This may sound somewhat superficial but effects me greatly. The only reason it really effects me is, I have always had problems with social phobia but was able to deal. When people would look at me, I would think the worse, can't really explain it. I think it all started when I had a bad bout of acne in my college yrs. It effected me greatly.

Then I was struck with this disease and it totally ruined my esteem.

I'm get anxious when I keep hearing 'are you tired, you look tired' which means you look like shit..

I lost a lot of facial muscle and fat and the cpnⁱ ruined my complexion to the point of wanting to hide indoors. I can't believe how self-conscience this is making me.

Addendum to my blog.  It's day 21 post pulse. I am depressed and sick and tired of being sick and tired.  I guess it's finally hit.  I only took 1- 250 mg of Tindamax for 2 days.  Nothing really happened until now.  I was experiencing pelvic/gut pain but kept writing it off to the pulse.  so I then went the route of gyn and  urologist which has led me to:

1) I have a bladder infection  -- was prescribed Nitrofurantoin 100 mg BIDⁱ. 

2) Per gyn - I  have BV and gyn wants me to use Clindesse -- I have not administered it yet as I am concerned I'll be on antibiotic overload and could possibly cause another pulse or yeasst.  I have no idea how it would interact with CPNⁱ.

Hi there,

Has anyone ever used enzymes and in particular Serrazimes to help clean up excess fibrin and inflammationⁱ and possibly endotoxinⁱ load?

Thanks!! 

Before i started the Capⁱ I was treated against chronic enterovirus (Dr.John Chia Protocoll) with Interferon Alpha, Interferon gammaⁱ and Ribavirin.

Since Interfereron gamma activates also the macrophages and the cleaning up system in your body , I am thinking of taking some of my interferon gamma , I still have som left in my fridge.

Anyone experienced Interferon gamma ?

Thanks and Greeings from Hamburg/Germany

Here on the CAPⁱ do we have anything in our arsenal to mediate or help lessen the the Cytokineⁱ/Chemokine storm?

I always have Benicar on hand (as does Jim K I have read) if things get out of control.  I just wonder if Stratton or Wheldon have really put any necessity behind this.

Some times when I herx the Cytokine storm can become overwhelming having me reach for a benzo which is somewhat known to help with cytokinesⁱ (per Cheney)

Any other suggestions or research done here on this?

Bacterial Endotoxinⁱ in Human disease

http://www.xoma.com/pdfs/kpmgendo.pdf 

Link in Handbook is disfunctional currently.

Is anyone else with Celiac Disease or knowledge of Celiac Disease a user on this website?

Over the past 3 days my walking has gotten progressively worse.  My right knee is so swollen and painful I can't bend or move it. When I walk I try to "make up" for my peg leg with my good leg... now my left leg is starting to give me pain.  I had a dr. appt and he seems to think it's bursitis.  My FM symptoms are also worsening... again this all started with the addition of Azith.  Katman, I know you said you had extreme joint pain/problems..... anyone else?

Actually, 6 months and 2 days... the 27th of September marked six months of my being on CAPⁱ.  As Ruth mentioned in a previous post about herself, I am no longer a newbie!  I am now reading posts of those coming on board, reflecting on my past experiences!  It's a strange feeling indeed -- firstly, to realize how many of us there are "out there".  It is wonderful that people are finding this website -- the word is getting out.

As I read of those coming on board it's a curiosity to gauge the different levels of tolerance the individuals have.  Some are able to ramp up on the meds quite quickly and others, like me, struggle to build up to each level.  I guess this is also indicative of our unique immuneⁱ systems and the CPNⁱ load each of us carries.