Here’s the SHORT summary of my long (as usual), but overdue update. For the LONG blog and more details, just keep reading below:
Summary:I finally achieved maximum dose for DOXY and BIAXIN (Macrolide) over a month (or two?) ago. (I have the date written down somewhere.)My reactions are less intense now, and further apart, but I still have them even though I have never started flagyl, and they seem to follow a similar pattern.I’m going to do some pyruvate next. I’m going to start flagyl against my doctor’s advice. (He wants me to pulse rifampin instead.)I don’t know where I’m going to get my next flagyl rx.I’m a little scared to start flagyl. I’m a little thankful for this web site and to have options.I’m a little confused (see rest of blog if you are wondering about what)I am NOT suggesting in any way for anyone else to do something that they have not been advised to do by their doctor. I am not even suggesting that I do it!Did I say I’m a little scared to start flagyl?But it just seems like the right thing to do, you know.
Somewhat related (Good News and Bad News) I went to a third world country a couple months ago and DID NOT
My older sister, who also tested positive for CPn once, is in the hospital for her heart, and now has tested negative for CPn. To me, one positive test would be enough. Fortunately, she has a doctor who trained at Vanderbilt, who supposedly knows Stratton, and is considering CPn, but he is not certain that is the main culprit or the only culprit, and is looking at all possible problems first before deciding what to do. The problem is that he’s only temporarily assigned to her area, I don’t know how seriously he takes CPn, and I don’t know what
The rest of the story:I saw my doc a couple months ago. My goal was to get flagyl. He once again insisted I not take it. Wanted me to take pyruvate and rifampin instead, pulsing rifampin, then start pulsing all my abx. I like my doc a lot, but do not want to take rifampin next (maybe later), and fearful to pulse anything but flagyl. The reason he does not want me to take flagyl is "that it makes everybody he gives it to sick and causes liver stuff". Now, normally I can "dig" his reasons (can't think of another way to say it-must be stuck in the 70's tonight!) but this just doesn't add up to a good reason to me. I thought flagyl was supposed to make one sick, and getting sick is a good thing, well, within reason, of course. And if it gave everyone liver stuff, why do some of you who take it have less and less reactions as time passes (of course, not ignoring those of you who actually did get liver stuff)
And I thought some of you said DO NOT PULSE RIFAMPIN! Yes, I was listening! (Someone also said don't pulse anything else but flagyl, I think). But my alternative doctor likes to PULSE EVERYTHING.And the doctor who lives in my neighborhood, who is definitely a "think INSIDE the box" kind of doctor, and who seems to think of this
I've been on
Well, that should cover it. Any comments of enlightenment or encouragement are always greatly appreciated.
I continue to feel surrounded by more and more people with ms, inflammation, fibro, heart problems, rosacia (again, spelling unk), etc. who pretty much ignore me when I try to give out this web site and info. Amazingly, I did have one person finally take it seriously and asked me to walk her through the web site. I hope she is finding some answers here. I’ll have to follow up sometime.