This is in response to B3Betters post about what tests to consider. These are tests I've had done on me. I've suggested Focus labs, and they run the HHV-6 IgGi IFA that Dr. Montoya at Stanford uses...and you can find info about his work at the HHV-6 website (posted below).
Even if you have been diagnosed with Cpni (as I have due to my high IgG and IgA antibody titers); it is good to run many of the tests listed below, as it is possible to have more than one pathogen causing your problems.
And if viruses are part of your problem, all the antibioticsi in the world won't help you feel better.
Best, Timaca
If you have been ill with various multi-systemic symptoms and the doctors have run many tests on you and cannot figure out what is wrong, then consider getting these tests done.
Focus Diagnostics Lab:
http://www.focusdx.com/focus/1-reference_laboratory/index.asp
40540 HHV-6
2420 EBVi Panel
40543 HHV-7
41380 Parvovirus
41025 VZV
2385 CMV
40525 HSVi 1/2 ELISA
2075 Enterovirus Panel
40735 Mycoplasma Pnumonia
23000 Chlamydia Serologies
40795 Q Fever
40205 Brucella
40881 Bartonella
40678 Lyme C6 peptide
2034 Lyme IgG and IgM western blot
Tick borne disease tests (Q-Fever through Lyme tests) can also be run at
Igenex: www.igenex.com and
SUNY Stonybrook: http://www.path.sunysb.edu/labs/ticklab/TICKLAB.htm
Getting tested at Focus Diagnostics Lab can be a bit of a problem, unless your doctor has signed up for an account with them. Here’s some links as to how to get the testing done. These links are at the HHV-6 website, and you must sign in to view the posts.
http://hhv6foundation.proboards101.com/index.cgi?board=testing&action=display&thread=26
http://hhv6foundation.proboards101.com/index.cgi?board=testing&action=display&thread=134
For info on
Lyme disease: www.ILADS.org; www.lymediseaseassociation.org
HHV-6 and EBV: www.hhv-6foundation.org
Chlamydia Pneumonia: www.cpnhelp.org
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Diagnosed with lyme disease 3/05. Diagnosed with chronic HHV-6, EBVi, VZV, and HSV1 6/07. Diagnosed with CPni 5/08. On antibioticsi for 2+ years, Valcyte (antiviral drug) for 9 months. Currently on 100 mg doxyii bid for Cpn and acyclovir for viruses.
No words to thakn you for
No words to thakn you for this, it was what i was looking for sooo much!!!
God bless you
maria
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God bless you all.
MariaPatri - living in a rollercoaster! (In Orlando, Fl).
Thyroiditis, sinus infection, heart, muscles and joints.
Timaca, Just a word to
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Glad to be of help Maria
Glad to be of help Maria and Mackintosh. Of course, it was your helpfulness at Lymenet that encouraged me to post here, Mackintosh. Thanks.
Yes, I will be sticking around here until I get well....
Mackintosh, you had mentioned on Dings thread about a Dr. Michael Powell in Sacramento...and there have been other posts that he and Dr. Montoya have been in touch...
Who is Dr. Powell? What is his role in Cpni?
Thanks for everyone's support.
Timaca
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Diagnosed with lyme disease 3/05. Diagnosed with chronic HHV-6, EBVi, VZV, and HSV1 6/07. Diagnosed with CPni 5/08. On antibioticsi for 2+ years, Valcyte (antiviral drug) for 9 months. Currently on 100 mg doxyi bid for Cpn and acyclovir for viruses.