Personality changes in Multiple Sclerosis I first put up this page http://www.davidwheldon.co.uk/personality-change.html two years ago, but I have made substantial changes to it. Please feel free to comment. David
Our fellow traveler Cheryl Ferguson over at Road Back Foundation found this link and sent it over to me:http://news.bbc.co.uk/2/hi/health/7136088.stmSeems that antibiotics could be helpful in MS. Hmmm...
The same thing for MS CAP users. Please don't take the survey if you have not been diagnosed with MS, and only take once!http://www.cpnhelp.org/UCCASSv1.8.1/index.phpIt's #7 on the list.Results are public, and can be filtered to see responses of subsets of users. No personal identifying info is taken or required.Direct link to current results.
Dr Wheldon’s Combined Antibiotic Protocol (CAP)
“The Combined Antibiotic Protocol has enabled me to take up my life again and rebuild my hope for the future. It has started my recovery and halted my relapses.”
Ella Findlay, 28, was diagnosed with relapsing/remitting MS at 21 which soon got rapidly worse. She lives in Farnham, Surrey and works as a volunteer for two disability charities. She recently did a daredevil sky dive to raise money for the msrc. Ella’s mother, Michele Findlay, is an artist and retired teacher.
(Editors note: This is a report by Ella's mother Michele, a very active contributor to www.cpnhelp.org and user of the protocol herself. They began the CAP in the crisis of Ella's rapid deterioration and the change since then is quite remarkable though the story is far from over. It illustrates well the judicious use of steroids to manage inflammatory symptoms while slowly ramping up on the CAP. Most of us have followed Ella's progress with enthusiasm and bated breath. She's kind of become a mascot for many of us more "mature" types, symbolic of the restoration of vigorous life were this treatment started when we were younger! We will add to this update as her treatment progresses.)
Those of you who have read Marie Rhode's previous scientific review and discussion of the fault-lines in the existing autoimmune model in MS, and the arguments for infectious causes, especially Cpn, have appreciated the dedicated and rigorous analysis she has brought to the topic. Her discussion has made a real difference for people who have been given the standard medical schtick about MS as if it is fact, not theory.
(Editor: Karls rather rapid response to the CAP is not necessarily typical of MS patient response. Every patient's response is different. Karl was able to hit the Cpn infection hard and persistently and manage the die-off symptoms adequately in this process. Others must take it much more slowly. His story is inspiring for the persistance it took for him to get adequate treatment, and his thoughtful description of his experience.)
Rica-- known as katman in her www.cpnhelp.org membership, has been an intrepid user of the CAP for Chlamydia pneumoniae in treating multiple sclerosis, well before this website even existed. She finally put together her most impressive story of recovery and we are proud to present it here. You'll find this and more about her journey in her blogs on this site.Jim K, editor In the 28th month of relentless, daily treatment, I feel that I have earned the right to stand at the vantage point of a second or third tier trailblazer. I stand as Pancho to Don Quixote or Tonto to the Lone Ranger. There are a couple of operatic characters nibbling at my sub-conscious but you get the point. Now, I have a very real problem with sharing MY body with all the (bacterial) freeloaders who are doing just that. I am indignant - I have worked very hard for my place in life and the workplace and when I found that these nasty little devious creatures were stealing my life, I had to fight back. After spending much too much time in their immediate presence and on their level, I am leaving them behind.
Our dear friends and stalwart researcher/clinicians, David Wheldon and Charles Stratton, have published a superb editorial review of the evidence arguing against the autoimmune response as the causal factor in Multiple Sclerosis, and examining the evidence for Cpn involvement in said disease. This was evidently at the request of the journal's editor, who see's their thinking in this as worthy of wider review. Congratulations Dr. Wheldon and Dr. Stratton! A real coup to have this published in a peer reviewed medical journal.You can see Marie Rhodes commentary on this publication at http://www.thisisms.com/ftopicp-19094.htmlTrends Microbiol. 2006 Sep 21; [Epub ahead of print]Multiple sclerosis: an infectious syndrome involving Chlamydophila pneumoniae.Stratton CW, Wheldon DB.Department of Pathology, Vanderbilt University Medical Center, Nashville, TN 37232, USA.The concept of autoimmune myelinopathy as the primary pathology in multiple sclerosis (MS) is problematic. Vasculitis is seen in the MS brain, both within lesions and in adjacent normal-appearing white matter. The first observation in acute relapse is the sudden, orderly death of oligodendrocytes; inflammatory removal of unsupported myelin seems to be a secondary process. An alternative explanation for these findings is that oligodendrocyte infection might trigger an inflammatory response. Many pathogens, including Chlamydophila (Chlamydia) pneumoniae, have been associated with MS. MS might be an infectious syndrome in which C. pneumoniae has a role in a subset of patients. Mechanisms by which such a cryptic infection could engender relapsing-remitting and, ultimately, progressive disease patterns are discussed.PMID: 16996738 [PubMed - as supplied by publisher]
I am very excited to present the following article that summarizes Dr. Stratton's recent observations on Chlamydia pneumoniae infection. Putting it together has contributed greatly to my own understanding of Cpn as well as to my appreciation of Dr. Stratton's generosity with his time, and his great depth of knowledge of this area. Thanks to him for his contribution. Jim K Recent observations by Dr Recent observations by Dr. Charles Stratton on Chlamydia Pneumoniae (Cpn) Infection