren, since you say that a drink of alllicin is the equivalent of swallowing a few hundred cloves of garlic, but without the smell, is there any taste?  The taste but without the overwhelming smell could be very useful!.................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

TBH Sarah there is a taste but what I do is mix 5ml of it in a glass of juice and you wouldn’t taste it at all.

i have even tested it on my wife without here knowing and she didn’t realise there was allicin in it.

hope that helps

D

The Greatest Risk of all is Not taking the Risk...

Oh Darren, I asked about the taste because that is what I like!   Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Me too Sarah! Although my husband complains! But, it’s probably worth it!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hi again Jane!

OK, we have touched on the subject of cranberry and other stuff. I have seen that touted many times, so there must be something in it. However, of the few women that I've known to have this problem, I don't recall any actually saying that cranberry did any good.

Back in the late nineties and the early naughties, I was with a quite naughty bint that did get cystitis. We were both into aromatherapy. I recall being away on holiday with her in West Wales. She was is quite some pain and discomfort. She told me that the only thing that'd work would be juniper berry essential oil. I popped into Cardigan and was lucky enough to find some. We both knew that it is nearly always advised that essential oils should not be ingested. She seemed to know what she was doing with it. She took four drops on the first session. I thought no more of it but the next day it was gone.

http://curingchronic.com/curing-chronic-cystitis-with-uva-ursi-and-juni…

As I say, I personally never ingest essential oils (well I suppose I do when I take my oregano capsules ... But I think that they are diluted at 10:1). It is just something that may be worth you looking into.

Either way, I do hope that you soon find relief.

Innocent

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

SG, you seem to be pursued by bints, they’re around ever such a lot!  The herbalist did give me drops,of which juniper was the main ingredient, i took 160 drops per day.  I’m not prone to cystitis and think this may be porphyria, i’ll test on Monday!

thanks for this,

Jane 

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hey MacK ...

Just point me to that "Delete entire post button". Better still, use your amazingly sharp sense to wipe out the remnants of that previously duplicated post ... and any other now redundant posts of mine (including this).

Wink

You are a treasure!

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Hey SG,

you know the crap choices, we laugh or we cry, so let’s laugh at our own fraities! At least if you can’t run, those ‘bints’ will catch you! There’s always a bright side! But, when you can’t see it, we are all here  to help, in whatever way we can. Just as you help me, and others.

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane ...

Smile

It sounds to me like your herbalist is a knowledgeable person. If (s)he is on the right track, then hopefully soon you will see some dividends paid. Every avenue is worth a try.

Innocent

I wish everybody well and I certainly want everybody to be pain free. Whether you are afflicted with porphyria, die-off, inflammation or some other ... I just hope you get well.

Undecided

I am not from a wealthy family and have never stood to inherit much. I am glad that my inheritance has never included porphyria.

Money Mouth

MS is a nasty enough illness. It's gradually eats away at everything. In terms of "Pursued", I can no longer run ... though I still frequently joke about walking the Coastal Path. Anyone seeing me on my two sticks or in my power wheelchair would realise that any talk of Coastal Path is but a joke. A joke when I have banter with or about bints too. To laugh is to live.

Tongue Out

Anyway, I will be very interested to learn what the answer was to your current issue. You will get there.

Cool

Good luck!

Smile

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Hi Luckypenny,

i’a never heard of it befoe, but i’ve looked it up now and it sounds really interesting and worth looking in to! 

Thank you for the tip!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

I seem to be better with high doses of vitamin c and Methyl cobalamin! seems it wasn’t a uti after all! Sorry guys and thanks for all the advice!  Or, maybe, it was a uti and you helped it get better! Thank you!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro