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Thisisms denial of death from ms?

Submitted by Arttile on Wed, 2008-08-27 12:10

Wasn't there a brouhaha a few months ago on "thisisms" over someone mentioning death by ms? A strange denial, it seemed to me. Thought this obit might be of interest. Perhaps it should be posted there.

http://www.washingtonpost.com/wp-dyn/content/article/2008/08/25/AR2008082502418.html 

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Submitted by Minai on Wed, 2008-08-27 13:13.

Wow! That obit is an excellent example!

HERE is a link to that brouhaha that took place. Not on ThisIsMS, but on neurotalk.psychcentral. People were banned for even suggesting that one can die from MS.

 

--Minai

 

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA
Submitted by speedbird on Wed, 2008-08-27 18:34.
This is an easier link to the obituary  - notice the Google ads next to it - all about wills and making wills! Talk about ambulance chasing Frown

Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Now Tinii. Pulses #52...I can because I think I can.

Submitted by MacKintosh on Wed, 2008-08-27 23:34.
Nancy, You were right about TIMS. I was the one who stated my high school boyfriend's dad died of MS and someone challenged me. I responded quite confidently and was duly chastised for it. I find it ludicrous that a big strapping man, in his early sixties, who had deteriorated into a fetal ball of uncomprehending flesh, could be described as dying from lung failure. Multiple sclerosis caused his symptoms. He didn't die from his symptoms; he died from the CAUSE of his symptoms. The cause being MS.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Submitted by Sarah on Thu, 2008-08-28 09:38.

Gotta be quick because I am doing this on DW’s computer while  he is out, still being without broadband myself.   

These sort of brouhahas crop up all over the place, especially on MSi sites, if you mention death from MS.  Most recently it cropped up in the latest edition of New Pathways magazine, where my article was cropped out of all existence, partly because of a big apology that had to be made by the editor for a piece by Alasdair Coles, one of the Campath neuros, who had written in the previous edition something about life expectancy to which people took great exception.  Then a piece had to be put in about the same editor, long time MS sufferer but still fairly mobile. who had at the age of 60, had a flying lesson.   

Christina Wise-Mohr died at 59, being forced to retire a few years earlier.  Hardly a normal life expectancy in this day and age.  Whether the final cause of death was a pneumonia. a UTIi or something else, the obituarist was very brave to say that she died from multiple sclerosis.  Also very correct..........Sarah   

Alive and kicking five years on, thanks to Stratton, Sriram and DW 
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Submitted by Louise on Thu, 2008-08-28 10:20.

Sarah, I have known people who have written their own obits which I applaud.  Perhaps she did minus the date, location etc.  

Hm, gives me cause to consider of course my life is not of such record yet!Wink

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
Submitted by Arttile on Thu, 2008-08-28 12:44.

Louise, we are NOT going to die of MSi. People do. We won't.

Nancy 

PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe Lyme. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 - Now  doing 100 doxyi; 125mg. azith; substituting acupuncture for pulsing.

Submitted by Louise on Thu, 2008-08-28 13:39.

True Nancy, I am just considering what is ahead of me.  And that I certainly wouldn't want someone writing mine, sharing from their perspective, what to mention when I am 100+ years!   Hope you have something to look forward to over the long holiday weekend!

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
Submitted by cypriane on Thu, 2008-08-28 16:43.
I just applied for life insurance on myself, because I fear Steve might outlive me and need to replace my income.  All things considered, except for the MSi, he's healthier.  Best case scenario---when we're done with the CAPi, we'll both be very healthy people with life insurance.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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