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Multiple Sclerosis

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Day 59 / pulse 1

Submitted by dkep11 on Fri, 2009-07-03 23:36.

Multiple Sclerosis

I got impatient and started the Flagylⁱ last night. I felt like I was just marking time until I could start (I'm technically 2 days early)... it was supposed to be at 2 months and I started on the evening of my 58th day. Close enough! I was tolerating the other abXⁱ well... a lot of people report feeling sick/nauseous on Flagyl.

I'm a bit surprised body weight isn't considered in the dose... I weigh about 182, not a huge number, but it's 50% larger than a 120 pound woman - does that imply my dose should be 50% larger too? Or that hers should be 50% smaller? I'll ask my doc.

Most people with MSⁱ are women, and I would imagine a 120-pound gal with a sensitive stomach would be suffering much more...

Rebif

Submitted by Arttile on Wed, 2009-07-01 18:58.

I am trying to find out whether someone with rrmsⁱ can continue using rebif while on the Wheldon Protocol. The drug is listed as immunomodulatory rather than immunosuppressant. Anyone know the answer?

Thanks.

LDN books and Websites

Submitted by Louise on Tue, 2009-06-30 07:38.

LDNⁱ - I have been on this medication since Feb 17,2009 4 1/2 months now.

I have viewed the speakers whose talks from past LDN Conferences are

available on the internet,

the weblinks are posted here on the CPnHelp website for anyone who is interested and viewing them.

This spring I order several of the most recent books on the topic.

Clinical Trial in Canada

Submitted by Arttile on Mon, 2009-06-29 18:43.

Probably, by the time you have found your way to our site, it's too late to enter this clinical trial of minocylcine as they only want the recently afflicted. Nevertheless, it's nice to know that they are doing it. It was Calgary's initial experiments with mino that induced my neuroⁱ to suggest it to me. Yay Calgary!

http://www.clinicaltrials.gov/ct2/show/NCT00666887?term=minocycline+%2BM...

MS update

Submitted by jen wootton on Mon, 2009-06-22 10:23.

Multiple Sclerosis

1st April 2009

Flagyl Qs

Submitted by dkep11 on Sun, 2009-06-21 11:59.

Hi all

Sorry if this appears twice - I thought I submitted it a few minutes ago, but now I don't see it...

I'm on day 47 (just Dox and Zithⁱ), gearing up for my first Flagylⁱ pulse in a few weeks, and I have some questions:

I've talked to a couple folks who have been on Flagyl who say it's no fun & you *must* have some food in your stomach when you take it... does that match your experience? I currently take the Dox and Zith at about 4am and 4 pm on an empty stomach... do I take the Flagyl with the other abXⁱ? If/when I do, do I need some food in my stomach too?

My day 42 update

Submitted by dkep11 on Tue, 2009-06-16 15:10.

Day 42 of the antibiotic protocol! Being on the antibioticsⁱ (Dox + Zithⁱ) is easy for me so far. The only noticible effect is a good one; more regular #2s. If yer colon ain't happy, ain't nobody happy 8).

I have split the antibiotics into 2 groups, and I take 'em within an hour of 3:30 AM and PM.

I take (only) 1200 mg of NACⁱ daily; is there reason to increase that?

I'm going to visit the doc tomorrow - should I push for a B12 blood test?

My biggest issue so far is getting Signature changes to 'stick' on this site! If that's my *biggest* issue I'd say things are going well.

Drs. who treat cpn in Philly or NYC

Submitted by Arttile on Fri, 2009-06-12 09:41.

and are not too costly. We're getting desparate here . . .

Thanks.

Arttile for a friend without internet access.

Drs. who treat cpn in Maryland

Submitted by Arttile on Thu, 2009-06-11 11:15.

Particularly, doctors who will accept Medicaid.

A Beginners Guide to Combined Antibiotic Protocol for Multiple Sclerosis: Questions, Answers and Peer Reviewed Support

Submitted by notasperfectasyou on Tue, 2009-06-09 14:23.

The full GUIDE is located at:

A Beginners Guide to Combined Antibiotic Protocol for Multiple Sclerosis: Questions, Answers and Peer Reviewed Support

Here is an outline of the Guide:

CAP for MS: Q&A and Peer Reviewed Support

Submitted by notasperfectasyou on Tue, 2009-06-09 11:53.

Multiple Sclerosis

A Beginners Guide to Combined Antibiotic Protocol for Multiple Sclerosisⁱ: Questions, Answers and Peer Reviewed Support

NAC flu symtoms?

Submitted by Arttile on Sat, 2009-06-06 13:26.

A friend of mine has had msⁱ for about 20 years and is on disability. She cannot afford internet service right now or much else (like a doctor outside of Medicaid). I gave her my NACⁱ to see what her reaction would be. She took one pill and felt terrible pressure on the top of her head. Is this NAC flu?

1-month anniversary

Submitted by dkep11 on Tue, 2009-06-02 19:58.

Multiple Sclerosis

Well today is my 1-month anniversary on the antibiotic protocol!

Obviously too soon to notice any positive changes(*), but here is what I have learned so far:

Being on the antibiotics (Dox + Zithⁱ) is easy for me so far. The only noticible effect is a good one; more regular #2s. If yer colon ain't happy, ain't nobody happy 8).

The recommended supplementsⁱ are straightforward also - the biggest hassle is 'scheduling' apart from the abXⁱ, apart from each other.

I feel I have learned a ton from this site and the regular posters, thanks!

(*) For those of you with MSⁱ that have seen improvements, how long was it 'til you first noticed a slight change? 3 months? 6? 1 year?

Exercise

Submitted by vlajche on Fri, 2009-05-29 11:27.

Multiple Sclerosis

Should I exercise in order to achieve recovery?

I'm on abxⁱ for 6 months. At the beginning i was abot 6 now I am worse.

day 22 update

Submitted by dkep11 on Wed, 2009-05-27 23:11.

Multiple Sclerosis

Day 22 update

Ya, I'm now a jaded veteran of 22 days 8)

I'm currently on 200mg Dox and 250mg Zithⁱ MWF.

Question about timing... I currently take the ABXⁱ about 12:30 - 1p, with lunch.

I take NACⁱ and other supplementsⁱ before 7A and after 8p.

Q: Am I far enough away from the abXⁱ? Do y'll take the abX around lunch? When I add the Flagylⁱ should I add it to the abX at lunch? (so far, no stomach reactions from the abX provided I take 'em with food)

So far I'm tolerating the abX well...

So far no change + or -... except I'd say the abX are making me more regular with #2 - which is a good thing; if yer colon ain't happy, ain't nobody happy 8)