My general practitioner started me on minocyclin.

But I do not tolerate it or I think the porphyriaⁱ kicks in after day four and I need to stop the minicyclin.

He wanted me to be on 200 mg mino for 3 months.

Does anyone have the same problem?

Hello,

I’ve been reading the CPNⁱ blog for a long time, and thank you to all who’ve posted. You are a generous and dedicated group and I’ve learned (and been heartened and encouraged) from what I’ve read here.

My background:

Nausea, stomach pain and vomiting from gastric irritation while taking Doxyⁱ, Clarithromycin or metronidazoleⁱ(Flagyl) is a topic that has come up over and over again here.  

Empty Capsules Triple "000" size V-caps or Gelatin Caps was suggested several years ago for people who had trouble tacking Flagyl.    I picked up a bag at my local natural foods store.  Some people purchase Vit-C in bulk and fill their own capsules, they are used for other herbs as well.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPⁱ. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over. 

I recently visited my doctor and asked him about switching from Doxyⁱ over to Minocycline.  He was willing to do it but was rather uncomfortable with it due to the experience several of his patients have had with it in the past.  Consequently, I'm wondering how common these experiences might be?

What he said had happened is that several of him patients began having skin discoloration.  Their skin would turn blochy/blackened.  It would be as though they had a dark patch of skin, sometimes very large patch covering their side or legs.  By dark, I'm talking the color of dark coffee, or cholocolat.

Anyway, I decided not to press on switching to Mino, yet, but it's still riding around in my cranium as something I may due at some point.

I saw both my endocrinologist and my CAPⁱ prescriber this week. I have a painful heartbeat that's been bothering me mainly with some movements and deep breaths. So my endo wants me to take Advil in addition to my CAP. My CAP prescriber didn't have any suggestions in that regard but wants me to add Diflucan into the protocol for possible candida issues just b/c I've been so long on abxⁱ.

Right now I am taking Amoxicillinⁱ 1000 mg x 2/day, Clarith 500 mg x 2/day, Minoⁱ 100 mg x 2/day, Flagylⁱ 500 mg x 2/day. If I add Advil and Diflucan, would it be too many drugs for my poor liver? On the other hand, I'd like to try something for that painful heartbeat.

Any thoughts? Thanks for any input.

My previous LLMD who was my CAPⁱ prescriber moved out of state and I transitioned to another dr in the same practice group. Yesterday was my first appt. I was a bit apprehensive to change the dr but I am happy now I must say.

My new dr has a different approach to the disease in terms of that he treats whole body. If my previous provider just gave me CAP rx, this dr wants to address all my conditions - hypoT, hypertensionⁱ, nutritional issues, wants to check heavy metals as well. He even asked if I have a ObGyn and do regular pap smears.

Below is a small paragraph from Lyme disease dxⁱ/tx guidelines of Dr. Burrascano that struck me as I was reading, anyone heard of Flagylⁱ/tetracycline interactions?

Yesterday I took my first Flagylⁱ 250 mg, no reaction. Today took 2 x 250 mg and started to wonder, is it possible to develop resistance to Flagyl if taken in small doses? I'll be increasing the dose in future pulses if tolerated. My dr wants me to take 500 mg x 2/day for 14 days a month eventually.

It's hard to believe but I am on 13th month of CAPⁱ treatment. I started on January 02, 2008, twicked my protocol a little for a couple of months. Since March'08 I settled on Doxyⁱ 200 mg/day and Rifampin 600 mg/day. In Nov'08 Bactrim was added twice a day. 2 weeks ago I switched from Doxy to Minocycline. So, right now I am on Mino + Rif + Bactrim.

First of all ... I do not know why I ever complained about not sweating! I had daily & nightly fevers in Sept. Sweating was the way of my existence and drinking water was all I could think about as my thirst was so great. This past month the fevers are letting up. I only sweat a few hours a day usually after dinner or during the night. Occaisonally now I skip a day or maybe two or three at the most. Just when I think the fevers and sweats are going I get hit again. So this has caused me to stay home indoors a lot the past couple months cause my nap time is definitely therapeutic. By afternoon I am drained. However, I jump at the chance and have managed to drive two or three days during the good hours of my better days. Otherwise I think I would go stir crazy.

I recently had a blood test done for Cpnⁱ panel to see what I could learn. I realize these tests are not considered accurate. But I was curious & had the opportunity ... so why not?

The panel included C. trachomatis, C. pneumoniae & C. psittaci.

Both the C. trachomatis and C. psittaci results came back normal reference range and said "ANTIBODY NOT DETECTED".

However the C. pneumoniae came back marked high on two fronts.

IgG  1:512 H   (reference range: 1:64)

IgA   1:64  H    (reference range: 1:16)

IgM <1:10

Interpretation = PAST INFECTION

I found this website while searching for some detractors of the Marshall protocol.  That is not to say that this site is one, just that I found a thread discussing the pros and cons of the MPⁱ.  This leads me to post a few questions here for purposes of comprison, if you will kindly indulge me.

Presently I have been on Minocycline for over two weeks. The inflammation has been increasing in small increments daily. I was not keeping on top of the load of toxins/porphyria with my usual doses of glucose, Emergen-C and charcoal. So a couple of days ago (9/20) my recent supplement order was delivered which included some Yaeyama Chlorella to try out. Only after two days of use before lunch I am impressed of how effect it seems for me. It is the perfect pre-lunch mopper. Which is a time of day I really need help. It is when it is not convenient to take any of the other moppers I use. But to be clear, I definitely will continue all of them at the usual times I take them as well.

Well, I don't have to tell you that I am pleased things turned out pretty good for me. The first few days of Minoⁱ were misery but then things began to settle down. The last couple days I haven't had to take extra Emergen-C but I am still stiff and achy. Plus my eyes are so red some folks at the store look at me as if I am crying OR stoned... sympathy or disdain. Of course either way I don't appreciate the vibes so quickly move on. Also I have daily coughing sessions and about gag at times trying to break loose the mucus stuck in my bronchial airways. (sorry) Sometimes it just feels like a hair stuck in my throat. It is worse for me in the mornings.