Hi everyone - I just wanted to check in and let you know I'm stll working at this! Here's what I've done with the Flagyl so far:
Pulse 1 – 3/28 (one tablet)
Pulse 2 – 4/18 & 4/19 (1 tablet per day for 2 days)
Pulse 3 – 5/9 to 5/11 (1 tablet per day for 3 days)
Pulse 4 – 6/1 to 6/4 (1 tablet per day for 4 days)
Nothing really noticeable so far that I can put down to the Flagyl. I’ve been very, very fatigued. I’ve been very sleepy during the daytime. I feel as though I could sleep around the clock with short periods of being awake. I manage to get through things when I need to. I’m getting through work but not feeling well at all when I’m there. I’ve had more headaches again. I get stomach pain during the first week following the pulse. Also, my upper respiratory symptoms increase during that week. After that, I just feel totally drained, weak, exhausted, and in overall pain. It gets slightly better, then it’s time to go again.
I saw my CFS doctor in May. He’s “not impressed” with the CAP, but he agreed to continue prescribing. I guess he thinks people get better fast using this. He said I'm his only patient using the CAP, and I'm basically on my own - my own doctor. Then I had to pay him. He thought I was taking an awful lot of supplements, too. He gave me information on a simplified methylation protocol developed by Rich VanKonynenburg that I’m also giving a try right now. It can also cause detox, so I may be setting myself up for some rough times. I’ll just have to continue to take it slowly and see how it goes.
I’ve been having a lot of trouble with GERD. I decided I needed to stop using Nexium. My acupuncturist suggested betaine, and I was having some success, then I got a different brand, and things went all bad. I’m still trying to figure out how to live without Nexium.
I plan to do a better job on the anti-porphyria measures in the next couple of weeks. Also, I need to do some traveling, so my next pulse will be delayed a bit. I’ve been taking the pulses every three weeks, and maybe that’s pushing it a bit too hard anyway. I think I need to give my body some time to get some of the toxins flushed out. The next pulse will be a full five days, but at only one tablet per day.
I realize this is a pretty dull post, but I just wanted to get on the record what I've been doing so far, if only for my own future reference. I hope I didn't put everyone to sleep! Then again, sleep isn't such a bad thing, is it?