Testing, Doctors and self treating

Forgive me if this information is covered somewhere else but I have not been able to find it. I have CFS/ME/Fibro and am desperate to find somewhere to get tested for mycoplasma and someone to treat me.

I can not find a clinic in the UK where Dr Wheldon works. Does he only treat MS patients? Does he have a contact email? Does he recommend other practitioners?

Can anyone tell me how I can get testing done in Europe? I am from the UK but live in Switzerland. I am soon to be moving to Belgium!

If people can not find a Doctor to help them, do you self treat?

It feels like there is a carrot being dangled in front of me that I can't reach.

I already have to self treat for heavy metal poisoning but it would be so nice to have a bit of help.

Thank you


Kittykins - Welcome !  

Know it can be frustrating when you first learn of this treatment and want to get started. 

Re: Dr. Wheldon - believe he only sees MS patients

Re:  Finding Doctor - Michele will be along shortly and will send you a private message (PM) to let you know of any other physicians in the areas you mention

Re:  Self-Treating - Many here start out looking for a doctor first (this is highly advisible).  You can download literature here and take it to you local General Practioner and see if you can convince them to prescribe for you.  At the begining of CAP and throughout the CAP it is advisible to get your blood laboratories done - particularily liver function tests and white blood cell counts.

Some here do get desperate after being shot down by several physicians and attempt to self treat (not advisible but highly understandable).

Best to make several tries at getting a qualified doctor to prescribe for you !

Daisy - Husband on CAP 5/07.   Roxy, Diflucan, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxy, Azithromycin, Flagyl, Mino

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Ive been shot down by multiple doctors as well. I am now self treating and it is well worth it. I wish you the best in getting a doc to treat you but dont wait too long. cpn can get worse with time.

Fibro, CFS,  Myco, CPN, Stratton protocol, Zithro 500mg M/W/F/S, Doxy 100mg 2x day, NAC 1200mg 2x day, Flagyl and INH 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day,  Still cant shake it but improving.

Kittykins, I second Daisy's reply. Start by learning as much as you can about the CAP process and keep looking for a supportive provider.  Another suggestion is to start a blog for personal feedback and folks will begin to know you and your situation better. 

Wecome, Louise

CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NAC,Doxy, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxin Die-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support