The disappearing lesion

Submitted by katman on Tue, 2008-10-21 14:29

Since the early seventies, I have been able to make my body go numb. The first times I fell because I didn't know what was coming. I have been able to do this at will for many years, but took care not to fall down. Fortunately, the feeling always returned.

As stubbornness is the nature of us on this site, I have only listened to Richard in the last six or so months when he admonished me not to do that! I can also dislocate my hip but he says not to do that either! (Takes all the fun out of life - no?) (No)

So - what IS the point - simply put: the ability is gone. I cannot do it anymore AT ALL. Not even a tingle and certainly no numbness. Yes, the quiet improvements continue - and the energy is very, very nearly back to my norm or 55 years. Keep at it - it pays.

Years later, one of my six MRIs picked up a lesion in my neck the only MRI to go down far enough, and caused many pieces of evidence to come together. One of those is, of course, that, at least in my opinion, PPMS is a flimsy label seized upon by frantic neuros looking for answers to our slippery presentations. I bet that most if not all PPMS patients can find other symptoms of much older disease whan they get their minds back and get tuned in - as this site can do.

Rica, very glad you continiue to see improvment!

Glad it pays!

Thanks for posting!

Best Wishes from Maria

Cpn since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid.All classic cpn,porphyria and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NAC, high vitamin D3. CAP for over 3 years. Back to work and life

Rica           

I hesitate to ask, but is this the case of a magic lesion?  I mean, would it be possible that there's more then one of those floating around?  I think I may know of one or two others, at least, I hope they disappear Image removed.  lol

In all seriousness, I'm glad you've stuck around to demonstrate the efficacy of the CAP.  Many thanks for everything you've done!

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day

The ones in my head will never be forgotten, though I may not know if they are magic, because I can think pretty clearly, enough to know I will never again volunteer for an MRI. But I can't feel the one in my neck at all. That pleases me greatly - to me it is clear proof that the shrinkage of the lesions in my last MRI was no illusion.

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Red

I'm so glad to hear about your progress, Rica.   Congratulations!!!  

Seems we've had a rash of good or even great reports lately.   Keep them coming all!

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Rica, I am done with MRI's too unless it comes down to convincing doctors that this protocol works. I recently met a women who roomed with my neuros sister in college. She had 10+ years of sickness, Chrons, surgeries, wheelchair.... She was treated with abx for 7 years and now she is water skiing. Small world

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Wiggy, Statements like this only make me more amazed at the courage of those brave doctors who are putting their necks on the block and treating us "against traditional practice". It bothers me to the point of losing sleep. I am (I repeat) like those dolls who are laid back and the eyes fall shut. There is a rottenness at the core of specialists who refuse to believe that MS and other neurological diseases can and be caused and are caused by a bug. It's hard to believe they could make it through med school if they're so dumb.

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

We know the truth behind it. The real problem is the fact we are dealing with "political disease". It is very clearly explained in "Under our skin" movie.  There is a great pharmaceutical lobby, and this what we are confronting them with is the potential  bancrupcy of many subsidiaries manufacturing medications designed to treat symptoms, not the cause!. I would not expect any serious attitude based on the understanding and support from any administration on this planet. There might be a one exception: Maybe CUBA could support us in this fight. 

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Cuba, you are kidding right.

The only person there who has money is Fidel himself.  When the revolution began he told the people everyone would be equal, one class.....he just forgot to mention everyone would be dirt poor!

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Rica, this is great news... I'm going to copy and paste it to Ella, she is really in a very down place at the moment and talking like she was when she was in hospital.   I know it is all drama and that in a couple of days she will see that things are not as bad as they seemed today.   But a message of hope and achievement like yours will give her a bit of perspective again.Thanks you for sharing this and giving me some amunition.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

I am very happy for you Rica & so glad you aren't dislocating & numbing anymore!

Keep up the good work.  In a few days I will be 52 & really would just like to have the energy of a 52 yr old- whatever that is.  All things in good time though.  I plod along & am counting the sleeps to AZ.

weeeeeeeeeeeeee

Happy New Year

 

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

It is quite interesting when "old posts" get commented on and bring just the needed help to someone's situation.  I always check the date on posts, guess I need to keep myself oriented..... to time, date, place and the name of the current president, otherwise some provider some time will find me to be disoriented. So is disoriented just advanced brainfog I muse.   So much to muse.   Happy New Year, Thursday, January, 1, 2009, 11:07 AM Eastern Standard Time.    Louise
  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Of course I am kidding..

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months