Cpnhelp.org

Hi to all Cpner's-Our server went down for puzzling but solvable reasons. And, to all you early adopters of www.cpnhelp.org, no it wasn't me and flagyl!Three cheers for our developer Kent for resolving the problem! He's in New Zealand, and the time difference can actually be helpful when problems happen in US time zone "after hours."We have also been struggling with an onslaught of spam bots causing a lot of behind the scenes havoc. While our spam blockers have kept most spam out of the site, these bots were trying to register as site users at machine speed: multiple times per minute for 24 hours a day!

We are now three years old as a website and a community. I'm uncharacteristically at a loss for words. I am just utterly amazed at how far we have come, and how many people we have affected. Those of us who have been around over time know that many, many people have been helped. Far more people use the site than we see posting here.I won't review our starting and history, as these stories can be found in birthday editorials from prior years.First birthday http://www.cpnhelp.org/happy_birthday_cpnhelp Second birthday post http://www.cpnhelp.org/2_years_17_weeks

Some of you, reading the article in the Handbook I wrote on CFS/ME & Cpn, know that I'm not a fan of Cognitive Behavior Therapy (CBT) for fibromyalgia and chronic fatigue/ME. I believe that what originally began as trying to provide better coping tools has been coopted by the medical establishment's tendency to blame the victims of disease for their own disease when medicine is impotent in helping these serious disorders. So, on seeing Dr. Teitelbaum's report of a study in the Netherlands exposing the harm created by CBT for CFS/ME patients, I had to bring it to our readers attention. Below Dr. Teitelbaum's summary and the link to his excerpt from the research report translated from the Dutch.

I've had a few questions and concerns raised lately about some of the recommendations made to people asking for help with protocols, treatment reactions, and other questions. This suggests it is time to restate some of the "rules of the road" here. Old-timers may drift in recalling the need for more cautious or measured tone, and newer members may not be familiar with the care we need in responding with our own impressions. We have a lot of new members here. This is great, as it means we are reaching more people. We also have a wider variety of illnesses and co-conditions being represented here than ever before. Some people may be using protocols which are different than typical CAP treatments, and there may be important reasons for those differences.