Multiple Sclerosis

Zeolite....Heavy Metal remover

Has anyone else been using this or knows of it? I highly recommend it. Zeolite is mean't to remove heavy metals from the body that the liver cannot handle. It is negatively charged and attracts the metals in this fashion as they are positively charged. You take it once a day. 1 teaspoon with 8 ounces of water or any other fluid should you require a taste to it. There is a liquid form also available should require it.

The bugs' long-overdue deaths

The title was suggested by a conversation between two of our most battle-hardened warriors, and I couldn't resist it. This has been one of the most eventful years of my life - busy, too. Beginning in January with surgery and moving through kidding season, then a very, very good show season, this last taking a temporary break after the best Nationals in years, then linear classification of our goats, now a break for the really bad August heat (this is AFTER the really bad July heat), then a resumption of show season next month, which wil begin my fifth year of MSi treatment.

The wandering road...

I was reflecting on my morning and decided to put something down.  This is a typical  morning in terms of what can and often happens to me.  The CAPi I've been following for 25 months has impacted it somewhat, albeit in subtle ways. 

Most recently, I have thought that I _may_ have greater heat tolerance then last year (last summer) but it's hard to tell when the ambient temperature jumps so much, so fast.  If my imagining are correct, I've inched up to about 90 degrees F before the heat really starts to slow me down and impact my mobility.  Last year, it was 87 degrees F.  The year before, 81 degrees F.  I'm not sure about it though, just seem to be tolerating the heat a little better.

3rd PULSE done

Finished 3rd blog -- 5 days.  I dislike them tremendously but I think it's because of normal reactions to metroi vs CPNi die-off -- extremely tired, weak.  I hope not.  I feel that my MSi is progressing to the point that I can't go very far at all with my rollator like I used to.  The reason I think I'm progressing instead of CPN die-off is because this progression began before I started CAPi.  I have never been tested; DO YOU THINK I SHOULD?  On the positive, I got a beautiful Himalyian kitten yesterday -- I think I'm calling her Baby Bleu -- I'll post a picture of her one of these days.   

If you think its monotonous to read this....

Pulse #11 completed August 1, 2008. 

Pulse 9 - some real improvement at last !

It's been a while since my last entry, but I've been so busy trying to keep a normal life together. My progress through the last few pulses gave nothing very positive to report. Each pulse was accompanied by broadly similar effects - an upset stomach, an increase in the burning feet and restless leg symptoms, which tapered off towards the second week, and serious fatigue, which was always present. In fact I seem to have slept for most of the previous four pulses, perhaps I needed it.

Hi

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Remarks on Ella's pulse #15

A few observations regarding Ella's latest pulse seem appropriate after the scary events of the past month... Just to be on the safe side she decided to return home to do the pulse taking into consideration the events that followed the previous one.

I observed that:

-the effects of the tinidazole kicked in much quicker this time than has been her experience in the past when a gradual increase of her fatigue, lack of balance and co-ordination was the expected course a pulse took.

-on day one, she suffered her usual loss of appetite, but because she was at home and her 'mummy' prepared and cut up her food, she ate fairly well.

-by day two she was staggering about, wall walking and not going upstairs except for bed

Where's the excitement in that?

Well, it's time to start pulse #11.  Unlike the last few pulses, I'm not going to be on the road while I do this one.  The tension of being out of town and wondering if I was going to have a reaction that would leave me spending the night in a hospital emergency room just added to the "excitement" of each trip.  Being home for a pulse may make the week anticlimactic.  I'll let you know if anything interesting happens.

Steve J's Update: He's Off...and On

We are back from our trip and sort of rested. Even though I had given Steve something to even-out his emotions, he still wept all the way as he walked our oldest daughter down the aisle.  The elevated emotional state made him a bit tottery, but she did a good job of anchoring him.  He even made it fine through the traditional father-daughter dance.  Thankfully, he had more energy than usual on the wedding day and lasted well through the long reception afterward.   Thanks to the cooler weather (and not working), Steve was in good shape for the entire trip, and he even cheated on his gluten/casein diet quite a bit without much ill effect (his leaky gut is much better than it used to be).

Creepy Crawlies

OK, we're now well into this and the pill taking is becoming very tiresome. I have to admit to lapsing with some of the less important supplementsi, mainly because I just couldn't face taking another pill which is maybe why I'm currently driven mad with what feels like ants running around under the skin of my left leg.

I have to keep checking to make sure nothing is running around on the outside of my leg, and there isn't, or, if there is then I have eye problems instead.

If this normal? Or is it me being odd again?

 

Chronicles of a Rifampinaut: stayin' alive on pulse 25

Day 3 of pulse 25 is well underway.  Over the weekend, I had two days of taking the higher dose of Metronidazolei and it continues today with 3 x 500mg, this time in pill form as opposed to the capsule form.  I can now say from first hand experience, there is a major difference between taking the capsule form and taking the pill form.  The pill form is NASTY.  Horrid, horrid taste!

I've started attempting to toss the pill back in my mouth to my throat in hopes of missing my tongue entirely and washing the bugger down.  Uggh!!  I had it easy with the capsule form!  Unfortunately, when my doc increased my dosage, he also increased the amount of pill prescribed so that I get a 4  month supply at a time.  Now, all in pill form....yuck!

I'm unrepentant

Well, first the good news.  I didn't get to find out what the Emergency Rooms looked like in Arkansas.

The better (or worse, depending on how you look at it) news is that after next to no reaction to my last few pulses, I am having significant side effects this time:

LDN

What is LDNi?  The SEARCH function didn't help.  Is it part of a protocal? Can't tell if it's good or bad.  Some say 'bad' but it seems that  a lot are taking it.

Site instructions

I can never remember how to post links or photos. Is there somewhere on the homepage tat reminds you? Could there be?