Three Cheers for...

Just wanted to give a shout out and THREE CHEERS FOR MICHELE ! 

Sure other's have noticed how much effort Michele has put in to organizing the materials on the site, the book pages and the sheer volume of information she is managing.   Doing so to help all of the new site visitors get the best start with information, ideas and solutions !

Michele - I always marvel at you!  Not only do you look after your own family and deal with their illnesses, but you manage your own illness and help so very many people here!  

Can't tell you how many times your advice and comments have helped me.

SO CHEERS TO YOU MICHELE !    WELL DONE!

Ditto on kudos to Michele!  Dear friend, you are warm, generous, and amazing. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Go Michele! You do do an amazing job! Thank you very much blessings marie On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxyi 200, Azith 3x week, Tinii cont. since April '07, all supplementsi. "Color out side the lines!"

On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

 

Are we making her blush?  I go along with all of the above, but hope she has the time and inspiration to do some more artwork soon...........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Words cannot even describe all that she does/is doing for us :-) Beautiful pic of her can be found in the user list beside her name...

Very much appreciated, Michèle!! Many thanks for all you do. The work you and many others do here is changing my life.

Corinna 

--

May 2008. NACx1200mg, D3x2000mg, B12x1000mcg. Allergies, chronic inflamation, eczema, long-term steroid use, sinusitis/cysts, BL/TN, FM, CF, arthritis, rosaceai.

Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Yes indeed.   Thanks so much, Michele...

On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

Treatment for Rosaceai

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

 I hope you all understand what a mission this is for Michele. She and I have been talking about rewriting the Handbook for quite a while, but other projects ensued like life and work! With the influx of lots of new people, all of whom get a personal contact from her to guide them onto the site, she really got galvanized on generating the First Steps (it's coming name) handbook and guide, and now is working away at the Second Steps. I've been designing a new site layout to present a much clearer front page (home page) for new arrivals, and an easier management of navigation, and I'm guided by Michele's vision about what new folks need to see as she has the real touch and dedication to this issue. She's been the "managing partner" here in growing ways and I'm very, very grateful for her presence and work here.

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 300mg BIDi Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

THANKS VERY MUCH MICHELE AND JIM FOR ALL THE WORK YOU DO!!

Maria

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acidi.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Thanks so much! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Thank you for everything you do Michele... :)!!! 

 

Jeanneroz ~CPN diagnosed & started protocol  4/2007, also HV6, EBVi.  CFIDSi/FM diagnosed: 6/07; 200 mg/doxyi/day~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. 2nd Tini pulse 5/24/08: 1-250 mg 4 days,supplmnts

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

again, Thank you very much Michele, Jim K & bleu & others, you know who you are.  Without you all this site would never have happened.

 God Bless

CFIDSi/ME 26yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Oh shucks...  (blush-blush-blush)

I marvel at the depth of knowledge, humour, imagination and resources that all of you bring to this site.   My strengths lie else where, mostly in digesting and regurgitating material, a bit like a mother bird... So that is what I am doing.   It's taken me a while to know that I could and to have the courage to change things that, after all, have worked well for three years, but eventually I was pushed into it, not only by my own exasperation at constantly repeating myself but also at everyone elses frustrations.

In my life I'm always looking for ways of saving time, making things more efficient to allow myself dreaming time, creating time, and fun time, so in the end this is what prompted me to do what I did with the handbooks.  

Please do not hesitate to suggest things, proof read, point out errors of content or science.   I will change any real discrepencies, but reserve the right to spell in the Queen's English.  

I'm still interested in hearing about changes you would like to see, information you would like to read or how we could organise the more technical or scientific material.

I could not have done this without Jim's encouragement and discussions on content and guiding phylosophical principles.   In second steps most of the material will have been written by Jim and other people (Marie, Cypriane, Red, Sarah and others), I'm just drawing it all together in a sequential order.

And yes I have had time for creative stuff.  I've taken part in the Brighton Festival of Arts,  every May there is an extensive programme of theatre, dance, music in all shapes and sizes as well as a collection of 'open houses', where artist open up their homes to the public to show their and other invited artists' work.   I was in several venues and had my most successful selling May in 3 years.   Most due to the fact that I have done some work this year... I'll post a couple of images shortly to show you some of the things I have sold.   

How do I find the time?   I let Hamish do the house work... He seems to enjoy it and I loath it.   I am more the head under the 'hood' (bonnet of a car) kind of woman, I fix things that break, solve problems, design things, tell others what to do in the garden (much more fun than doing it yourself), listen to people's problems, try and keep a rational frame of mind, solve problems, solve problems (did I say solve problems?).   You get the picture.    

Thanks for your appreciation, I'll just keep busying myself in the background while all of you come up with new material for me to organise and categorise.    

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Michele, you have done a fantastic job of gathering in many of our suggestions and creating lucid manifestations of the concepts that are so important for working with CAPs.   You may even hae more time now to express more creativity and have a huge amount of work to share next May.  Will be looking forward to your sharing of the next Festival.    I wish someone here would enjoy the housework Wink.

Louise USA.CFSi.CPn Positive.BbPositive.WheldonCAP6/24/07.NACi,Doxyi,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

yes, three cheers Michele! Smile

 

M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.

M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.  Changed to Tinii in December 2008.  Stopped CAPi in February 2009 at pulse 16.

Yes, thank you very much.

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Though I am still flagyllized and was planning to wait till I am out of the water, so to speak, I have to add my thanks, Michele. Your last post clarified bits for me: Richard does the grocery and other shopping, straightens things up (which I am REALLY no good at) and gets a long list of essentials done while I am still standing looking lost. I am better at one big job - build a barn, repair a fence, etc. All this is a bewildered look at what you and "others" have done to update and reorganize. Dear mother of Ella, who would long ago have been lost without you, thanks to you.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 51 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.