The week prior to the pulse was an improvement in terms of walking, with more flexibility in my joints and thus stride. Unfortunately there was no decrease in the general level of fatigue- but I expected that.
The pulse itself passed with no really major upsets. I increased the dose by 1 tab per day over the dosage of the last pulse, which means the next pulse will be at the max dose.
This time the negative side of the pulse was a quite nasty pain in my left knee which I treated with Ibruprofen, this kept it under control. I can't understand why I should have pain here since I never had any injury or trouble with the knee.
It is now a week since the end of the pulse and things are improving again. Walking has become more fluid and the pain in my knee is subsiding and no longer wakes me in the night. The recovery this time has been faster and I believe it's because I have been putting even more effort into the anti-porphyriai measures.
It's a short entry this time because there isn't really anything radical to report and you could say that is a good thing, so I'm crossing my fingers and hoping for no upsets. Onward to pulse 4.
Robert - MS for 16yrs. CAPi since Jul 07, NAC 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 3rd pulse.
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 10th pulse.
Robert, sounds good.
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Yes! Thanks for the good
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I'm glad the ibuprofen
I'm glad the ibuprofen helped with the knee pain.. wow, it seems that we have had a couple of good reports from different folks in the last day or two...
Mphs, TN. CFSi, hypoT (Hashi), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpni, myco, EBVi, CMV. on NACi 3600mg, doxyi 100-2xday, azith 250 m/w/f/sun,
estriol, progesterone, synthroid, and pulsing w/flagyli.___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni, myco, EBVi, CMV. Capi began in 6/07. NACi 2400mg, doxyi 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli pulses
That's the spirit
That's the spirit Robert. You do it because you know it makes sense and 'never mind' about the pain. Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006