Website problems- so sorry!

Submitted by Jim K on Wed, 2013-07-31 21:47

Hi to all Cpner's-Our server went down for puzzling but solvable reasons. And, to all you early adopters of, no it wasn't me and flagyl!Three cheers for our developer Kent for resolving the problem! He's in New Zealand, and the time difference can actually be helpful when problems happen in US time zone "after hours."We have also been struggling with an onslaught of spam bots causing a lot of behind the scenes havoc. While our spam blockers have kept most spam out of the site, these bots were trying to register as site users at machine speed: multiple times per minute for 24 hours a day!

Three Years and Counting

Submitted by Jim K on Sat, 2008-08-23 22:25

We are now three years old as a website and a community. I'm uncharacteristically at a loss for words. I am just utterly amazed at how far we have come, and how many people we have affected. Those of us who have been around over time know that many, many people have been helped. Far more people use the site than we see posting here.I won't review our starting and history, as these stories can be found in birthday editorials from prior years.First birthday Second birthday post

Majority of ME/CFS Patients Negatively Affected by Cognitive Behaviour Therapy?

Submitted by Jim K on Thu, 2008-06-05 22:34

Some of you, reading the article in the Handbook I wrote on CFS/ME & Cpn, know that I'm not a fan of Cognitive Behavior Therapy (CBT) for fibromyalgia and chronic fatigue/ME. I believe that what originally began as trying to provide better coping tools has been coopted by the medical establishment's tendency to blame the victims of disease for their own disease when medicine is impotent in helping these serious disorders. So, on seeing Dr. Teitelbaum's report of a study in the Netherlands exposing the harm created by CBT for CFS/ME patients, I had to bring it to our readers attention. Below Dr. Teitelbaum's summary and the link to his excerpt from the research report translated from the Dutch.

New Folks: help us out please?

Submitted by Jim K on Wed, 2008-04-23 23:33

New folks here to Cpnhelp, we need your help. This site is full of wonderful, generous folks, who are sick too, who spend a lot of time seeing to questions and making sure people get the help they need. We will do our best to help you through the confusion. I've seen few community websites like it. But for some miraculous reason we have had a huge influx of new people lately, and we are getting swamped, especially with having to answer the same questions over and over again with each new person posting. We are glad you've found us. We are a bit overwhelmed with the bounty.

Rules of the Road... a cautionary reminder

Submitted by Jim K on Wed, 2008-01-02 19:01

I've had a few questions and concerns raised lately about some of the recommendations made to people asking for help with protocols, treatment reactions, and other questions. This suggests it is time to restate some of the "rules of the road" here. Old-timers may drift in recalling the need for more cautious or measured tone, and newer members may not be familiar with the care we need in responding with our own impressions. We have a lot of new members here. This is great, as it means we are reaching more people. We also have a wider variety of illnesses and co-conditions being represented here than ever before. Some people may be using protocols which are different than typical CAP treatments, and there may be important reasons for those differences.

2 years 17 weeks Jim K Tue, 2007-12-25 00:17

2 years 17 weeksThe title of this editorial is how long has been in existence. I had planned on writing something intelligent and reflective, summing up what we’ve learned in this time, and offering an over-achiever’s commentary for the holiday. Blah, blah, blah.

Any Doctors in the house? Jim K Sat, 2007-06-02 19:56

It would appear that there are doctors out there willing to treat using a Combination Antibiotic Protocol. I know that some have been using this site as a resource and sent patients to us as well. A year ago when we tried to gather information about doc's willing to treat Cpn this way, we got no response. We chalked it up to the whole thing being too new and to professional caution. But maybe it's getting a bit more acceptable?

Thanks to all for your donations Jim K Wed, 2007-05-30 23:53

I want to thank everyone who has made a donation to recently, and to those who have encouraged donations. I haven't had time to give personal thanks to each donor lately, but am deeply appreciative that people value this site enough to help maintain it. You should all know that we really are doing fine and currently have more than enough to support any current website maintenance and upgrading. This community has been quietly and regularly helping out as we go along. It's quite amazing to me. Even a number of quiet "lurkers" who have not posted have shown their monetary appreciation. So don't feel pressured or worried, and give only if and when it suits.