24/7 party: BYO Meyelin

Submitted by Arttile on Sun, 2014-11-16 22:35

'Bring your own' or 'brew your own'?   I didn't see this yesterday Nancy: I don't know what to think yet!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I hate it, right now.

 

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Nancy, are those Lyme spirochetes? Nasty buggers be gone. I wish I could nuke them from the planet!

Julie

MS: First sx '93 dx '09 no obvious relapses just steady decline since '07. Crippling fatigue, too weak to sit up for extended periods of time. Cane/walkers/electric chair inside, helicopter outside. 

Started protocol 11/16/13.  1200mg N

Yup, they are, superimposed on a cpn biofilm. Ugly, ain't it. i'm feeling pretty hopeless. Everything, the simplest movements, is so difficult. And the state of Md. is determned to never let me drive again.

 

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

But Nancy, C pn doesn't have anything to do with biofilms, being intracellular.

Incidentally, if Maryland doesn't want to let you driv again: be thankful because you will have to have someone else do the driving so you are left free to watch all that is going on around you...........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

OK, my mistake. But the image is taken from our site.

And who, pray tell, will do the driving? My chauffeur?

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

That I don't know but if it does, she could always change the title! No, the title doesn't say anything about biofilms, so no need.................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

What, of cpn biofilms?  No, it must be an error because there is no such thing.

As for drivng, I won't drive because some of my relapses involved blacking out: if I blacked out again whilst driving I might kill someone.

If your every move is difficult you shouldn't be driving either: an encouragement for you to get better.  Try going by taxi.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, I cannot walk but my driving is terrific. At this point there is no reason I should not drive.

 

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Oh, right, so you obviously are not like the man down the road, who everytime he drove out of his driveway, banged into the house opposite: well it was a narrow lane.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.