Testing for CPN

Submitted by clivepowney on Mon, 2009-05-11 07:01

I am looking for a bit of advice. My wife has been diagnosed with reactive arthritis and there has been some recent publications linking this potentially to CPN.

She is open minded about this and we were wondering if there are any good labs to get some tests done to see her level of infection (if any). or is there other tests she should have. She has been back and forth with the NHS for 5 yeras but don't semm to be getting anywhere.

I am currnetly under Dr AW in the UK being treated for CPN (CFS) , so there is much potential for the bacteria to be causing her issues.

 

regards

 

Clive

Knowing what I do today, if I had that diagnosis, I would begin Vit D, all supplements, and almost certainly the abx regimen. All the supplements do good for us, and as my husband, a pediatrician, said as soon as my sister found the Stratton protocol and David Wheldon's writings, that these are NOT dangerous drugs and "it might work". It certainly has for me.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Clive,

My diagnosis was Primary Progressive Multiple Sclerosis, and my history in a nutshell is contained in my signature, which is below each of my comments. It is also, along with several - now more as we go through time - in the Patient Stories at the top and, of course, in the blogs of each of those patients. Someday, I hope, it will be realized that most of these diseases (if not all) are caused by a bug - and most likely cpn.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Clive.. you may find this interesting reading.  http://www.cpnhelp.org/chlamydia_pneumoniaea_new

I am in the US... hopefully, someone in the UK can give you advice on possible testing.  But then, testing can also give you a false negative.  There is quite a bit of information to read here on the site about the pro's and con's of testing for CPN.  Many people treat empirically. 

I developed RA after starting the protocol... I never had any RA issues before I started treatment.  (The antibiotics targeting the bacteria triggered it.)  It has gotten better but I still occasionally have issues with one knee, my hips and sacroilliac.  Definitely have your wife take the supplements Rica (and the site) recommends. :)

There's a wealth of information and help here on CPN.

 

JeanneRoz

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni