27 Apr 2018

Template for history and progress


I think it would be so helpful if there were an individual page template for each person that we could click on thier link where we can see the following for one another to acess. A treatment history page. I know we can input this stuff on our profile but there is no template and maybe people dont think about it.


This seems like a very good idea and would need to be kept up to date. Would it not be an idea to add in at the end (or alongside the treatment maybe) a progress/lack of progress short sentence?

I agree clive. A comment about any improvement opn the protocol would also be helpful. Maybe also a commment after why we switched to each new antibiotic group.

eg-  why did you change your protocol antibiotics?

Reasons might be because it stopped working,  getting less effect recently, trial and error of other abx, a bladder or other infection requiring other treatment, docters suggestion w unknown reason,  on a specific timeline where change was required.


Clammed, here is my last indepth blog which is much like what you are suggesting.   You may have been off line much of the time at about the time I posted it.  http://www.cpnhelp.org/cap_adjunct_treatment_upd

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Thanks louise, I just checked it out. I think it would be great if everyone did this too. I think Im going to get on LDN. Its a drug so at least its covered $. Im wondering if I could have better tolerated minocin if i was on LDN. It seems that those on LDN have less issues with inflamtion. Im glad you are doing well anyway. As for me, Im ok, I get to a certain level of wellness and then cant get beyond it for some reason. However, its a functionable level of wellness so Im not complaining.